I wrote on this board over a year ago wondering if I had MS. Since then I've had 3 MRI's, 2 EEGs, blood work, and an evoked potential. They found a white area on the left side of the brain over the speech area and my neurologist is calling it a "glioma something" (forget exactly what it's called). I saw a neurosurgeon who pronounced it a "lesion". Other doctors say lesion/tumour is the same thing. My neurologist declares I do not have MS (he is an MS specialist) since there is only 1 spot and nothing else has shown up on my other tests. He is pressuring me to take anti-seizure medication (Trileptal) because my first eeg showed some slight seizure activity. I haven't taken it yet; the side effects sounded totally horrible and the neurosurgeon thought that was a strange idea. My symptoms vary from painful to faint from day to day depending on a whole variety of things, like the weather to my diet. Does this sound like MS? I don't seem to have those attacks I've read about. My symptoms are great fatigue, digestive problems, pain on one side of my head and behind the left eye, numbness/weakness on the right side of my body, memory recall problems, arthritis type aches in the large joints and hands/feet, shooting pains in my legs....Often when I've tried to exercise I have to nap afterwards or I can get those shooting pains in arms or legs. Also I read about a "hot bath test" to see if the neurological symptoms got worse you apparently had MS. Is this an old wives tale? Anyway I would love to hear any opinions since I'm feeling particularly down tonight(not feeling good at all). Smudge
If your doctor isn't addressing the white patch in your brain, I would be a bit concerned. You need to have a spinal tap to see what that is about. A spinal tap can tell any and everything. xoxxoxo Good Luck!
U need a new doctor!!! It isnt uncommon, too travel for a long time, intill u find the right doctor!!! I was told about my MS, 3 yrs ago! I had MS symptoms for over 15 yrs!!U are still in the LIMBO stage, kind of hanging! The truth is, alot of doctors/neuro's, dont run out of their way to finally inform U about the ms- And I must say, your syptoms, are simalar to mine! If I was to give any advice here, is that I would ask for a spinal tap.......... ! And also, I have SO many people now with MS, in my life, and everybody has a different thing happening! I know, one girl, who MS has taken its toll, she is now needing a wheelchair, BUT, nothing has shown up on any test, but she has a good neuro, who has dxéd her, with no clinical backup...!
Good luck......................and while U are waiting, here in Australia, diet is a big thing........................become a fish eating vegan.........!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!