I've been to every specialist, MRI next month. Internal medecine suspects maybe post-viral fatigue/cfids, neurologist a few weeks ago said maybe MS, family doctor says nothing found, nothing to worry about and he has reputation of 40 years as a very good doctor.
Started with extreme fatigue, can't get out of bed, then evolved into muscle pain in legs and arms, together with extreme lightheadedness and funny sensation/stiffness/numbness in back of neck. Now pretty bad muscle weakness and stiffness in knees. A few days ago it started to have muscle spastitcity, weird feelings in fingers of right hand, and patches of "thawing" numbness in left shin, right arm, and jaw that come and go.
Does this sound like MS? It's very frustrating when you know something is not normal with you but the doctor's don't know exactly right away...Of course there is also the prospect of a future that sucks compared to your healthy past if you do have a degenerative disease.
I agree with you that it is very frustrating knowing that something isn't right and not being able to figure out what it is. It is also frustrating when it seems as though the ones you go to to help you find out don't seem to know what is going on either.
The symptoms you describe can be MS. MS affects the nerves in your brain and spinal cord and what does the brain and spinal cord control? Everything! So what can it affect? Everything! Bit very encouraging I know.
My neurologist told me that 3 primary criteria are used to determine MS. Or, I should say, he used 3 primary criteria to determine my MS. 1.) MRI He did MRI of my brain and spinal cord to see lesions (or scars) caused by MS. 2.) He did an LP (lumbar puncture/spinal tap) to see if he found any WBCs in my spinal fluid (not supposed to be there) and 3.) symptoms I had.
Now, I had what one doctor called "a dead leg". I had little control and extreme weakness in my left leg. I began falling. It seemed my leg just decided not to work. Usually when I was trying to walk! I thought I'd hurt my knee. I had extreme fatigue but as most type A personality people I felt compelled to push myself and did so and often found myself unable to do the things I wanted or needed to but I tried anyway. I then was watching TV one morning after having fallen leaving work and rubbed my left eye and was blind in my right eye. Needless to say, I freaked out.
The MRIs were next and the LP. Both were positive, that is to say, the scars were obvious and I had WBCs in my CSF.
Then my neurologist came back and said You have MS but I want to rule out everything else also. He ran every test known to God and man it seemed to look for anything else that could possibly cause my symptoms. The only thing that came back positive was MS.
During my neurologists information gathering, he noted that I had MS symptoms about 5 years before I was diagnosed (I went numb from the waist down) but it was MS was not considered and so it was overlooked.
I am one of the lucky ones. Many are not so fortunate and some actually deal with MS for years without a definite diagnosis. So, I definitely count my blessings if there is such a thing with MS.
So, keep asking questions and looking for a reasonable explanation of what is happening to you. I would encourage you to keep a diary of sorts of you symptoms and when they happen, how long they last etc In my opinion, you are taking action and you will answer questions and show the doctors things they may not think to ask.
Wow pretty similar to my story. I've posted my symptoms on this board within the last week or so. Try and read it to see if it is similar. Last Wednesday my right foot went really numb and the doctor said to go to the E.R. I did and ended up being admitted for 2 days. They did an MRi, CT scan, EEG, evoked potentials test, blood tests, everything but a spinal and they diagnosed me with nothing. Very frustrating. I am doing an EMG on Thursday of this week. Please keep me posted on what you find out and I'll let you know if they find anything on me. It seems like we are in the same boat. I am 34 and have been dealing with this for 11 months. Good Luck
Just when the numbness in the back of my head became tolerated, my right foot went numb. Go Figure!
Hi- long time after your last post but I am also concerned about having MS, I have experienced weakness in both legs to the point I could not walk, yet also when these weaknesses have occured, I have been able to kick my legs up to my bum and they have 'worked' again. What is going on here? How long did your 'dead' leg last, did it just go weak, or did it go numb also? Thanks for your help I am very concerned