Copaxone reactions very severe - Multiple Sclerosis Message Board

fayemorgan · 01-13-2004, 09:11 PM

I have had increasingly severe reactions to Copaxone. I have been using it for almost 3 years. In the last 6 months, my reactions seem to occur when I have a lot of bleeding at the injection site. Recently, my flushing has been severe and I experience a throbbing headache, shortness of breath, my lips feel very swollen and hot, nausea, vomiting. Once those symptons subside, I then experience extreme cold with contractions similar to shivers but very deep inside my body. I had these reactions last night. In November I had a worse reaction and ended up at the hospital because my husband thought I was in shock. The EMT's arrived and I had a fever and recommended that I go to the hospital because that indicates an infection.

Has ANYONE ever experienced this? I was diagnosed about 4 years ago, no disability, etc. in fact unless you knew about the MS you would never know I had it.

I'm puzzled and scared. I don't want to give up a medication that would prevent future relapses and I haven't had a relapse since starting on the drug. Any advise will be appreciated. Thanks!

Faye Morgan
Orlando FL

Mom_of_two · 01-14-2004, 10:25 AM

Hi Faye. I'm sorry to hear about your reactions to Copaxone. So are you saying they basically just started in the last several months? Have you mentioned this to your doctor? If so, what did he/she say? Maybe you should switch over to another treatment. I, myself, have been on Copaxone since October of last year, and no problems at all. If you haven't seen your doctor about this yet, then do so ASAP. I wish you lots of luck! Please let us know how you are doing. God bless!

fayemorgan · 01-14-2004, 08:09 PM

I only have reactions occasionally - about once every month or two but they seem to be getting worse. I have an appt on the 26th with my neurologist and will discuss at that time. Thanks for your reply. I appreciate the support.
Faye

dodgegirl · 02-07-2004, 11:43 PM

undefinedDear faye,dear faye, i'm new to this board i read your reactions to copaxone and i myself have been getting reactions from it,i to have shivers and mostly body aches but other times i get sick i'm not sure what is going on i told my doctor and he said it was normal.but i'm not to sure i hope everything gets better for you.

Quote:

Originally Posted by fayemorgan

I have had increasingly severe reactions to Copaxone. I have been using it for almost 3 years. In the last 6 months, my reactions seem to occur when I have a lot of bleeding at the injection site. Recently, my flushing has been severe and I experience a throbbing headache, shortness of breath, my lips feel very swollen and hot, nausea, vomiting. Once those symptons subside, I then experience extreme cold with contractions similar to shivers but very deep inside my body. I had these reactions last night. In November I had a worse reaction and ended up at the hospital because my husband thought I was in shock. The EMT's arrived and I had a fever and recommended that I go to the hospital because that indicates an infection.

Has ANYONE ever experienced this? I was diagnosed about 4 years ago, no disability, etc. in fact unless you knew about the MS you would never know I had it.

I'm puzzled and scared. I don't want to give up a medication that would prevent future relapses and I haven't had a relapse since starting on the drug. Any advise will be appreciated. Thanks!

Faye Morgan
Orlando FL