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Old 04-24-2007, 11:20 AM   #1
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Shannon78 HB User
Molar Pregnancy

Hello my name is Shannon and here is my story. I found out I was pregnant with my third child and it was a shocker but it was a blessing. I went to the doctors and everything seemed to check out. The doctor never was able to get the baby's heartrate but he said that sometimes they can't get it. I didn't think anything of it. Well it turns out that I was almost 5 months along. The doctor still said it was okay. I didn't think it was. I had already had 2 other kids. Well one Saturday morning I started to bleed. I called the doctor and he told me to stay on bed rest the rest of the day and come and see him first thing on monday morning. I went to his office and he did an exam and told me that there is bleeding on my uterus. So he sent me to the hospital for an ultrasound. The tech didn't say anything the whole time she was doing the test. She then tells me to go out and have a seat and the doctor would be there to talk to me about my options. I didn't know what was going on. I then became very nervous. Then the tech comes back into the room and tells me that the doctors office was on the phone and wanted to speak with me. ME and my mom went in there and picked up the phone and the lady persisted on telling me that it was a molar pregnancy and that my baby was dead and that I needed to be back at the hospital tomorrow for a D&C. I then lost it and couldn't stop crying. I then went home and went to bed and got up and went to the hospital. I then started to get everything I needed for the proceedger and then a nurse came running into the room asking the other nurse if she had started giving me my iv yet. The nurse had said I was about to why? The other nurse said that the doctors office never put the order in for the referral and that I would have to pay for the whole thing. By this point my husband started to lose it. He started to shout at everyone and saying that my wife has been through enough and she doesn't need this added to it. The administrator came in and heard what had happened to me and got my referal. The proceeder went on and I went home. I had to go back to see my doctor after the first 2 weeks and then I only saw him 1 more time after that. My doctor asked me if I was going to try to have another baby. I told him yes. He said to wait for at least 3 months. I waited 6 months before I became pregnant. I'm now almost 3 months and I just found out through my new doctor that my old doctor should have been having test done on me for a year and that I shouldn't have been told 3 months that I should of waited 1 year. So now I really scared that something will go wrong with this pregnancy since I had never been tested for anything. I've been told that I should take my old doctor to court for malpractice. I just pray that my baby will be just fine. I'm not sure now that they told me today that there is so many risks to me and my baby. They told me that I can have a miscarriage or a still born and many other things could happen since I've never had any kinds of test or anything done about it. I would really like to hear some other opinions and advice. Thanks for listening to my story!!

Shannon

 
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Old 04-24-2007, 01:30 PM   #2
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athome1 HB User
Re: Molar Pregnancy

What a mess! Your new doc is right. You should have been having your HCG levels tested for 1 year after the mp to make sure that they go back down to zero. Otherwise you would have been put on cancer meds. Suing your last doc really won't accomplish much, so I would focus on doing whatever you need to do to make sure you have a healthy full term pregnancy. There are lots of boards out there strictly for molar pregnancies that may be able to give you more info about what should have been done after the D&C. Congrats on your new pregnancy and good luck!!!

 
Old 04-25-2007, 11:47 AM   #3
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Shannon78 HB User
Re: Molar Pregnancy

aelliott I want to thank you for your opinion and advice about my situation. Everything you said was very encouraging and made me keep my hopes up for the best. So thanks again!!

 
Old 04-26-2007, 07:01 AM   #4
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Re: Molar Pregnancy

I'm glad I could help! I have been through 3 m/c's and am currently pregnant again and due any time now. This current pregnancy is being called a molar pregnancy because of an unknown cystic "grapelike" mass on the placenta. They think I have a twin molar pregnancy, but cannot be certain until delivery. So after meeting with doctor's for the last 8 months and reading everything I can find, I know enough to be dangerous on the subject. Hopefully it will be all for naught and everything will be fine!! Good luck and don't stress!!

 
Old 04-26-2007, 02:27 PM   #5
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desmaggie HB User
Re: Molar Pregnancy

I had a miscariage at the end of february and we are going to start trying in May. Why do you have to wait a year? Sorry for my ignorance but what is a molar pregnancy?

 
Old 05-01-2007, 04:41 PM   #6
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babykitten HB User
Re: Molar Pregnancy

I just had a molar pregnancy. Here is my story:
I was 6 weeks pregnant when I started spotting. I went to the hospital and they did a bunch of blood test. My Hcg was normal but they found out that I was RH- so they gave me a rogam injection in case I miscarried and sent me home. I went to see my family doctor the next morning and insisted on a u/s. I went later that week for the u/s and was told that there is a sac but no fetal pole and that I needed to repeat the u/s in a week. I went every other day for blood work to monitor my hcg, which kept rising. A week later at the next u/s they said that there was no fetal pole which indicated a possible molar pregnancy and I needed a D&C. I had the D&C a couple of days later and when the pathology came back it confirmed that I had a complete mole. I've been going weekly for blood tests to monitor my hcg. As of yesterday they are at 9. My doctor told me to go back on the pill right after the D&C but I've been reading up a bit and have found some information that indicates that I should have waited to re start the pill until after my hcg went back to normal. Women who go on the pill before hcg return to normal most likely will require further treatment (mild chemo drugs to rid the left over tissue). My doctor said that once I reach normal (0-5) I need 3 weeks of normal and then once I get that I can go monthly for 3 months. After I have 3 months of normal then we can start to TTC again. This has been quite a shock to us. I didn't even know that this existed before it happened to us.
I wish you all the best!

 
Old 05-07-2007, 08:13 AM   #7
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Cupcake3 HB User
Re: Molar Pregnancy

HEllo Shannon,
Sorry to hear about your story! I hope all goes well for you in your new pregnancy.

I recently had a molar pregnancy. IT was not found out until 10weeks. I m/c at 6 weeks had a D&C. Went back for HCG level tests which kept rising. Until Dr found out that I had a molar pregnancy. Second D&C was done on Mar 8th. I also had a shot of methotrexate (mild chemo to kill off the HCG levels.) I went for HCG level tests every week until it fell to 23. Now I go once a month. I was also told that I will have to have my HCG level tests done monthly for a year and then she will tell when it is OK to start TTC... I am really at my wits end at 38 years old, will be 39 this year.I feel like I am at the end of my rope. I went back on Birth Control almost almost immediately after. Also doing some acupuncture, yoga, ballet and pilates to ease the stress.

I wish you well in your pregnancy. Please keep us posted on your progress.

 
Old 05-07-2007, 03:32 PM   #8
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babykitten HB User
Re: Molar Pregnancy

I find it very intersting how we are all told different things with regarding to TTC after having a molar pregnancy. I guess it's up to the doctor...

 
Old 05-08-2007, 01:19 PM   #9
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Cupcake3 HB User
Re: Molar Pregnancy

When I first started Birth control my HCG was 23

Now it has been nearly 21 days since I started Birth control and on May 1st HCG level was 2.33. It was still dropping even with birth control.

Still have to wait until the end of the year to start TTC, if the DR says it is ok.

I am still going for HCG level tests every month.

My Dr says that I am high risk because of age 38y. Next pregnancy will really have to be monitored very closely.

 
Old 05-09-2007, 07:07 AM   #10
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babykitten HB User
Re: Molar Pregnancy

As of last week, I'm at a 9. I still go every week for the blood work. I started the pill the same week as my d&C but I've stopped now. I'm seeing my doctor next week, I'm curious to what I'll be at then. Ihope below 5..

 
Old 05-09-2007, 12:47 PM   #11
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Cupcake3 HB User
Re: Molar Pregnancy

It should drop pretty low next time you go.

Keep in touch and take care
C.

 
Old 05-09-2007, 03:58 PM   #12
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babykitten HB User
Re: Molar Pregnancy

Thanks, I will.

 
Old 05-16-2007, 06:43 AM   #13
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babykitten HB User
Re: Molar Pregnancy

Well, my hcg was a 3 this week which is considered "normal" so now I just need 2 more weeks at below 5 and then I can go to monthly checks. I can't wait for that as my arm is so bruised from all the blood work. I only have one vein that is okay for taking blood. When I told my husband last night was my levels were he got excited and asked if we could start trying again? I had to tell him no not yet. It was cute though.

 
Old 05-16-2007, 07:40 AM   #14
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Re: Molar Pregnancy

Hello Babykitten

Glad that your HCG levels are normal. I know about the bruised arm and all...It will clear up.

Once a month is better.I always go on the 1st of the month which makes it easier for me to remember.

Glad that you are ok and feeling better.

Time will fly. My Dr said that I can see the fertility specialist around Sept/Oct as long as the HCG levels stay normal...

take care and keep in touch..
C.

 
Old 05-16-2007, 11:36 AM   #15
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babykitten HB User
Re: Molar Pregnancy

Thanks Cupcake, we both have something to look forward to in the Fall.

 
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