Re: demyeliating disease
I just got my medical records from my neuro yesterday, I have MS. Actually in April 2004 I should have been diagnosed with Ms but did not have a diagnosis until December 2004.
In my records all I am reading is the demyeliating this and the demyeliating that. As well as several white spots in the white matter. OK what is several? The another page states a few spots in the white matter, ok a few is 3, but what is several?
Get a copy of your records and write down questions you want. Your first set of copies requested are free. Ask for new testings to be done too, like a new MRI spinal and head, and a LP.
Get your ducks in a row for that appointment.