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Old 01-27-2005, 08:28 AM   #1
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Do i have MS???? Please help!

Hi there,

sorry, this is going to be a long post.

I have been having one hell of a year trying to figure out what is wrong with me. I have come to the conclusion that it is MS, obviously, i would really rather it wasnt! I'll describe my symptoms and you can tell me what you think.

In October 2003, I started to have some strange vision - not really blurry or painful (actually, totally painless) but as time progressed I started to notice that my vision was not as bright as before, it tended to get blurry after walking around for a while. but really seemed like no big deal. In summer 2004, i started to have an awful time trying to see, the blurryness on walking was terrible - i would get lost and frustrated just trying to find a shop! it was crap. it was diagnosed as optic neuritis in December 2004, only after harassing doctors until they got me in to see a neuro-opthamologist who then decided it was ON.

I started also to get a bit dizzy and unstable when walking around, but not too badly, and mostly i associated it with the vision thing - as in not being so stable because I couldnt see the ground properly. It used to go totally back to normal after sitting down for a while, but not anymore...my vision is blurry and faded upon sitting, but not always? in the evenings, the mornings - it seems to be relatively ok, not perfect. it is now mid afternoon and everything looks awful even through I have been sitting down for about 20 minutes...hot showers and baths also make it go blurry. I believe this is called uhlhoff's syndrome?

also, when walking, i can sort of feel the vibrations in my eyeballs and they feel like they are jiggling around.

I have had strange, relatively short (3 weeks?) episodes of numbness in my face and across my midsection - never totally numb, just silightly and it usually goes away. i have it in the left side of my face at the moment, not too bad and it seems to be fading away, but who knows.

I had numerous nighttime charleyhorses over the summer. i still get them once in a while, but not as much.

In the past few weeks, some new developments - tingly hands and feet, very mild but definitely not my imagination. also have discovered that when I bend my chin to my chest there is a definite electric shock type feeling in the backs of my legs. again, very mild, but not my imagination.

I get migraines (?) or, at least, very bad headaches centred directly on the left side of my brain, which I always attributed to a hearing deficiency ("sudden deafness syndrome") that got me in June 2001. It took about 2/3 of my hearing in my left ear and as a result i have tinnitus there, not severely but still annoying sometimes.

i have also been getting stiff legs from sitting at my desk, but that could just be from sitting there for too long. i bump into things a lot, but i ahve anways been clumsy.

any thoughts on the likelihood of MS? i have been up and down about the whole thing, i am trying to keep optimistic in the hope that this stuff will go away and leave me alone. i am having an MRI on monday, but dont get the results for ages. i am trying to get in to see a neurologist soon because I am really sick of not knowing. the doctors over her (i live in london, england) tend to dismiss things taht you say as "depression" so they are very frustrating to deal wtih.

any thoughts would be greatly appreiated.thanks.

 
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Old 01-27-2005, 09:01 AM   #2
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Re: Do i have MS???? Please help!

The best advice I have had from this site is to keep a journal of symptoms, dr. appt. ect. and to KEEP on the doctors to have test run. Don't let them dismiss your symptoms and if they say it is depression tell them you would like the tests run to prove it isn't something else. Have you had blood work done such as all thyroid levels, anemia, B 12, and Copper? this is usually a good place to start along with MRI's of brain AND spine (as some people with MS only have spine lesions) Evoked potentials (since you have both hearing and eye problems I would insist on both audio and visual but just to be sure all EVP tests) and a spinal tap. And be firm about wanting tests run, don't let them blow smoke after all they are there to SERVE YOU. So many times we treat doctors as above us so we must go meekly along with what they say. Don't do that!!!!!! Too many times people have been hurt or worse by not standing up for themselves. I know a woman who insisted her Dr check her heart and was told she didn't meet the "criteria" for heart problems and she told the DR "just order the tests or I will go else where" Guess what? She has a serious heart condition that was found in time to prevent her death. I hope this helps you and I hope you all the best in your search for cures from you symptoms.
Sincerely,
Laura

 
Old 01-27-2005, 09:29 AM   #3
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Re: Do i have MS???? Please help!

hi, i agree, get the mri of the brain, and i would call and tell them u want one of the spine as well, while u'r there, get the both done
the wait for ms dx.......is a waiting game, (posted on another post), the electrical shock down u'r back is what they call lhermittes sign, and i have it right now, from my readings, it is an early sign of ms, i have spots on my brain and spine..... my vison goes funny also, it seems my far vision gets blurry but i could see close up, i was to the opth. and he said no sign of ON, so maybe its just an overheat symptom ????...... best of luck to you and keep us posted..........
tammy

 
Old 01-27-2005, 04:45 PM   #4
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Re: Do i have MS???? Please help!

The first thing that tipped my doctors off to a dx of MS with me was my optic neuritis. My ophthalmologist told me that it is usually one of the first symptoms. Mine was actually a very quick diagnosis because I had doctors who were aggressive with running tests. To me, it sounds like you could definitely have MS just because I don't think there is any other disease that could explain these symptoms, especially when they all appear together. My advice to you is the same as everyone else's. Get an MRI of your brain and spinal cord. See an MS specialist, and if they think it is necessary, get a spinal tap.

Good luck,

Elyse

 
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