It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-21-2005, 01:47 PM   #1
Junior Member
(female)
 
Join Date: Dec 2004
Posts: 15
canadaann HB User
What were your first symptoms

I am still looking for answers....no results, no answers, just waiting...can any of you describe your first symptoms. All I have are tingling in the legs and heaviness (at times), my arms used to fall asleep, they dont' anymore, and I had double vision for 2 weeks which came slowly and left slowly. No headackes, no pain in my muscles, no blurry vision. I don't know what to make of it. Please tell me your first symptoms and how long they lasted or came and went...and how long it took to be diagnosed.
Thanks!

Anne

 
Sponsors Lightbulb
   
Old 01-21-2005, 02:27 PM   #2
Veteran
 
Join Date: Aug 2004
Posts: 316
baddoey HB User
Re: What were your first symptoms

mine started with some facial numbness on my left side. . then I got some tingles/burning/numbness in my lower legs and hands. . and then some eye weirdess with my right eye, just mildly blurry and my eye just sort of felt weird. . thats about it

 
Sponsors Lightbulb
   
Old 01-21-2005, 02:47 PM   #3
Junior Member
(female)
 
Join Date: Dec 2004
Posts: 15
canadaann HB User
Re: What were your first symptoms

And how long did it take from your first symptoms to an actual diagnosis?
Anne

Last edited by canadaann; 01-21-2005 at 02:50 PM.

 
Old 01-21-2005, 03:21 PM   #4
Veteran
 
Join Date: Aug 2004
Posts: 316
baddoey HB User
Re: What were your first symptoms

hmmmm. . well I guess a few months. . I got an MRI - showed spots. . went through the rest of the testing, nothing else came up so I started on medication.

 
Old 01-21-2005, 04:56 PM   #5
Junior Member
(female)
 
Join Date: Jan 2005
Posts: 16
namaah HB User
Re: What were your first symptoms

Mine presented as arthritis back in 1988. As the years progressed I started getting fatigued, my right arm would go numb, and other small issues that quickly resolved (except the fatigue). In May of 2004 I got horribly ill and lost the hearing in one ear, completely numb in right arm/partial in left, completely numb from the breasts down, loss of balance/coordination and the requisite gait change. That was the first BIG 'event', and the one that got me diagnosed.

Last edited by namaah; 01-21-2005 at 04:57 PM.

 
Old 01-21-2005, 07:39 PM   #6
Junior Member
(female)
 
Join Date: Dec 2004
Posts: 15
canadaann HB User
Re: What were your first symptoms

wow, that's a long time to wait for diagnosis. As I am learning about MS, it seems really hard to diagnose. I can't believe what most of you had to go through. It's just horrible.
Anne

 
Old 01-21-2005, 08:52 PM   #7
Senior Member
 
Join Date: Jul 2004
Posts: 199
Dessell HB User
Re: What were your first symptoms

hi,
Mine started back in 1995 with what I thought was a stroke or heart attack,,left arm numb,dizzy,stiff neck,,slurred speach.Went away after a few weeks.Then in 2000 my back went wacko,was told I had Spondylosis(arthritis)of spine.Back pain was so chronic and started getting neuro signs,,anyway,,,lol,,9 years later and at least 5 docs,2 mri's,blood tests, evp's etc...,,plaques on c-spine and lumbar dx'd last fall spinal -ms.Avoiding meds for as long as possible,on pain meds tho

 
Old 01-22-2005, 12:21 AM   #8
Junior Member
(female)
 
Join Date: Jan 2005
Posts: 16
namaah HB User
Re: What were your first symptoms

Quote:
Originally Posted by canadaann
wow, that's a long time to wait for diagnosis. As I am learning about MS, it seems really hard to diagnose.
In all fairness I wasn't exhibiting any classic signs until 1991. Emancipated, 17 yrs old, and pretty clueless when it came to doctors and medical stuff. Over the years symptoms like speech problems, hearing problems, and a few times where I couldn't understand what people were saying, and of course numbness started presenting themselves but they were so random. Come, go, come, go. It took a massive flare and an article in a magazine for me to put it all together. Went to my GP, asked her if it could possibly be MS, she ordered MRI's and said yeah - go see a neurologist. From when I asked her to official diagnosis it was about a month.

 
Old 01-23-2005, 09:41 AM   #9
Member
(female)
 
Join Date: Jan 2005
Posts: 98
shaddow HB Usershaddow HB Usershaddow HB User
Re: What were your first symptoms

Hi i think i have M S i have had two attacks of vertigo 8 & 3 years ago now i have pins needles in hands and feet. Numb hands when i wake itching on and off foot feel dizzy feel sick my recall of names and what i did yesterday etc is very hazy dont know what day it is Tuesday at work could not walk or put my foot to floor was in agoney with my back still am went to hospital pumped full of drugs. Am now seeing a neuro on Sunday What do you think am i a hypocondrac?

 
Old 01-23-2005, 09:44 AM   #10
Member
(female)
 
Join Date: Jan 2005
Posts: 98
shaddow HB Usershaddow HB Usershaddow HB User
Lightbulb Re: What were your first symptoms

Quote:
Originally Posted by shaddow
Hi i think i have M S i have had two attacks of vertigo 8 & 3 years ago now i have pins needles in hands and feet. Numb hands when i wake itching on and off foot fall dizzy feel sick my recall of names and what i did yesterday etc is very hazy dont know what day it is Tuesday at work could not walk or put my foot to floor was in agoney with my back still am went to hospital pumped full of drugs. Am now seeing a neuro on Sunday What do you think i a hypocondrac?

Last edited by shaddow; 01-23-2005 at 09:46 AM.

 
Old 01-23-2005, 06:36 PM   #11
Newbie
(female)
 
Join Date: Jan 2005
Location: WESTERN NY
Posts: 2
Fancybud HB User
Wink Re: What were your first symptoms

My first symptom was optic neoritis that was 16 yrs a go

Last edited by Fancybud; 01-23-2005 at 06:39 PM.

 
Old 01-23-2005, 07:41 PM   #12
Newbie
(female)
 
Join Date: Jan 2005
Location: Alabama
Posts: 1
morrison4726 HB User
Re: What were your first symptoms

I had an abnormal MRI in Nov. '04 with three 1.0 or smaller foci in the deep and sobcortical white matter of the right posterior corona radiata adjacent to the occipital horn of the left ventricle with restricted diffusion. and, one lesion in the white matter of the left anterior centrum semiovale. And, I'm not really sure what this means. I have not been diagnosed with MS but, the dr suspects it. I too was wanting to know what first systems anyone else has had. I had the MRI due to a possible seizure which showed these lesions. Don't know what to expect if diagnosed. Where were everyone else's lesions if MRI was done? Thanks!

 
Old 01-23-2005, 09:48 PM   #13
Senior Veteran
(female)
 
Join Date: Aug 2002
Location: Staten Island, NY USA
Posts: 2,228
purple2067 HB Userpurple2067 HB Userpurple2067 HB User
Re: What were your first symptoms

Well, as a pre-teen I always had joint pain and fatigue. They could not figure out what was wrong with me, and just let it go eventually. I always had periods of tingling in my hands and feet, but never thought there was anything wrong with this. It was "normal" for me. When I was about 20, I developed severe dry eyes (auto-immune related, but obviously not from my MS.) BUt it was fortunate that I found a fabulous ophthalmologist, because he became my friend and when I was 22 and had trouble seeing out of my right eye, he immediately diagnosed me with optic neuritis and asked me if I had ever been tested for MS. I told him he was nuts. The O.N. went away on its own and I never thought anything more about MS, even though he wanted me to see a neurologist and get an MRI. Then a few months later I had absolutely no feeling in the right side of my mouth. I couldn't taste or feel my tongue on that side. I finally gave in and saw a neurologist and got an MRI, and was diagnosed. Now I am 24.

Also, from the time I was a young child I had no balance. I couldn't roller skate or ice skate or dance, and always fell off of my bike. I was constantly falling and everyone just thought I was a klutz. My MS specialist now tells me that I probably had this when I was a pre-teen.

Last edited by purple2067; 01-23-2005 at 09:49 PM.

 
Old 01-24-2005, 07:34 PM   #14
Junior Member
(male)
 
Join Date: Jan 2005
Posts: 13
dadofthree HB User
Re: What were your first symptoms

hi - just was curious - did you gain any feeling or hearing or balance back after your may 2004 event? God Bless!

 
Old 01-24-2005, 11:58 PM   #15
Junior Member
(female)
 
Join Date: Jan 2005
Posts: 16
namaah HB User
Re: What were your first symptoms

dadofthree - yes I gained some of it back. I can walk around the house without a cane - although I always take one with me when I go out just in case (had a few bad falls). The hearing got better, I can hear but tinnitus (ringing in the ears) set in. Tinnitus is annoying but after a while its easy to tune it out. The numbness mostly left except on the outsides of my hands and up the back of my arms. I used to be incredibly sensitive to touch, now I'm not so. While its definitely a decreased level of sensitivity I can at least feel something. The most frequently asked, or thought, question is can I feel anything during sex - the answer is YES. He just has to work a little harder than before

Last edited by namaah; 01-25-2005 at 12:00 AM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
EXTREME MAV - what helps? Boslee2008 Inner Ear Disorders 39 07-17-2008 04:57 PM
What could it be? :-( LondonRed Bowel Disorders 91 09-20-2007 06:05 PM
What to do next? lemondrop26 Thyroid Disorders 21 07-11-2007 08:22 AM
what i have researched overitall Herpes 1 04-24-2007 01:46 PM
Help! What is wrong with me? exist21 General Health 55 09-19-2005 06:45 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 04:47 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!