| | Anyone else out there been dx'd with Transverse Myelitis?
In Aug. 01, I was dx'd with MS, by a MS Specialist. In Dec. 01, I had a bad relapse and was being treated for it as MS until my insurance ran out due to not being able to work.
I started going to the VA Hosp. in Jun. 02 and was seen by MS Specialist from Yale/New Haven Hosp., they see pts. at the VA. He ordered new MRI. He said that the MRI's I had brought with me were normal. That's when I told hiim that another neuro had shown us the MRI and pointed to 8 lesions. His reply was,"yes, I saw those but want to make sure they are not veins." So had new MRI head with contrast and went back to theVA for another appt. on the 22 Aug.02.
Of course, there was another neuro there that day, also from Yale/New Haven and MS Specialist. Another exam, checked the new MRI and came back in and said that MRI was "normal". She then said that I have Transverse Myelitis of unknown origin to come back in a yr. for a follow-up. If I had a relapse or worsening of bladder problems to come back sooner. She did order PT for me and suggested an area rehab. center that is excellent but I don't know if VA will pay for that or not.
So I am looking for others who have been dx'd with this since the gulf. Yes, I am a gulf vet.