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Old 12-02-2004, 04:55 PM   #1
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tammy1970 HB User
Angry input needed............plz

i went for my mri today, and took my 6 yr old mri's with me......i a had cervial and brain with and without contrast...... the technician as shes infusing the dye, says what was the results of u'r last mri in 98........ i said nothing i had dizziness and blurred vision, and lesions, but couldnt say true ms cause i had no motor problems....... just to let it go and see what happens........... so as i posted before i had shoulder pain on certain movement dr. sends me for a cervical mri, 2 working days later dr. calls and says now with contrast and a brain........ ok so back to today...... so then she says to me is he looking for something other then ms.... i said yeah a pinched nerve i think....... she said oh........ i told her i was tested for lymes in 98 and was negative..... i said did u see lesions, and of course she ignored me... so i asked if the dr. was going to tell me if he saw lesions, she said u'r dr. will have the results monday......... omg i cant take it..... then i asked the final girl, she said if it was something major, u would/will be contacted...... i said great my dr. is on vacation till monday she said then he'll have them on monday.......... what im thinnking is if this a good or bad sign, that yeah they did see something but needed to know more about me....... or did they see nothing and wonder what they were looking for?????? i hate when people say something and cut u off or dont finish or answer u......... just a nervous wreck........ im not asking for u'r diagnosis but anyone experience something like this? my symptoms right now...... are still a hurtful shoulder on certain moves, on and off headache with eye weirdness.......... and when i bend my head to my chin i get a shock feeling down my back....... any help or guidance will be a big help ........... 4 day wait, till i talk to the dr, dont think i wont be up at the crack of dawn calling till hes in............ lol the waiting is horrible.............
thanks so much

 
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Old 12-02-2004, 09:54 PM   #2
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Join Date: Nov 2004
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tiresome HB User
Re: input needed............plz

Tammy, playing the waiting game is hard. I am having to wait two more weeks to get in to see a MS Specialist to have test done to see if I have MS. I have blurry vision, leg pain, weakness in arm, fatigue, and dizziness. I have had a cervical fusion of C5-6 ten years ago, it didn't help, I still have problems with my shoulder. At the time the neuro said my disc wasn't protruding enough to cause all the problems I was having, perhaps it was because it wasn't the disc causing my problems? Guess I will never know for sure.
I am surprized the doc didn't do more for you since lesions were present and you had dizziness and blurred vision. I would think he would want to stop the disease from progressing. That is another thing that is hard to take, trying to get the doc's to understand how frightening all this is to us and that waitng makes it worse, and that we feel awful and need help now not whenever they get around to it. My primary doc says this guy is worth the wait, I sure hope so.
My shoulder makes a popping noise when I walk but thankfully does not hurt all the time. I also get a jolt when I move my head wrong, but it goes up my head. Be sure to start a journal, if you haven' t already, of all your symptoms and how you feel each day. It will help you when you go into see your doctor to let him see how the symptoms are affecting you. I also keep track of my meds in my journal. So I can remember when, how much, what changes and so forth. My doctor says she finds my journal very helpful. Hang in there and try to stay calm!!!!

 
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