I'm anxious to hear how the testing went and how you are doing. This all is very stressful.......not only all of the "diagnosing", but the wondering, the worrying and THE SYMPTOMS! Learning to live with the unknown is very difficult, but not imposible. The validity of learning relaxation techniques cannot be stressed enough. They have been a big help for me.
Right now I am in the midst of one of the worst flare ups I have had in several years. Lots of neuropathic pain all over my body, weakness in my arms, legs, hands, trouble with speech, vision........but the worst part is that feeling of my skin being on fire. I can hardly stand for anything to touch it. I have started a high dose prednisone pulse and taper and am taking ever increasing doses of neurontin in hopes that it will help. If it doesn't, I guess then it is back to the IV Solu-Medrol.
If my cardiac echo and other tests come back OK I will have another dose of Novantrone. Even though the last time landed me in the hosp with a white count of near zero and a severe fungal kidney infection, it DID help. My flare-ups have been at an all time low and the residuals almost undetectable. So, I'm in for an interesting next few wks. I will keep you posted......Please send some good thoughts my way and a prayer or two wouldn't hurt either
Love,
Penny
Will feeling nervous make symptoms worse? 
Hopefully this message will kick it into gear.
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