I am trying to get some information on mycoplasmas. I have Fibromyalgia and have had it since I was 17 yrs. of age. I am now 30 and feel that there is something causing this pain. I believe it to be those stupid mycoplasmas that are hanging out in my body. I can't get one single doctor to believe me. I want to be put on long term antibiotics. I know they work. Out of the 12 - 13 years I've had Fibro, twice I was on long term antibiotics for severe chronic sinus infections. After two month of being on antibiotics, my body went into remission from pain. The first time it lasted a year and a half, the second time it lasted a year.
Last week I rushed myself to the emergency center due to a severe bladder infection. I was put on 1000mg/day of CIPRO. On the second day of taking the antibiotic, I went into the Herxheimer Effect. There is no question in my mind that I don't have bad bacteria all over my body causing me this pain.
If you have any information on mycoplasmas, or a good doctor in the Chicago area, please post.
Hi, Trooper. I am a 52 year old GA woman who has many health problems....fibro/CFS, a history of Epstein Barr Virus, Cytomegalovirus and other intestinal/bacterial viruses and skin problems, plus more. I have hypoglycemia, hypothyroidism as well.
I have a rheumatologist, dermatologist, internist, therapist, and more. However, the one more likely to help me and you get to the bottom of mycoplasma is a doctor of homeopathy. I have seen a doctor of osteopathy who also has further training in this area. I saw him this past Monday and my throat/ear was hurting every time I swallowed. He took a look and said, "you have something possibly big going on here". He mentioned something about "red crescents" and then gave me some web sites to look up on mycoplasmma fermentans. He also mentioned something about CFS having the exact same symptoms as Gulf War Syndrome.
Anyway, he drew some blood to try to confirm my diagnosis. I have done a little research and know that it takes a sophisticated lab to run the particular blood work and a doctor knowledgeable and willing to treat the whole person because this doctor will listen to you.
My Dr. said this "will kick your butt". Good luck. I hope to hear from you and I will try to share what is going on with me.
[This message has been edited by moderator3 (edited 02-22-2002).]
I have also heard that CFS / FM have the same symptoms of GWS. That is why I started looking into the mycoplasmas. Dr. Nicholson is the one who's theory this really is. Unfortunatley I cannot find a doctor that will listen to me. I know I am on to something here. There is too much of a coincidence with me being on long term antibiotics and releif from my FM symptoms. I always feel like there is something going on in my body - like bateria overhaul. I have one small 'lump' on the back of my butt. It feels like a small puss sac. My doctor said that it is just a part of getting old. Hello, I'm only 30 yrs! I also have a very small one underneath the skin under my eye. This comes and goes from being a little bigger to smaller. My nose constantly drips. I just feel 'sick' all the time and my doctor doesn't believe me. I have been thru so many doctors that I am starting to give up. I am looking into getting with an infectious disease doctor with my local hospital.
The only thing I take for my FM is guaifenesin, which is supposed to release all the excess phosphates that are in my muscles. I just think that there is more to it than phosphates.
I will check the web sites that you provided me. Thanks for that info. I would be very interested to see your progress and what you have found out. Have you ever tried long term antibiotics? How do you think you got sick in the first place?
Trooper, an Infectious disease doc should be of help. I saw one of those in 1995 but at that time CFS diagnosis was debated and controversial so in spite of my having all the symptoms, even the blood work, she didn't think I had it. She said if I had depression, then that was may diagnosis....or if I had hypoglycemia, that was diagnosis. That CFS was a "diagnosis of exclusion". The book I had on CFS written by doctors who happen to have it, a nutritionist anmd others had the symptoms listed and I followed it to the letter... Including my allergies, depression, hypoglycemia, blood work and now my
hypothyroidism. Maybe now that things have been put into perspective, people will get more accurate diagnosis.
In 1982 I had silicone gel breast augmentation. In 1988 I had lazer surgery for cysts and endometreosis. In 1989 I had three hour glucose tolerance test...I was hypoglycemia. In 1990 I had a total hysterectomy and oophorectomy. All this while I was having sick headaches, fatigue, depression and then skin rashes. I saw an endocrinologist in 1993 due to all the information I was getting about possible leaking from silicone implants. That is when I learned I had a positive ANA which indicates your body is fighting against itself. I also had an elevated Sedimentation rate and a positive Rheumatoid Factor. Along with all my symptoms and this blood work, in 1994 I had my implants out...the right one ruptured. So....this has been a very controversial subject but I was determined by a court appointed team of doctors to have Atypical Connective Tissue Disease due to all the compilation of signs, symptoms, complaints, and diagnoses.
In 1994 I had 4 viruses which took me to the ER. I also had carpal tunnel release surgery. My body went through alot of trama because also in 1994 we were flood victims and my blood pressure reached 164/104.
I had a positive or elevated Epstein BArr Virus titer in 1995.
We raised two sons who in 1994 were 18 and 20. I had worked all my life and was very active in church. school and community. I think it is an accumulation of things which caused my immune system to become suppressed.
In 2000 I had a positive Cytomegalovirus. Now with this possible mycoplasma fermentans....Lord only knows.
Stay in touch.....you can call this "everything I ever wanted to know about someone I don't even know?" LOL
Wow, you certainly have been through a lot! I guess we don't realize what we have put our bodies through until much later.
It's hard to tell where I developed my FM. A lot of people say that we have the pre-disposition for it and a 'trigger' sets it off. With me, I have more than one 'trigger', so it's hard to say. At the age of 17, I had contracted a severe case of mono. This lasted a good 9 months were I was so sick and had puss sacks all over my body. I would wake up in the morning with my eyes sealed shut from all the mucus that was secreting from my tear ducts. My neck had puss sacks all up and down that you could feel with you naked hand. I slept all the time, never had energy. Then I was in a car accident. Rear-ended by a semi going 55mph and I was at a complete stop. Then my father had a bad accident that left him in the hospital for 2 months. At the age of 18, I was running a business in downtown Chicago (my father owned) and taking care of my two older sisters, my mom, my younger brother and our house. Then my grandmother passed away, whom I was very close to. All this happened within 11 months. All triggers for FM. I feel that my mycoplasmas came from the mono. I still feel that there are bacteria hanging out in my body. I went through blood tests for 6 months to find out what was wrong with me. That was at the age of 19 when the pain was so bad that I couldn't even sleep. The doctors were stumped. My ANA test came back negative, so did lupus, lyme disease, arthritis. After 6 months, they shrugged their shoulders and basically said there was nothing they could do for me.
Finally this past January I got the dx of Fibro. Doesn't help me out other than there is now a name for what is wrong with me. I cope with aqua therapy and my guaifenesin.
I'm still on the search for a new doctor. I know there are tests that can be run for the mycoplasmas, but heard that they are very expensive and have to be done just right in order to be accurate. I can only pray that I find a doctor that will run that test on me. I know the result would be positive.
I have heard that these mycoplasmas can be given to people that are close to us - i.e. family members, pets, etc. Have you heard that to be true? If you have more tests run for the mycoplasmas, how do you plan on handling it? I mean, will you accept a long term antibiotic treatment?
I know this is a board for GWS, but the symptoms seem so close. And I know that there is a correlation of the mycoplasmas.
I just wish I could find someone to believe me. It's one thing to do research on your own and figure out a treatment plan, it's another to get a doctor to believe you and write that prescription. Geez, all I want are long term antibiotics, not major pain killing drugs!
I'm still doing more research and am rummaging through some old web sites that I found mycoplasma info on. I will post once I gather that info.
Mycoplasmas 
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