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Old 02-06-2004, 07:25 PM   #1
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SandyGirl HB User
Unhappy my symptoms... your help

Hi, I have already posted on the Lupus board, but as some of the symptoms seem to be similar, I am going to post here too. I guess my symptoms started about 2 years ago, but I never really took much notice, it was pins & needles in my feet & legs. I have a bad habit of sitting on my feet at work like a big kid, or when I am trying to act like an adult I cross my legs... Well my feet always fall asleep, my co workers would see me get up and say "feet asleep again?" thats how obvious it was, but anyway, I shluffed it off to the way I sit, or the fashionably uncomfortable shoes I wear! This past summer, my feet really bothered me for a while, they would get really numb at times, but again I blamed my shoes! Now to the present.. For the past 2 1/2 months I have been feeling just not well, I have had swollen lymph nodes in my neck & behind my ear, I went to my GP who gae me antibiotics, didn't work, went to an ENT and he told me to come back in 2 weeks if they were still there, went back 2 weeks later and they were still there, he was not very concerned, but he knew I was, so he sent me for a CT scan which came back normal. Now in past couple of months I have notice tingles in my arms too, I wake up and my arms would be asleep! but I have a habit of sleeping with my hands over my head sometimes (don't know why, I don't fall asleep that way) so I figured it was how I slept that caused it. But now i wake up with a foot or arm asleep, I will be sitting normally & they fall asleep, it is constant now, but now i am getting tingles in my face, around my mouth even my lips! I also had a muscle spasm in my lip this week which lasted half the day. Right now as I type this I am having the tingles in my right foot and my mouth, I have been very foggy headed, and dizzy, I bump into everything, and it is hard to focus sometimes when I am looking at my computer, I have to rub my eyes. The tingles are worse now, they feel like real needles now, like they are breaking the skin, they hurt, and I get the feeling like I can't grip, no strength in my left hand, I can't even use a fork properly. This has come on so bad so quick & I am so so scared. I was so sure it was Lupus, that I went to my GP and told him my thoughts, and asked for all the blood work for Lupus, so even though he thinks I am a bit of a nut, he took it, I never had told him about the tingles & numbness before this visit because I never thought of a connection, he had just done a CBC on me 2 weeks before & all was normal, so when I explained that I now have this tingling in my fingers, hands, arms from the shoulder down, both legs & feet, and my face, he does not know what to make of me, but it has really been happening so fast! Anyway, I get my results back on Monday, would an ANA come out positive for MS as well?
I am sorry this is so long, thanks for being patient, it anyone could please tell me if this sounds like MS I would appreciate it, Does anyone else have the tingling & numbness constantly? I am scared this is permanent~!

 
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Old 02-06-2004, 08:39 PM   #2
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jen0777 HB User
Re: my symptoms... your help

hi, i have not been diagnosed yet, but i've been seeing a neurologist for 4 months now, going through testing. they are suspecting ms. one of my main symptoms are my arms, legs, hands and feet falling asleep. i too sit on my feet and with my legs crossed frequently so i never thought anything of it, until now they fall asleep when i'm not even sitting on them. i also wake up in the middle of the night with body parts alseep (especially my left hand, sometimes i can't feel it). i get frequent tingling all over that comes and goes, EXTREME fatigue, and bad aching pains in my legs (its like a deep ache down to my bones) and my legs get stiff when i wake in the morning or sit for a while and i walk like frankenstein, i have difficulty walking for a long time. do you have any other symptoms? as far as the ana it doesn't show any info about ms. mri, lumbar punctures, evoked potentials and nerve conduction tests are some of the standard tests to look for ms. hope i helped a little. oh and also, i've been going through testing for about 4 months now and still don't have a definitive dx yet, it can be a long process so try and hang in there, its very frustrating. good luck! -jen

 
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Old 02-06-2004, 10:22 PM   #3
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SandyGirl HB User
Re: my symptoms... your help

Hi Jen. Thank you for answering me! My main symptom is the hands & feet, right now my left hand is practically dead, it is really weird how this happend all of a sudden everywhere! when did you realize there was a problem? Mine is so costant that I feel like there has to be some kind of damage.... I hope that is not the case, there is never a moment ever when something is not "asleep". I also have been feeling brain fogged, my vision gets blurry, swollen hands, weight loss, twitching. My hand is so bad right now that I want to go to the ER!!!! But what would they say? I look ok. What are your symptoms? are they as constant as mine?
-Sandy

 
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Old 02-06-2004, 10:31 PM   #4
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bgdmoore HB User
Re: my symptoms... your help

SandyGirl
If you have lupus your ana test will be postive but in Ms it is not postive. In Ms the numbness and tingling is a common thing . Ask to go to a neurologist. It can be a long time to get a dx or it can be quick. It just depends. Hope you luck. It took me almost 2 years and numerous of doctors before I got my dx in Oct 03 of MS. Just hang in there

 
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Old 02-06-2004, 10:59 PM   #5
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SandyGirl HB User
Re: my symptoms... your help

does anyone have this numbness constantly like me? I am about to go to the ER!! I have dead arm and dead legs!!! I can barely type.

 
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