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Old 04-26-2007, 06:31 PM   #1
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Bearygood HB User
Question Epstein-Barr/Mononucleosis

For those on here who have gotten an MS diagnosis, have you ever had Mono or another Epstein-Barr type virus? I've seen a lot about a potential link between MS and EBV so I'm curious...

 
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Old 04-27-2007, 06:44 AM   #2
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Re: Epstein-Barr/Mononucleosis

Hey Bearygood, there has been alot of talk for a very long time that MS may stem from a virus. Mono, Epstein Barr, etc are all auto-immune viruses with such similar fatigue issues as MS that they have been confused in dx over the years. My Neuro says there is no way one can cause the other...however, especially in the 80s many people were getting MS, and it wasnt being picked up on- so they were told they had Epstein Barr or CFS (Chronic Fatigue Symdrome) and nevr truly dx. Years later, they are back complaining that "Something has to be done" and docs are re-diagonising the disease as MS; therefore it really didnt stem from having an old virus as much as it was never dx properly to begin with.

I never had either...although in high school, when they THOUGHT I had mono from being soo tired, mono was ruled out by a blood test, no one ever gave me a definitive answer on what was wrong with me, and lots of supplements were started to give my body energy and pep. Turns out now they are finding out many of those same supplments actually HURT the immune system, causing things like MS to show up later in life....but still, no proof that one has to do with the other.
I know you are big on natural stuff. Just be careful. I was drinking a ton of Green Tea when I was diagnosed. My doctors swear that the green tea I was drinking stimulated my immune system into attack, thus my first attack and my dx....I also was taking some other supplements and was told to stop immediately. Just make sure you ask a health care provider before you take anything...other than Omega 3, for inflamation, my doc wants me on NOTHING. ANd, you know what, since thats all Ive been taking for the past few months, I feel better!
Nikki

 
Old 04-27-2007, 07:10 AM   #3
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Re: Epstein-Barr/Mononucleosis

Hi, Bearygood. I did have mono when I was 15. There was a thread last year where folks discussed this theory. Most of the people who replied had had mono - but that wasn't a scientific sample! It is interesting, though!

 
Old 04-27-2007, 09:25 AM   #4
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Re: Epstein-Barr/Mononucleosis

Yup, I find all this stuff very interesting. I had mono when I was about 22 and my lymph gland on the side of my neck never completely went down. Hardly noticable now but for many years after if I was sick it would swell up a little. The neurologist thinks my symptoms might have even started as a teenager -- this is all really hard to tell since I was just diagnosed. It's amazing to think of all these things I've had -- except for maybe 3 things, all my friends have had things that for me can now be attributed to MS. (Except they've never had ON and might not have brain lesions!) Anyway, Nik, you might be right -- it's kind of like which came first, the chicken or the egg? Anyway, don't know if any of you ever get a gut feeling -- this is certainly not based on ANYTHING scientific but I feel they're related; that somehow a similar virus has something to do with it. I am also hypothyroid -- diagnosed when I was in my early 30s and although it's hereditary (Hashimoto's) it IS autoimmune.

Re: supplements, if you believe (as I do) that things can help, it comes with the territory that you have to believe things can hurt. I mentioned this in the "natural" thread but my neuro warned me about taking things that stimulate the autoimmune system since that's the problem, ours are so good it attacks things it shouldn't! No echinacea, golden seal or astragalus for sure -- still researching other things that puport to enhance (as opposed to balance.) Woke up in the middle of the night (as has been the case for weeks now), turned on the radio and what was on? The news, reporting a new study that again confirms a link between the omega oils and brain/nerve function! There's also a lot of interesting information about the anti-inflamatory properties of tumeric out there. I've always been interested in this stuff and had a very good result with treating gallstones homeopathically. ( Still have my gallbladder and haven't had an attack for 9 years.) Having seen it work for me before, I have to at least try to approach it this way first. A big part of this is about personal choice -- but I AM big on knowing ALL possible options. Information is often the best weapon we have...

Last edited by Bearygood; 04-27-2007 at 09:46 AM. Reason: typo

 
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Old 04-27-2007, 09:47 AM   #5
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Re: Epstein-Barr/Mononucleosis

No but wife had scarlet fever, that supposedly damaged blood vessels. i heard that it also played into the immune system. any thoughts?

 
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