Re: lost baby at 22 weeks from HLHS
I want to thank everyone for their responses, it really helps to hear that other women have been through this and are still going on to have healthy children. We know that trying for another baby means a 5% chance of a repeat CHD situation, but have our fingers crossed the next baby will be okay. We wanted to go for genetic testing, but they told me that the gene that carries this defect is not traceable so it wouldn't help us. We are currently waiting for the results of our baby's autopsy, to see if we can learn anything from that. I keep telling myself that we have a 5 year old son who is completely healthy, so if our same genes that produced our sick baby produced our healthy 5 year old, then it's possible for other children to be conceived healthy too. That's what I'm hanging onto.
Hearing other people having healthy babies out there after babies with HLHS, makes me a little more relaxed about it since it's such a rare thing that there isn't a whole lot of info on.
Thank you to all for your comforting comments. I wish you well storm12 with your pregnancy and I can feel your anxiety about it, waiting sucks since it's such a long wait at that. Good luck and best wishes for a healthy baby, my thoughts are with you :-)