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Scared - ms?


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Old 11-26-2016, 04:53 AM   #1
Halfmay
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Scared - ms?

I am really nervous that I could have ms- 8!2' almost certain that I do have it.
Go back 6 years ago I had numbness in my face and arms and hands and just overall terrible feeling. I had joint pain and tingly feelings in my legs- I also had bad head and tightness. This lasted almost a year and then I guess slowly ENT away(I don't even remember how it went away of it was sudden or over time). But during that year it was a terrible year. I went to multipl doctors and no one could figure out what was wrong with me. I had a cat scan that was clear. I did go to a neurologist who did his exam and said I front have Ms but I also got an MRI of the brain and cervical spine that was clear. The neurologist almost like rolled his eyes when he saw me. My doctor just said I had chronic fatigue syndrome.

Fast forward to now. I had a baby 5 months ago and as of two months ago indtart d feeling like a vibration feeling through my body- for like 1 month and it was super intense and dizziness. Now all of those symptoms I had six years ago are back with a vengeance. When I wake up my head hands and Dave ar numb. I am extremely dizzy and have that vibration feeling. I am also extremely anxious.

I have moved around a lot and we just moved to another state and are getting our insurance on December first and I am going to see someone that day. I can't get the insurance numbers yet and a neurologist won't see me until I have them so it could be another month or so. I can't stand feeling this way and I have to take care of my five month old. It makes me so upset.
I also have wake and cold sensations on my body. I did recently get blood work done and everything came back normal. They tested my vitamin levels

I am so scared and my hands are tied because of insurance. Would th MRI come out normal and then now it could possibly come out positive? I have read online it can. I feel so shaky all of the time. I know my n eves have something to do with t but I wake up feeling this way. All I want to do is cwre for my first daughter and now this is consuming me.

 
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Old 11-26-2016, 06:58 AM   #2
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Re: Scared - ms?

Hello Halfmay,

It sounds like you have been under a lot of stress lately.

Quote:
I am also extremely anxious.
Did you know being anxious can cause physical symptoms such as the ones you are having? Stress/anxiety/anxiousness can cause body wide physical symptoms and is one of the many conditions that mimic MS. It is very common for those with stress/anxiety/anxiousness to have physical symptoms and assume they have MS.

It would be very beneficial for you to seek out the help of a Mental Health Professional. The majority of the time symptoms will improve once the anxiety is treated.

Quote:
I did go to a neurologist who did his exam and said I front have Ms but I also got an MRI of the brain and cervical spine that was clear.
You were told you did not have MS because your Neurological exam was normal as were your MRIs. If someone has MS the Neurological exam will be abnormal and show deficits.

Quote:
Would th MRI come out normal and then now it could possibly come out positive?
That is always possible. But again, if the Neurological exam is normal it's not going to be Multiple Sclerosis. I would suggest seeing a Primary Care Physician (PCP) and explain your symptoms. A PCP can do a Neurological exam and if abnormal would refer you to a Neurologist. That was how my journey started, I was having symptoms that were concerning, saw my PCP and after his exam I was handed an referral to a Neurologist.

There are many other conditions, medication side effects, vitamin/mineral deficiencies and mental health issues that mimic symptoms of MS. Part of the diagnostic criteria for MS is to rule out all of those other possibilities. There is not a single symptom that is exclusive to MS.
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Old 11-26-2016, 09:17 PM   #3
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Re: Scared - ms?

Halfway,

Welcome.

Anxiety and stress can succinctly mimic MS. Add to this the new motherhood and the responsibilities thereof and your plate is not only full, it is spilling over.

You have shared that you are anxious. An MS Specialist would probably ask that your anxiety be under control in order to eliminate any MS mimicry.

About 5% of MSers can present initially without any lesions. MS Symptoms are usually those which persist for 24+ hours. Journal your symptoms and record the duration of your symptoms. Also note the life events presenting prior to the onset. Anxiety is a major MS mimicry. While I am not telling you that MS could be dismissed, I would tell you that given your information, the recent birth, and your feelings, anxiety would appear to rank high on possibilities and would need to be considered. Post delivery your body will be shutting down certain hormone production and other changes are happening, these can be a possible cause too.

Thank you for sharing.
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Old 11-27-2016, 03:08 PM   #4
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Re: Scared - ms?

There are many, many different reasons why you are having these symptoms you need to be examined by a medical Dr. who can then advise you a better way to get things done. I don't mean to discourage you being afraid of having something is not good. Get the facts when you know what is what then start learning about it & how to deal with it. God bless & keep you

 
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Old 11-27-2016, 03:43 PM   #5
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Re: Scared - ms?

Quote:
Originally Posted by Halfmay View Post
I am really nervous that I could have ms- 8!2' almost certain that I do have it.
Go back 6 years ago I had numbness in my face and arms and hands and just overall terrible feeling. I had joint pain and tingly feelings in my legs- I also had bad head and tightness. This lasted almost a year and then I guess slowly ENT away(I don't even remember how it went away of it was sudden or over time). But during that year it was a terrible year. I went to multipl doctors and no one could figure out what was wrong with me. I had a cat scan that was clear. I did go to a neurologist who did his exam and said I front have Ms but I also got an MRI of the brain and cervical spine that was clear. The neurologist almost like rolled his eyes when he saw me. My doctor just said I had chronic fatigue syndrome.

Fast forward to now. I had a baby 5 months ago and as of two months ago indtart d feeling like a vibration feeling through my body- for like 1 month and it was super intense and dizziness. Now all of those symptoms I had six years ago are back with a vengeance. When I wake up my head hands and Dave ar numb. I am extremely dizzy and have that vibration feeling. I am also extremely anxious.

I have moved around a lot and we just moved to another state and are getting our insurance on December first and I am going to see someone that day. I can't get the insurance numbers yet and a neurologist won't see me until I have them so it could be another month or so. I can't stand feeling this way and I have to take care of my five month old. It makes me so upset.
I also have wake and cold sensations on my body. I did recently get blood work done and everything came back normal. They tested my vitamin levels

I am so scared and my hands are tied because of insurance. Would th MRI come out normal and then now it could possibly come out positive? I have read online it can. I feel so shaky all of the time. I know my n eves have something to do with t but I wake up feeling this way. All I want to do is cwre for my first daughter and now this is consuming me.
I'm back in the unknown too, and waiting to find out if I have MS, its back on the table again. I'm here too if you would like to talk to someone, as I'm scared too xx

 
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Old 11-27-2016, 07:27 PM   #6
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Smile Re: Scared - ms?

I know it's scary I have prayed for you to have courage & strength at this time. The unknown is very scary & some times it does help to talk about your fears & that is one of the purposes of the boards so talk all you want we are here to listen & offer advice I speak for myself but I'm sure all the others feel much the same or they wouldn't be here. I send my love & prayers to you

 
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Old 12-08-2016, 04:29 AM   #7
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Re: Scared - ms?

I just wanted to update. I saw my pcp and she ordeeed a n mei of the brain. I wanted an open MRI because I am claustrophobic. It came back normal but now I'm looking online and reading that open mris are not accurate for diagnosing ms. I spent $600 out of pocket to get that done .
This is really frustrating. I am still really nervous as I wake up and both my arms and face are completely numb every morning. I just want to know what is wrong with me. I can't take this vibration feeling through my body, it's really scary.
My pcp mentioned that I could have fibromyalgia because this hasn't presented as MS would. I can't stop obsessing over this because the symptoms are just freaking me out.
Thank you all for all of your responses. I think anxiety has to do with it but I don't believe it could be causing these symptoms.

 
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Old 12-08-2016, 03:33 PM   #8
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Re: Scared - ms?

I am concerned that the doctor you saw allowed you to have an open MRI. As you stated, they are not accurate in picking up lesions for MS.

Fibro does sound like a possibility. People who have Fibro experience pain and similar symptoms, but the presentation is completely different.

If you think you can handle an MRI in a few months, you might want to have it repeated in a regular machine. Ask them to give you a xanax or something to relax you prior to the test and it will help you deal with the claustrophobia.

I hope you start feeling better soon.

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Old 12-08-2016, 04:11 PM   #9
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Re: Scared - ms?

Quote:
Originally Posted by Halfmay View Post
I can't stop obsessing over this because the symptoms are just freaking me out.

I think anxiety has to do with it but I don't believe it could be causing these symptoms.
Anxiety CAN cause the symptoms you are having. Your obsessing is being caused by your anxiety. A very easy way to prove/disprove your symptoms are caused by anxiety is to take antianxiety medications. Depending on the medication you would notice a decrease and/or resolution to your symptoms within a few weeks when it's caused by anxiety.

Please speak to your Primary Care Physician about treatment for anxiety and/or referral to a Mental Health Professional.
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Last edited by Snoopy61; 12-08-2016 at 04:13 PM.

 
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Old 12-08-2016, 08:58 PM   #10
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Re: Scared - ms?

Halfmay

An open MRI is not the best tool for assisting in a diagnosis of MS. If you are claustrophobic, you can use sedation for an MRI.

As you shared, FIbro can be an MS mimicry. The diagnosis of fibro is unfortunately used liberally as a "catch all". You need to make sure your diagnosis is objective with tangible data. Anxiety can well indeed play a role as a mimicry or as a subset of MS.

An MS Specialist would be the best doctor to see if MS is a possibility.
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Old 12-08-2016, 11:41 PM   #11
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Re: Scared - ms?

I have an appointment with a psychiatrist on 12-16.
I also have an appointment with a neurologist on 12-20.
My pcp said I passed her neuro evaluation and have no deficits but we still have no explanation for whT is going on with me.
I understand anxiety could be an issue(although I am
Not convinced it's causing these symptoms). Hopefully the psychiatrist can help with this.
I did however call the neurologist who I am gong to see and spoke with the nurse. She said that they use the open MRI often to send their patients there and have been able to make mS diagnoses based of the findings in the open MRI. She said if anything it would have showed up abnormal.

 
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Old 12-09-2016, 07:35 AM   #12
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Re: Scared - ms?

Quote:
Originally Posted by Halfmay View Post
I have an appointment with a psychiatrist on 12-16.
I know it's hard to believe anxiety could cause physical symptoms, this is due to the subconscious and not something you are deliberately doing.

I'm not a Dr. and I could be completely wrong but I am glad you are willing to at least find out if there is any correlation between your symptoms and anxiousness.

Quote:
My pcp said I passed her neuro evaluation and have no deficits
That's really good Halfmay. It really is impossible to have MS and pass a Neurological evaluation/exam. Everyone with MS has some deficits. The Neurologist will do an evaluation and might order more testing. It's not uncommon for a Neurologist to order bloodwork that requires 10+ vials of blood.

It is possible for an open MRI to show lesions related to MS. Open MRIs are not the preferred MRI but it's also not useless. If that MRI had shown anything that was questionable you would have more than likely been referred to a closed MRI machine.

I wish you well in both of your upcoming appointments.
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Old 12-09-2016, 02:02 PM   #13
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Re: Scared - ms?

Get your b12, b1 and folate levels tested. Deficiencies with these vitamins can produce symptoms like yours. Doctors miss these basic tests all the time. Good luck and hope you start feeling better.

 
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Old 12-09-2016, 08:49 PM   #14
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Re: Scared - ms?

Halfmay

The Psychiatrist is a great direction in treatment and evaluations. They can work with the neurologist as part of your team. Anxiety ranks quite high on the list of MS mimicries. If you have anxiety, it is important to determine if it is a mimicry or related to actual MS.

Anxiety can debilitate just like MS. A proper medical evaluation will benefit you immensely You are definitely doing the right things.
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Old 12-10-2016, 10:10 AM   #15
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Re: Scared - ms?

If you don't think it is presenting like fibro does that mean you think it's presenting like MS?

 
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