Molar Pregnancies - Miscarriage & Still Birth Message Board

jenn22 · 02-23-2005, 07:45 AM

Hello Everyone,

Recently I was diagnosed with a molar pregnancy. I've been trying to look up as much information as possible on this subject, and this is really the only messageboard that I have been able to find where I could possibly talk to someone about the condition.

At first, the pregnancy started off normal, morning sickness etc, and then I started bleeding heavily and passing placental tissue and had to be rushed to the hospital. My uterus was much larger than normal, and my HCG levels were at 1.8 MILLION. They performed a D&C and told me I had to come back once a week for bloodtests so they could follow my HCG levels. At first the levels started coming down great, finally ending up in the nineteen thousand range. However, as of last week they have increased again to twenty three thousand, and then as of yesterday to thirty six thousand.

I am currently undergoing chemotherapy treatments because I am at a risk for gestational trophoblastic neoplasia. (where the cells in the uterus begin to multiply and spread like cancer if not taken care of.)

Eventhough I've read that the cure rate of this is about 94-99% I am still petrified on top of greiving the loss of what could have been my first child.
If anyone here is or has gone through this please reply. Any information would be greatly appreciated.

Thank you and God Bless,

Jenn

Spanish · 02-23-2005, 12:02 PM

Hi Jenn

I haven't been though what you are going through, but I just wanted to let you know that I really feel for you. You are so brave to cope with both a miscarriage and the chemotherapy at the same time. I hope you are able to find some other people who have been through the same experience.

You'll be in my thoughts - take care of yourself, and I truly hope that everything works out ok for you.

Spanish

Zayazmama · 02-23-2005, 07:22 PM

Aw hun, I am so sorry that you are going through such an ordeal. I have not been through exactly what you are going through, BUT..... 2 years ago tomorrow, I underwent a D&C for a molar pregnancy. I never had bleeding, but had major MAJOR pain. The doctor determined that the pregnancy had ceased and it was time to remove what was left. I ended up with Bell's Palsy afterwords, which I am sure was nothing more than a coincidence.

The way it was explained to me: A molar pregnancy is when the pregnancy starts, but for some unknown reason, it just stops developing long before anything can be done to help it. I know that is not much explanation, but that is what my doctor told me. It has nothing to do with anything you have or have not done. It, like most miscarriages, just happens.

Again, I am sorry for your ordeal hun. I hope things get better for you soon.

Jen

momuv3roses · 03-08-2005, 09:59 AM

I am also very sorry , I know this is a very hard time for you and your family. I went through the same thing 4 years ago, I did not undergo chemo. I had 2 d&c' s I was bleeding very bad after the first one. I hated having to wait to try another pregnancy. But a friend of mine did and the treatment was very successful and she has a beautiful 2 year old girl now. I have since had 2 healthy pregnancies. There used to be a support group site and that is where I met my good friend. I think they moved it to the angelnetwork. Good luck to you getting through this trying time and it is very difficult to find reliable info. If I find anything I will pass it along.

Molly20 · 03-20-2005, 11:39 PM

Oh my gosh! I have been SEARCHING for someone to "talk" to about the loss of my baby due to a molar pregnancy - it has taken a year and finally someone who truly knows the pain! Thanks for sharing. I was 18 weeks along in my 3rd pregnancy - and though I had pretty severe morning sickness with my first 2 babies it was nothing like this. I finally ended up on Zofran - a very expensive drug apparently prescribed to chemotherapy patients because it blocks the nerve center in the brain that stimulates vomiting - and even it didn't help much. My husband and I were told that we could possibly be having twins. We did hear the heartbeat on more than one doctor visit and we were told that everything was "fine", despite how sick I was and the ketones in my urine. Anway - when I finally was able to convince the doc to do an ultrasound early - at 18 weeks - we found out the baby had died. Squished out by the mole/growth. Then I had a D&C and the weekly blood draws until my HCG levels finally did return to zero several months later. I have not been the same mentally since. I feel a piece of me has died...no one I talk to seems to understand...they treat me like - and have even said "just get over it". I am still devastated and have searched for some place to vent my heartbreak. I thank God everyday for the 2 beautiful children I have...but I will never forget the loss of my 3rd child. Thanks for listening!