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Ecosse · 01-26-2005, 02:45 PM

I have recently been diagnosed as M.S. primary progessive type. I have been offered chemo-therapy as a treatment and would like to hear from anyone who has any experiences of chemo-therapy being used for M.S. Thank-you, Ecosse

Jewel2 · 01-26-2005, 08:23 PM

Welcome, Ecosse. I'm sorry to hear of your diagnosis. I don't have MS myself (my mother and daughter do) and neither of them have used Novantrone. We did ask my daughter's neuro about it and he said to reserve it for later in the course of the disease as you can only receive a limited number of treatments. But perhaps because you have PPMS your neuro wants to get you started.

I know of a couple of other people online who use Novantrone and it has helped them.

Wish I could help you more. Mostly I just wanted to welcome you to the boards and send my best wishes.

Take care,
Julie

irishgirl18 · 01-26-2005, 08:35 PM

I am really sorry to hear that..All i want to say is be strong...my mom had cancer for 3 years and died Feb. 22nd 2002...Chemo is really hard on your body yes...it makes you sick and weak...but you can get through it...just really be strong and believe... i already believe in you...Dont ever think about giving up....Chemo is just a chemical that goes through your body to kill off the disease...You'll be ok..it just takes time

mikosha · 01-27-2005, 07:43 AM

Hi, Ecosse
Chemotherapy for MS is not the same as for cancer-different drugs and doses.I am not on it, but my doctor uses it a lot.When I am having my infusions other people are having chemo.I know for cytoxin they are taking pills for nausea.I didn't see anybody loosing hair.It shouldn't make you weak.
Good luck!
MIKOSHA

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