mononucleosis - Mononucleosis Message Board

Inasense · 08-15-2001, 12:59 AM

I was diagnosed w/ mononucleosis in 1994 after going to several doctors because I was suffering from severe fatigue. At first I was relieved because I finally knew what was making me so sick. My relief was short-lived, however, because after several months, I felt no better.
That was seven years ago and I still don't feel any better. My doctor tried to tell me it was depression and although I do feel depressed at times, I think the depression is a result of the fatigue and not the cause of it. I also have muscle aches and soreness.
After reading the message boards on CFS, I noticed that several of them made references to mononucleosis and Epstein-Barr virus. Can symptoms of mononucleosis persist for years like this or perhaps turn into a chronic illness such as CFS?
Also, if anyone could tell me what type of specialist could help me or any specific tests I should have done, I would greatly appreciate it.

grannyrninspring · 08-29-2001, 12:44 PM

Mono can be a predacessor of E-B and CFS. You can be tested for E-B. A positive test for e-b with continuing symptoms almost always seems to be associated with cfs. i had mono at 17 and tested positive for e-b about 6 years later and continued to have cfs symptoms. many drs tried to pass it off on having small chilidren and simply not sleeping enough, depression....you know the drill...i finally found a dr rhat knew about cfs and was able to treat me with (at that time) vitamins, b-12 shots, gamma globulin shots and provide me with info and support. i have been feeling great for the past 10 years without any cfs symptoms..of course, i have lots of other problems now..getting older does that!!!!

Alohaguy22 · 08-30-2001, 10:24 PM

I had mono and viral Hepatitis back in 1995. This nailed me extremley hard and the medicine prescribed by the doctor was not doing anything. I found an excellent naturopath, and he prescribed multi herbal formulas, vitamins and a 60% rawdiet. Within one month, I tested negative. The results were mind blowing to say the least as I know people that have had it for months and months. I suggest you find a good naturopath that can put you on a routine to enhance liver function and the immune function. Your energy should start return slowly within a week.

Quote:

Originally posted by Inasense:
I was diagnosed w/ mononucleosis in 1994 after going to several doctors because I was suffering from severe fatigue. At first I was relieved because I finally knew what was making me so sick. My relief was short-lived, however, because after several months, I felt no better.
That was seven years ago and I still don't feel any better. My doctor tried to tell me it was depression and although I do feel depressed at times, I think the depression is a result of the fatigue and not the cause of it. I also have muscle aches and soreness.
After reading the message boards on CFS, I noticed that several of them made references to mononucleosis and Epstein-Barr virus. Can symptoms of mononucleosis persist for years like this or perhaps turn into a chronic illness such as CFS?
Also, if anyone could tell me what type of specialist could help me or any specific tests I should have done, I would greatly appreciate it.

01-07-2003, 09:55 PM

I was diagnosed with mononucleosis exactly 1 month and 1 day ago. I have since missed 2 1/2 weeks of school(then winter break came), but now I'm back at school. I just completed my second day. My problem is, I have gym and my doctor thinks that I should be working to get back and I'm having trouble just getting through the school day. I'm an athletic person, so it's not that I just want to miss gym. I was wondering, do you think that I should be going back to physical activities so soon and when I still don't feel up to par?

Libby353 · 01-10-2003, 02:25 PM

First off, EBV is not a precursor for CFS. Many people with high EBV titers do not have CFS and will never get CFS. You should check out the CFIDS Association of America web site. They have an area with information on what the relationship is between EBV and CFS. Also the CDC has a site on CFS and it goes into detail on the relationship between CFS and different virus'. Here is a quote from the CDC's site:

"CDC's four-city surveillance study found no association between CFS and infection by a wide variety of human pathogens, including EBV, human retroviruses, human herpesvirus 6, enteroviruses, rubella, Candida albicans, and more recently bornaviruses and Mycoplasma. Taken together, these studies suggest that among identified human pathogens, there appears to be no causal relationship for CFS."

Also, the CFIDS Association of America has a database of qualified national doctors.