It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Multiple Sclerosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 12-28-2004, 10:41 AM   #1
Join Date: Dec 2004
Posts: 3
DyessNative HB User
Question Is This What To Expect? Frustrating & Depressing

I am new to this forum, but not new to a lot of what I am reading. I have for 18 months now seen a Neurologist and I have had 2 MRIs, both have shown no abnormalities. I have had very weak legs with multiple spells (4 or so) during this time that made it almost impossible to walk, after each time I would eventually recover but continued to keep the jello type weak legs. Last go around about 2 weeks ago I developed a very weak right hand. I have severe migraines, at times 2 a week, other times only 4 or 5 a month. They usually last 4 hours to a couple of days. I have very little pain (outside the migraines) but lots of tremors and pins and needles (leg, hand) and unbelievable fatigue at times that seems to last for days not hours. I have the drooping foot on the right leg and ever so often (1 to 2 percent of the time) my right leg just falls out from under me and then comes immediately back (no pain). I have had multiple blood test over time and show a slight ANA elevation each time but nothing drastic. I have other issues with reflexes and walking the Neuro noticed. As of now all that is said is it could be MS, Lupus or something else. The next thing is to schedule a Spinal Tap (not sure about that one)... and meet again in January with the Neuro. The questions are: Does this sound like MS, Does it take this long (over 2 years with GP and Neuro so far). I feel like I loose it at times, fatigue that stops me in my tracks, weak legs that keep me limited and no Dx from the doctor - it can be quite depressing. Any thoughts or testimonies would be greatly appreciated.

Sponsors Lightbulb
Old 12-28-2004, 12:36 PM   #2
Senior Veteran
Join Date: Jul 2004
Posts: 607
sunshine149 HB User
Re: Is This What To Expect? Frustrating & Depressing

It sounds like all the right tests are being done. I have heard from many people that it isn't unusal to wait many years for a diagnosis. I was lucky that I was diagnosed right away although my MRI scans were clean at first. It was about 1.5 years after a major flare-up (and diagnosis) that lesions showed on my brain MRI.

I'm sorry to hear about your illness. Mobility and fatigue issues are depressing. Be sure to be talking to mental health care professional as well. I waited 6 years after my diagnosis to talk to a professional, I'm so glad I did, but I wished I had gone sooner...

Old 12-28-2004, 05:01 PM   #3
Join Date: Dec 2004
Posts: 3
DyessNative HB User
Re: Is This What To Expect? Frustrating & Depressing

Thanks for the quick reply, emotionally it is up and down. How long have you been dx with MS? If you don't mind me asking what did the doctor use as conclusive. It seems like without the MRI showing anything that I will not be dx. I think once we have a firm dx of what it is and if it is chronic (can not be fixed with surgery or medicine) I am sure I will get professional council and support, probably for the whole family.
Thanks again!

Old 12-29-2004, 08:11 AM   #4
Senior Veteran
Join Date: Jul 2004
Posts: 607
sunshine149 HB User
Re: Is This What To Expect? Frustrating & Depressing

I was diagnosed 7 years ago. I came away from the hospital (MAJOR flare-up) with a MS Probable diagnosis. I was lucky in that the neurologist on call when I was hospitalized was an MS Specialist. Even so, there was a bit of a disagreement among the doctors and I was part of team consultation at the hospital. Their confusion was that I am also a Type I Diabetic, so some of the docs were convinced that it was the Diabetes that was acting up in some weird way. The doctor based the diagnosis on the nature of the flare-up: vision loss in one eye (Optical Neuritis). gait problems (one leg buckling) and numbness in my legs and half of my face. ON is very typical of MS, so coupled with the mobility issues, that's how I got the MS Probable Dx.

It wasn't until I showed lesions that I was MS Definite. Actually, I'm not sure that anyone ever gets an MS Definite Dx. the doctor said to me, "there should be no illusions that this isn't MS." That was a hard day.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
67 & and depressed............. BECKYJEAN Aging Issues 23 02-27-2007 03:16 PM
What the bleep is wrong with these surgeons? SKZ Spinal Cord Disorders 5 02-15-2007 04:35 PM
Diagnosed bipolar and now dont know what to expect *Lai* Bipolar Disorder 13 05-23-2006 03:40 PM
new PM doc--what to expect mrscoop Pain Management 10 03-31-2006 08:52 PM
Going to the doc for the first time re: depression--what to expect? Kevin72 Depression 4 05-06-2004 10:08 AM

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Join Our Newsletter

Stay healthy through tips curated by our health experts.


There was a problem adding your email Try again

Thank You

Your email has been added


MSJayhawk (1009), MSNik (526), Snoopy61 (58), Whimpurr (13), J-one (13), shahila (12), JodiH (11), MS22 (11), KingBaxter (10), Prayer Warrior (8)

Site Wide Totals

teteri66 (1182), MSJayhawk (1015), Apollo123 (913), Titchou (862), janewhite1 (823), Gabriel (763), ladybud (760), midwest1 (671), sammy64 (668), BlueSkies14 (607)

All times are GMT -7. The time now is 07:13 PM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!