I am still looking for answers....no results, no answers, just waiting...can any of you describe your first symptoms. All I have are tingling in the legs and heaviness (at times), my arms used to fall asleep, they dont' anymore, and I had double vision for 2 weeks which came slowly and left slowly. No headackes, no pain in my muscles, no blurry vision. I don't know what to make of it. Please tell me your first symptoms and how long they lasted or came and went...and how long it took to be diagnosed.
mine started with some facial numbness on my left side. . then I got some tingles/burning/numbness in my lower legs and hands. . and then some eye weirdess with my right eye, just mildly blurry and my eye just sort of felt weird. . thats about it
Mine presented as arthritis back in 1988. As the years progressed I started getting fatigued, my right arm would go numb, and other small issues that quickly resolved (except the fatigue). In May of 2004 I got horribly ill and lost the hearing in one ear, completely numb in right arm/partial in left, completely numb from the breasts down, loss of balance/coordination and the requisite gait change. That was the first BIG 'event', and the one that got me diagnosed.
Mine started back in 1995 with what I thought was a stroke or heart attack,,left arm numb,dizzy,stiff neck,,slurred speach.Went away after a few weeks.Then in 2000 my back went wacko,was told I had Spondylosis(arthritis)of spine.Back pain was so chronic and started getting neuro signs,,anyway,,,lol,,9 years later and at least 5 docs,2 mri's,blood tests, evp's etc...,,plaques on c-spine and lumbar dx'd last fall spinal -ms.Avoiding meds for as long as possible,on pain meds tho
wow, that's a long time to wait for diagnosis. As I am learning about MS, it seems really hard to diagnose.
In all fairness I wasn't exhibiting any classic signs until 1991. Emancipated, 17 yrs old, and pretty clueless when it came to doctors and medical stuff. Over the years symptoms like speech problems, hearing problems, and a few times where I couldn't understand what people were saying, and of course numbness started presenting themselves but they were so random. Come, go, come, go. It took a massive flare and an article in a magazine for me to put it all together. Went to my GP, asked her if it could possibly be MS, she ordered MRI's and said yeah - go see a neurologist. From when I asked her to official diagnosis it was about a month.
Hi i think i have M S i have had two attacks of vertigo 8 & 3 years ago now i have pins needles in hands and feet. Numb hands when i wake itching on and off foot feel dizzy feel sick my recall of names and what i did yesterday etc is very hazy dont know what day it is Tuesday at work could not walk or put my foot to floor was in agoney with my back still am went to hospital pumped full of drugs. Am now seeing a neuro on Sunday What do you think am i a hypocondrac?
Hi i think i have M S i have had two attacks of vertigo 8 & 3 years ago now i have pins needles in hands and feet. Numb hands when i wake itching on and off foot fall dizzy feel sick my recall of names and what i did yesterday etc is very hazy dont know what day it is Tuesday at work could not walk or put my foot to floor was in agoney with my back still am went to hospital pumped full of drugs. Am now seeing a neuro on Sunday What do you think i a hypocondrac?
I had an abnormal MRI in Nov. '04 with three 1.0 or smaller foci in the deep and sobcortical white matter of the right posterior corona radiata adjacent to the occipital horn of the left ventricle with restricted diffusion. and, one lesion in the white matter of the left anterior centrum semiovale. And, I'm not really sure what this means. I have not been diagnosed with MS but, the dr suspects it. I too was wanting to know what first systems anyone else has had. I had the MRI due to a possible seizure which showed these lesions. Don't know what to expect if diagnosed. Where were everyone else's lesions if MRI was done? Thanks!
Well, as a pre-teen I always had joint pain and fatigue. They could not figure out what was wrong with me, and just let it go eventually. I always had periods of tingling in my hands and feet, but never thought there was anything wrong with this. It was "normal" for me. When I was about 20, I developed severe dry eyes (auto-immune related, but obviously not from my MS.) BUt it was fortunate that I found a fabulous ophthalmologist, because he became my friend and when I was 22 and had trouble seeing out of my right eye, he immediately diagnosed me with optic neuritis and asked me if I had ever been tested for MS. I told him he was nuts. The O.N. went away on its own and I never thought anything more about MS, even though he wanted me to see a neurologist and get an MRI. Then a few months later I had absolutely no feeling in the right side of my mouth. I couldn't taste or feel my tongue on that side. I finally gave in and saw a neurologist and got an MRI, and was diagnosed. Now I am 24.
Also, from the time I was a young child I had no balance. I couldn't roller skate or ice skate or dance, and always fell off of my bike. I was constantly falling and everyone just thought I was a klutz. My MS specialist now tells me that I probably had this when I was a pre-teen.
Last edited by purple2067; 01-23-2005 at 09:49 PM.
dadofthree - yes I gained some of it back. I can walk around the house without a cane - although I always take one with me when I go out just in case (had a few bad falls). The hearing got better, I can hear but tinnitus (ringing in the ears) set in. Tinnitus is annoying but after a while its easy to tune it out. The numbness mostly left except on the outsides of my hands and up the back of my arms. I used to be incredibly sensitive to touch, now I'm not so. While its definitely a decreased level of sensitivity I can at least feel something. The most frequently asked, or thought, question is can I feel anything during sex - the answer is YES. He just has to work a little harder than before