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Old 01-26-2005, 06:31 AM   #1
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What other diseases mimic MS?

Everyone is always saying there are a million things that have the same symptoms as MS. Does anyone really know what those are aside from Lyme's disease? Not much of a chance that I have that! Just looking for that ray of hope that it is something minor for me. All my other symptoms are much much less today except the fatigue and some very minor twitching/vibrations. Yesterday I had 2 important meetings in which I was unable to contribute anything. One was about the future of the mental health program I run and I could not really put my thoughts around what was being said. Everyone else had lots of questions and ideas but I just sat there and smiled when they talked to me and kept repeating how exciting our new endeavors were. I am sure the big wigs were thinking "I can't believe she is in charge of this facility!"

 
Old 01-26-2005, 03:17 PM   #2
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Re: What other diseases mimic MS?

There are posts on the SUSAC Syndrome that someone wrote mimics MS.

 
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Old 01-26-2005, 04:06 PM   #3
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Re: What other diseases mimic MS?

I know of another two, one is prenacious Anemia which has somethign to do with ur B12 levels and can be helped with B12 injections, there are a couple of posts already with mroe info about it. OR Arnold Chiari Malformation like I have. Initially I was being tested for MS cause I had CLASSIC symtpoms alot fo stories I read shw alot of other people had possible MS diagnosis. Its a rare congenital disorder where the cerebellum has distended down through the gap in ur skull and is putting pressure on ur spinal chord and has pressure on itself. The only treatment is surgery if its considered to be creating enough trouble. The surgery is to remove portion of the skull and sometimes some parts of the spine and putting a dura patch on to make room for the cerebellum. It will onyl showe up in an MRI. I'm goign in for surgery for it tommorrow!!!! so hopefully I get a little respite!

 
Old 01-27-2005, 08:44 AM   #4
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Re: What other diseases mimic MS?

I think your question is a very good one and I for one would sure like to know the answer. Everything I have read about MS always starts with the old "have to have many tests done to rule out MS because so many disease mimic MS" I have yet to hear of more than two or three. Anemia, thyroid, B 12 levels, and copper levels.... oh wait that was four LOL. I go on the 4th to get results from blood work and MRI of spine. Doc wants to wait and see on these before ordering a spinal tap, which is all right with me as it sounds like it could be painful.
What I don't understand either is when a patient presents with several disturbing symptoms such as visual disturbances, numbness and tingling, walking problems, speach problems and many others (due to we all are different) why doctors aren't more agressive in finding out the source of the problem instead of this damn wait and see let's take it slow and do one test at a time until months down the road we feel crazy. I guess what I am saying is why can't they just order all the tests and then do the "wait and see"? If it was them feeling so awful do you think they would want to wait for months to have the proper tests done?
Well I guess I went off on a tangent, sorry but I just had to get that off my chest

 
Old 01-27-2005, 09:16 AM   #5
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Re: What other diseases mimic MS?

but u are so right, im waiting 2 1/2 months to see a neuro, im wondering cripes how come so long....... i question everyone....... what my understanding is...... is ms is a long term (life long) degenerative disease, and im not in a major flare up...... so i guess i qualify to wait............ but my dr says id like it to b sooner so u dont get anohter hit, but if we have to wait i guess we have to wait............ "whatever"..... so there u have it......... a wait game...... i agree with ur' tangent.......
oh yeah......... 6 yrs ago i was tested for lymes when spots were noted on my brain scan, and now my dr says well u already had a lymes test no need to do that again..... he got mad when i said what makes u think in 6 yrs i didnt get bit by a tic............ lol .........oh well

Last edited by thnkpos; 01-27-2005 at 09:18 AM.

 
Old 01-27-2005, 04:02 PM   #6
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Re: What other diseases mimic MS?

hi, i can symthyse with the waiting! im it took a year untill i got listened to and saw neauro, and its been 5 months and i havent had mri yet. they dont think its ms but said just wait and see what happens untill mri! so frustrating and upsetting!" love april x

 
Old 01-27-2005, 07:19 PM   #7
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Re: What other diseases mimic MS?

I just don't understand these doctors that put off doing testing. Don't they realize how hard it is to have strange symptoms, some of which affect your quality of life, and not know what is causing it?

I was lucky last time. My doctor went right to testing after one appointment. Too bad I was too chicken at the time to do the spinal tap or I might actually know what's going on right now! Hopefully the doctor I'm seening tomorrow will do the same. (my original doc didn't have an opening until mid February but he recommended this one...at least it's still the same practice)

Hope everyone is well tonight!

Angi

 
Old 02-01-2005, 02:15 PM   #8
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Re: What other diseases mimic MS?

I am sure a doctor would not make his wife wait 2 months to get a simple test done or to see a specialist. You betcha that the wife would get in immediately to see someone.

I read a post by a doctor the other day that offered a suggestion to someone looking for a good specialist. He said to ask your family doctor who they would send their daughter, wife, or son to if they needed to see a certain kind of specialist. You know they would only send them to the best. Don't we deserve the same treatment?

 
Old 02-01-2005, 02:51 PM   #9
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Re: What other diseases mimic MS?

I just got off of the phone with my insurance company and I think I can safely say why the doctors don't send us for all of the tests all at once.

Insurance companies.

Mine called me because of all the tests that I'm having done on Feb. 21st. (MRIs of my brain and complete spinal cord, both with and without contrast, an MRI angiogram of my head, BSER, VER, and SSER) They are questioning the validity of having all of these done at once instead of the "do a few tests, wait a few weeks/months/years" method that they prefer.

After talking to several different people at the insurance company and ending up with my neurologist talking to them herself, they are going to pay for it. But, man, it was like pulling teeth.

Most doctors probably aren't willing to go through all of that.

 
Old 02-02-2005, 06:46 PM   #10
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Re: What other diseases mimic MS?

I've been doing research on some of the symptoms that I have been having and many of them seem to also fit in with mitral valve prolapse so that may be another one that mimics ms.....

topsi

 
Old 02-03-2005, 01:11 AM   #11
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Re: What other diseases mimic MS?

Hey Dad, I just wanted to tell you I'm being tested for MS and I just found out I have Hasimoto's. I am suposed to see the neuro soon. I would like to think this could be my thyroid. I have heard alot of things that look like MS symptoms, can be thyroid. I have weekness and numbness. I would think that yes you can have these symptoms with hypo thyroid. Marlow

 
Old 06-15-2005, 05:23 PM   #12
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Re: What other diseases mimic MS?

dear ll,

Just wanted to say that Heddi is right, Susac Syndrome DOES mimic MS, and is often mis-dx'd as that.

I am newly dx'd w/ Susac Syndrome, and it's quite rare......but ~ not as debilitating, IMHO as MS.

kk

 
Old 06-15-2005, 06:07 PM   #13
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Re: What other diseases mimic MS?

Quote:
Originally Posted by tiresome
What I don't understand either is when a patient presents with several disturbing symptoms such as visual disturbances, numbness and tingling, walking problems, speach problems and many others (due to we all are different) why doctors aren't more agressive in finding out the source of the problem instead of this damn wait and see let's take it slow and do one test at a time until months down the road we feel crazy. I guess what I am saying is why can't they just order all the tests and then do the "wait and see"? If it was them feeling so awful do you think they would want to wait for months to have the proper tests done?
Well I guess I went off on a tangent, sorry but I just had to get that off my chest
OH PREACH IT SISTER!!! I'M OUT HERE SHOUTING AMEN! My original internist was GREAT...she was a pit bull,called in personal favors with other specialists to get me moved to the top of their lists for testing...but with some, it was still wait & see. Maddening, isn't it?

 
Old 06-16-2005, 09:35 AM   #14
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Re: What other diseases mimic MS?

I know how you feel..been waiting several months and symptoms are getting worse no better and everyone is passing the buck to another dr instead of doing the tests and figuring out what is wrong. I guess because its not their quality of life effected hey who cares let em wait..but you bet if it was the dr not being able to function he be pulling out all the punches and getting answers.

 
Old 06-16-2005, 05:22 PM   #15
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Re: What other diseases mimic MS?

Hey, anybody know what they mean when they say "demyelinating disease"? Isn't MS a demyelinating disease? I've read that B12 deficiency (aka Pernicious Anemia) can cause demyelination, but what other things can cause it? And do all demyelinating diseases cause brain lesions? Oh, I'm just full of questions! I just got my MRI results today and I have at least 4 lesions, none "active". I am pleased with my neuro, will be done with all evoked potentials, blood tests and spinal tap (have decided that sounds less frightening than "lumbar puncture") in the next four weeks. Nuero said possible MS or demyelinating disease. Guess I'll google it. But like many of you, I've looked at several things that mimic MS and found a remarkable lack of other symptoms associated with Lyme, Lupus or Fibromyalgia...(Kelli or Lisa, if you happen to read this, I feel as if I've had two lucid days in a row here - feeling so blessed!)

 
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