I am new to board and would like some advice. I have had symptoms for about 6 years now. Know that I have some auto immune condition due to elevated sed rates ranging from 36-74. Had optic neuritis 4 years ago that was not from virus. Had full battery of tests at that time, including MRI of both brain and cervical spine, lumbar puncture, EVP, and a host of others including blood work. Nothing showed up. Had another round of tests recently,including EMG with same results. My symptoms include dizziness, headaches, joint pain, fatique, and many others. In the last 2 years a steady progression of muscle pain caused from muscle "tightness" which now reaches about a 7 by the time I go to bed at night. In the last 3 months I have developed muscle twitches occuring anywhere at about 20-30 a day. These tend to increase with the more active I am.
My family dr. says he believes it is ms and keeps sending me back to neuro. Neuro has done all the tests and keeps sending me back to family dr saying nothing serious is wrong with me. In the mean time I get no relief from the symptoms and constant pain which is starting to effect my quality of life. Is my family dr sending back to the neuro repeatedly because he feels he is missing something or because he doesn't know what else to do with me? Should I get a new dr and start all over again? Your thoughts and advice would be greatly appreciated.
Thanks in advance.
It sounds to me like your doctor is listening to you. Have you talked to him about your concerns? Keep a journal of your symptoms, meds, and doctors. Was the neuro a specialist in MS? It might help if you tried a different neuro or if there is a MS treatment center in your area you could go there. I know what you are going through, I too cannot get a dx other than maybe's. It is a long hard road. I don't understand why they say MS, if treated soon enough can be controlled and yet most doctors are unwilling to make a definate dx. Also why they won't give meds or treatment for our symptoms. I wish I had the anwers for us, but I don't. I don't know if it helps you to know that there are others suffering just like you or not. I hope you find some answers, all the best to you.
First off thank you so much for your response. I used to keep detailed info about symptoms, tests, drs. etc. After reading boards not sure if I should take word of neuro as i did not get to see actual report from mri's that were done. Think I might go review my medical record and see the reports for myself. I will also start keeping a journal again. It will be harder for neuro to blow off symptoms if they are in writing and in detail. Thanks again Michele