I've been diagnosed with recurring mono -- by blood tests -- although I do not know when I had it before. I've been having these symptoms on and off since last summer. Mostly the exhaustion. After googling, I started taking coconut oil capsules 4 in the am and 4 in the pm, and I've been building up on the vitamin c. Today I got up to 15,000 mg.
Has anyone tried these? Any tips for getting through this?
The following user gives a hug of support to SOE: RUFUS100 (04-26-2012)
Hello, I have been struggling since Aug of 2011 with mono and reoccurences. I have found that it takes lots of rest and patience. My doc recommended Ester C and Vitamin D3 to build my immunine system up. I am much better but stumble with fatigue a lot. I work 12 hour midnights at a hospital, where i got this in the first place i believe, so I am exposed to every germ around. I just try and rest a lot and eat right and found that works best. I wish you the best of luck and hang in there. We will make it!! Have a good day.
Rufus
The Following User Says Thank You to RUFUS100 For This Useful Post: SOE (04-24-2012)
Thanks, Rufus. I am taking mega doses of Vit C. Also D, B's and Coconut Oil. The C's and D's are a bit hard on my system, but I'll take it if it will get rid of this.
Hi soe,
i took 1 week off but should have taken 2-3 weeks off. Rest all you can that is the key. I still struggle at times with these 12 hour midnight shifts and all i do is stay home and rest when i am off. That is ok, i am 57 and need to slow down a little. Eat good and sounds like your taking a lot of vitamins to build that immunine system. I have talked to nurses that say it can take up to a year to get back to normal. So, we just have to hang in there. If i can answer anymore questions please post me a note. Have a good day and hang in there. We will make it!!!
Rufus
The Lysine was a mistake for me. It took me over a week to realize it was making me feel worse. I've been off work 3 weeks now -- supposed to go back Monday. On my 2nd day without the Lysine. I still don't feel well, but better without the Lysine.
Hi soe, good to hear from you. Sorry about the lysine. Just do what you feel better with. I know today i am having a bad day, tired, just not feeling well. I still get leg weakness from time to time. A common things with mono. A lot of times it depends on how much overtime i pick up at work. 12 hour midnights are not cool with mono. It has been 8 months for me now and everyone is different when they recover but i am 57 and it will take longer i guess. We need to hang in there and support each other. Please let me know how you are doing and take care. Try to take it easy when you go back to work monday. Have a good day, rufus
The following user gives a hug of support to RUFUS100: SOE (05-11-2012)
We are close in age. I didn't realize leg weakness was part of mono -- I just thought I was doing very poorly. Thanks for your encouragement. I'm worried about going back to work, I don't want to have a relapse. Have you not had any relapses? Are you still just recovering?
Hi soe, yes, i have had my ups and downs from overdoing but i work 12 hour midnights as an aide in a very busy hospital. I rest a lot and you need to do that. Just remember 1 step backwards and 2 steps forward. It does get better every time. I am still recovering but i am much better than before. Do not want to discourage you because it will get better. Eat good and rest and take those vitamins. I think a lot has to do with my work schedule but i can tell i don't have that extra kick like i used to have. Yes, muscle wekaness is part of mono some not all have that symptom. Everyone is different. Keep your chin up, all will be better. Please keep in touch. We will encourage each other!!!!! Don't worry, just know your limits and take it easy at first. Have a good day.
Rufus
The Following User Says Thank You to RUFUS100 For This Useful Post: SOE (05-12-2012)
Soe, how are you doing? Remember to keep your chin up, in time things will get better. We will be ready for the new york marathon soon!! Let me know how you are.
Rufus
You are very sweet to check on me. I'm soooo tired. Monday and Tuesday I just went home and went to bed right after work. I can see myself doing that the rest of the week, too. I don't know how you do it. Thanks for the encouragement. I need to work on thinking positively.
Hi soe,
just got up and headed out for 1 of 2 12 hour midnights. Oh boy, but we have to hang in there. Just rest as much as you can!! Eat good and take those vitamins and that virus will get out of our bodies in time. You have a good evening and let me know how you are doing. Keep your chin up.
Rufus
Hi Rufus, just checking in. I made it through my first week back at work, including a work dinner Thursday night. I went to bed right after my chores after coming home from work. I ran some errands today, and I'm trying to clean the house, and have one more load of laundry, but I have to keep sitting down to rest. I'm so tired!
How are you doing? What does 12 hour midnights mean? 12 am to 12 pm work shift?
Hi SOE,
So good to hear from you. I am so glad you made it through your first week. Your headed in the right direction. Just rest when you can and know you may have a bad day but remember the next time you will come back stronger. That is the way it works. Sounds like you did great your first week. Better than I did. Our 12 hour shifts are 7pm to 7am. I just changed jobs but will still be running a lot taking doctor orders off on 4 floors. Same 12 hour midnights but a better job. I just read a couple of articles last night on mono and lasting a long time. There are some cases apparently like mine that last a long time. Up to a year in some cases. The older you are the longer it lasts. I am much better though just the fatigue factor. It is so hard to catch up on rest with 12 hour shifts but we will make it SOE! Please keep in touch. You have fought a long tough battle and you will win!. Let me know how you are doing and have a great week next week. Let me know if you need anything. Have a wonderful weekend.
Rufus
The following user gives a hug of support to RUFUS100: SOE (05-19-2012)
Thanks Rufus. You are always so encouraging. It's really comforting to know someone going through the same thing. Congratulations on the better job! I hope you have a great week!
P.S., I have read the same thing -- that it could take up to a year. Ugh.
Last edited by SOE; 05-19-2012 at 06:55 PM.
The following user gives a hug of support to SOE: RUFUS100 (05-19-2012)
Hi SOE, How are you doing?? Happy thoughts coming your way and hope all is well. Keep your chin up and rest all you can. Let me know how you are doing when you can. Have a good weekend.
Rufus
Hi Rufus, I was hanging in there all week until today. I treated myself by going out to breakfast and had a waffle. I have felt horrible and exhausted ever since. I suspect it's all the sugar in the syrup making me feel so bad, but it has really caught me off guard. I can't wait to go home and crawl into bed. Have you had that problem with sugar?
Hi soe, no but you are probably correct about the sugar thing. I am off and just resting. Hot here in ohio next 3 days. Just rest this holiday weekend if you can. Rest is the best medicine right now. Remember, keep your chin up, things will get better. Let me know how you are doing.
Rufus
Recurring Mono 
