anyone? - Multiple Sclerosis Message Board

lyn25 · 12-03-2004, 06:13 PM

Im just wondering if anyone here experiences burning toes? I get this more and more often. i also get muscle twitches all over my body, but most days i get in my left calve total vibration like the muscle is going mental and what i can describe as a deep knawing pain, like its coming from the bone. Its like toothache except in the leg if that makes sense. Ive had a head mri which was clear. bloodwork was fine. also saw a neuro that asked lots of questions like " did i wet myself" no i dont. Ive always thought ive had ms. Im not asking any of you if i have. I dont want to know if i had. i guess i dunno what im asking here. Its just i read on a docs page that burning toes can be a sign of diabetes, or a CNS disorder. Im scared. I dont have diabetes. I have quite a few other symptoms that i wont go into.

Lyn x

lyn25 · 12-03-2004, 06:18 PM

ive had this for 2 yrs i forgot to mention. Do any of you think i should ask for a neck mri? Ive just lost all faith in the docs. even the neuro said its anxiety... yeah, waking with 2 numb hands is anxiety! I never feel refreshed after sleep either. Takes 2 hrs for me to come to. Sorry to go on. I may not have toilet accidents or blurred vision, but i got strange neurological disorders going on. Thanks in advance

anseay · 12-05-2004, 07:46 PM

Hello lyn25
The best advice I can give you is start a daily diary of your symptoms. Word of advice whats going on with your toes and legs has nothing to do with your neck. I'm saying this because after $48,000.00 c-5 disc fusion the doctor that did the surgury didn't tell me until afterwords that the problems with my legs had nothing to do with my neck. I'm in an office full of orthopedic doctors and this doctor could not refer me over to another one to check out my legs. As for the leckage in the urine, it can also go the other way to where you can't make your urine stream.I'm looking at learning to use a cathator. Are you going to be like me and watch your bady fall apart and have doctors that won't listen to you. Don't want to know. What ever is going on you've got to know at one point because it will eat at you. Running away won't help. Just keep a diary, that way what ever is going on may lead to you getting the proper treatment. As you start writing things down like what you were doing when the toes went numb, the leg musscelss twitching, you'll start to come up with questions for them. By all means if your starting to have doubts in your doctors ask them straight out is my being in your office a waste of your time and my money. The squeeky wheel gets the grease. Has you had your gp run a NMR LipoProlile Report on you yet? Chin up and hang in there

tiresome · 12-05-2004, 08:06 PM

Anseay is right, it is important to keep a diary of your symptoms. I do and I take it with me to the doctors, it helps me because I have trouble with my memory. I also get a gnawing pain in my shins. I think your discription of a tooth ache is pretty acurate. I get that same pain in my chin and collar bones at times too. It feels like it is right in the very bone.
I also jump back and forth from wanting to know and being scared, I think that it is only natural because we know it is something but don't want it to be something that cannot be cured. My sister told me it sounded like I wanted it to be MS, I told her that I just want to know that I am not crazy, my GP says I'm not. Just remember that they have come pretty far in MS research and the new meds are helping to keep people from getting worse. Keep a positive attitude and hang in there.

anseay · 12-05-2004, 08:31 PM

I forgot to tell you you might want to request an mri of the C & L spine to rule out any chance of a pinched nerve. c-spine for arms and hands, L- spine for the hips & legs. If it is (what you don't want to hear) they are going to want one for a base line to report the progress. There you have two reasons to request the test. If you don't mind me asking what are your other symptoms? Maybe you'll just get lucky and need to reajust the waist line on your pants. As for the numbness in the hands, well for a year I drove around with my left arm out the window like a third antina. I'm trying to leave you with some humor and good toughts. Think positive!