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Old 12-21-2004, 05:53 PM   #1
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Join Date: Dec 2004
Posts: 23
tattoo31791 HB User
Newly DX

I went to the neuro today and got the news. This was a second opinion (I just did not feel comfortable with the first doctor). He prescripted Betaseron and set me up with MS Pathways. A nurse called me from there and is going to send me the starter kit and send a nurse to come to the house and show me how to use everything. Is anyone else on Betaseron? Does anyone else use the MS Pathway system or had any dealings with them?

Merry Christmas to everyone!!!!!!

 
Old 12-22-2004, 01:13 AM   #2
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Location: brisbane australia
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mousemau HB User
Re: Newly DX

hi there i am on betaseron which is a injection i give myself every 2nd day. i was dx last year.....i have my injections at night as for about the first week i had flu like symptoms and i took 2 ibeprofen tabs before the injection by the morning i was fine .........i don't get any symptoms now ...so the flu symptoms don't last .....
good luck .....and if you have any questions i'm sure someone here can help as we are all going through the same type of things
i am in australia and haven't heard of the pathway you spoke of

Last edited by mousemau; 12-22-2004 at 01:14 AM.

 
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Old 12-22-2004, 02:48 AM   #3
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Join Date: Dec 2004
Posts: 10
ladydi1953 HB User
Re: Newly DX

i have been through two different meds and have finally settled on the once a week shot Avonex....i have had no symptoms at all from the med and my leisions have stopped at the same number i have had no for two years....i feel pretty good except for the biting itching sensation in my arms......di

 
Old 12-23-2004, 02:53 PM   #4
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Join Date: Apr 2004
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Natatude HB User
Re: Newly DX

i am on betaseron,,, i have been on it for 3 months now,, and i deal thru MS Pathways, they are very nice and there anytime u need them! the nurse called me once every 2 weeks at first and now she calls once a month to check on me,, and if i have any questions i can feel free to call them which i have a couple times, and they have been very helpful! i take my shot at 2pm in the afternoon cause i can not mix and load the shot myself my husband has to do it for me,, and he works from 3pm till 2am 7 days a week,, so we do it at 2pm an hour before he leaves for work,, i have tried taking the shot twice without taking ibuproferon and ended up getting high fevers both times,,, other than that i amd ealing ok with it,,, the only hassle is,, not being able to load and mix the shot myself.

 
Old 12-27-2004, 06:26 PM   #5
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tattoo31791 HB User
Re: Newly DX

thanks everyone. Due to the Holidays, I just got everyting squared away. I have decided to use MS Pathways and the US Bio Services for the first few months. I just feel that it will be easier if I have questions in the beginning. I have a great Rx here and He is a great friend of the family. He told me to use them as they offer so many other services that would be benefical in the beginning.

Thanks for the post!!!!!

 
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