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Old 04-29-2007, 01:16 PM   #21
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Re: Epstein-Barr/Mononucleosis

I keep telling you all how intertesting I find this board to be, and now this topic is a hoot to me. As you know, i do not have MS...I have Lupus. When i was 14 I was very sick for 2 months and couldn't seem to get better. The doctor had no clue what was wrong with me but I had no energy, i was anemic and just very weak. i missed so much time at school and my homework was sent home for me. Anyway, the doctor finally checked me for Mono. because I had a very high WBC but he said I didn't have Mono. Then, when i was 24 I had 2 very large golf ball size lymph nodes in my groin that lasted for about a week and then they went away. No explanation was ever found for them and they never returned. My Father's sister has MS and that is the only family link.....maybe all this points to autoimmune problems at an early age since most of us have had this when we were much younger? It is amazing what can go wrong in these complex bodies of ours!

 
Old 04-30-2007, 06:46 PM   #22
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Re: Epstein-Barr/Mononucleosis

Got permission to post the link -- thought it might be okay because it's on WebMD, a healthboards.com partner. As I said below, I found several interesting things -- worth reading (don't let the title fool you)

[url]http://www.webmd.com/multiple-sclerosis/news/20070426/ms-increasingly-womans-disease[/url]

 
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Old 05-01-2007, 05:59 AM   #23
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Re: Epstein-Barr/Mononucleosis

Well. Isn't that just peachy... :P

Last edited by Lisa_P; 05-01-2007 at 06:01 AM.

 
Old 05-01-2007, 02:01 PM   #24
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Re: Epstein-Barr/Mononucleosis

Lisa, again I ask "are you ok?". I dont mean to be rude, and Im not about to report your posts, Im more concerned with why the comments to everyone's posts today? No matter what people write, youve got a comeback...isnt what peachy? I thought that this was an interesting article and worthy of mention (Thanks Bearygood). You usually post interesting comments, but today, your comments (the song you wrote to someone else) are really off topic...
I just wanted to ask you...are you ok? If you need us, we are here...
Nikki

 
Old 05-01-2007, 02:29 PM   #25
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Re: Epstein-Barr/Mononucleosis

I'm sorry -- it was just my sense of the ironic coming out. Inappriopriately, I guess. I didn't mean to offend anyone.

 
Old 05-01-2007, 03:31 PM   #26
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Re: Epstein-Barr/Mononucleosis

NO OFFENSE TAKEN. I hope you werent offended either...I was actually worried about you. Seemed I read a few of your responses in a row, and then started to wonder what they meant...as long as you are okay..
thats all I wanted to hear.
Have a good night, Lisa. And, know that we care about you.
Nikki

 
Old 05-02-2007, 11:39 AM   #27
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Re: Epstein-Barr/Mononucleosis

I too had mono when I was 17. Actually that's how I spent my 17th birthday!

 
Old 05-13-2007, 08:13 AM   #28
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Re: Epstein-Barr/Mononucleosis

I saw this just now -- here it is in print on WedMD!

[url]http://www.webmd.com/multiple-sclerosis/news/20060410/epstein-barr-virus-may-trigger-ms[/url]

 
Old 05-13-2007, 09:39 AM   #29
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Re: Epstein-Barr/Mononucleosis

The very last sentence got me thinking: imagine a vaccine for EBV. If it is a key causative thing, we could imagine a world where MS is UNcommon.

 
Old 05-13-2007, 10:18 AM   #30
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Re: Epstein-Barr/Mononucleosis

Some people have posted that the presence of EBV antibodies were found in their blood work. I don't know if that's true in all cases where you've had EBV long ago but if that is the case, I wonder if also finding a way to deal with that might also be something someone out there is thinking about and researching!

One other thing -- I do know that my recent blood work showed that the white blood cell count was elevated. No surprise since that's what happens with infection or inflammation and we knew that my optic nerve was inflamed. Just wondering -- when any of you have had exacerbations, have you had blood work done and found that your count is elevated? I doubt if that's done as a matter of course but it would be interesting if anyone has had blood work done at any of these times and knows their results.

Last edited by Bearygood; 05-13-2007 at 10:33 AM.

 
Old 05-13-2007, 02:04 PM   #31
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Re: Epstein-Barr/Mononucleosis

My white count was elevated at the time I had my LP. (My neuro like to do LOTS of blood tests).

 
Old 05-27-2007, 07:46 PM   #32
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Re: Epstein-Barr/Mononucleosis

Hi,

I have R/R MS and was just tested for EBV and it is positive.

capp3736

 
Old 05-28-2007, 03:00 AM   #33
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Re: Epstein-Barr/Mononucleosis

When I first went to the GP about my memory loss and confusion my white cell count was high with no explaination. She had me come back and have it repeated and then put me on antibiotics. When I went back after finishing them 10 days later it was normal again.

 
Old 05-28-2007, 05:35 AM   #34
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Re: Epstein-Barr/Mononucleosis

As far as I know I have never had mono or EBV.
I also do not know about my WBC being elevated when in a exacerbation. I don't think my Dr does that routinely for that. GP does it once a year for well check,

Interesting thread
Thanks
laurie f

 
Old 05-28-2007, 08:36 PM   #35
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Re: Epstein-Barr/Mononucleosis

Quote:
Originally Posted by Bearygood View Post
For those on here who have gotten an MS diagnosis, have you ever had Mono or another Epstein-Barr type virus? I've seen a lot about a potential link between MS and EBV so I'm curious...
Hi Bearygood, :-)

I don't know if I had those or not. I was ill once when I was about five years old with a high fever and sick for a few days. Other than that I never had any of the usual childhood illnesses.
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Started Tysabri 6/04/07

 
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