Hi everyone,
I am looking for anyone who has been through or knows of molar pregnancies. I am no longer pregnant so I cannot display this on the pregnancy messageboard so I hope I'm on the right one! Here is my story...
My husband and I decided to try getting pregnant in 2004. My periods stopped and after seeing my GP, found out I was pregnant.
Things were going as planned, mood swings, sore breasts, weight gain, HCG levels rising normally. We went for the first scan and, no baby. My husband and I were devistated. We had never heard of this before. My gynae told me it happens to 1 in every million pregnancies, so is very rare.
I had the D&C the next day, then went home. I had to go back every 2 weeks to check my HCG levels were falling normally, they are normal when they are less than 5. Mine got stuck at 12 and wouldnt fall any further. I had methotrexate chemo to bring them down. When they reached 5, I stopped the chemo and proceeded to have monthly bolld tests to 12 mths to make sure they didn't rise again. Which they didn't.
18mths after my first pregnancy, we decided to try again. I went off the pill. One day at work I have a massive bleed, it was so bad I couldn't even walk around without it rolling down my legs. My boss took me to A&E, I was sure I was miscarrying. The bleeding stopped after a few hours. The Drs at A&E had no idea what was going on so sent me home with a scan in a week.
At the scan they found a AV malformation inside my uterus, a collection of blood vessels hanging insode my uterus, supposedly left over from the molar pregnancy 18mths ago.
Since then I have been adimitted to have two uterine embollisations, where they try to block off the main arteries feeding these blood vessels. Both failed. After speaking with endo's in the US, my gynae has had me on the pill for 6mths, taking only the hormone tablets, so no periods. Hopefully this would have reduced the blood flow to the uterus and shrunk the blood vessels. I am now waiting for a scan at the end of the month to find out if it has worked.
This whole event has now been going on for more than 2yrs. I feel drained, depressed and as I am typing this, I am crying my heart out.
I hope to hear from anyone who has been through something similar. I have heard for some who have had the chemo but no one yet who has had the blood vessels inside the uterus. I am also worried about the effect of cancer. I have heard that some moles turn into cancer. I am looking forward to hearing from anyone with any info.
Thanks
Amanda
Amanda,
I am very sorry and I can Kinda relate. I suffered from a Partial molar pregnancy 4 years ago. I was pregnant as normal (or so I thought besides the EXTREME NAUSEA) had all the preganacy symptoms, sonograms, heard the heartbeat etc and at my 3rd month visit there was no heartbeat and I had to have a D&C. I went to have the D&C and they did ultarsound but they would not do it because of the risk of Hemmoraging (sp?) because I had HUGE baseball size cyst on one overy and the other overy was filled with clusters. I had to wait almost 7 days before i could get to a specialists to do a D&C. Pretty traumatizing to carry a fetus with no heartbeat that long.
I than discovered after the D&C It was a partial molar pregnancy and My HCG levels were skyrocketing. I had to go in weekly for blood test for 6 months to make sure my HCG was dropping. They put me on birth control pills and it helped. Luckily I didn't need the Chemo. I had a few spells where I had severe bleeding..in chunks and severe abdomnial pain for ahile. My dr. told me I could try for another baby about a year and a half after. Well like I said it has been 4 years and I have not attempted cause I am soo frighten to go through the molar preganacy thing again or the risk of getting cancer. I can see where you are coming from and how frustrating and tiring this can be.
I have now starting feeling the risk to take that chance again and try for a baby this year.
I wish you the best of luck. I know you will be ok.
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