is anyone currently using or have recently tried Tysabri?? i am going to have my first IV this month and am a little anxious about it. hopefully it will be all its cracked up to be. if anyone has experience with this new drug please let me know.
Hi!! This is my first response. I have had MS for 7 yrs. Been on Avonex, Copaxone, double avonex, and Novantrone. Now only on Tysabri. I really liked it. Have had 2 infusions and ready for my third. Just a once a month injection which takes an hour and then they watch you for another hour with a saline drip. I drink gingerale when I get it because after the first inj., I was a little nauseated on the way home. If you would have an allergic reaction (hives, etc.) they will stop the program for you. It seems very safe, but not all insurance cos will pay for it. It is the only drug that I know of that helps protect us some. I love it and feel very blessed to get to take it. Good luck!!!!!!!
My daughter has had one infusion. She was a little nauseous on the way home, but otherwise it went well.
The studies have shown that it is nearly twice as effective as the CRABs in controlling lesion activity. It works differently than the CRABs, so your doc might keep you on both. My daughter is on Copaxone and Tysabri. It is a miracle her insurance is paying for both - at least for now they are!
There is currently a study going on for oral Tysabri. Wouldn't that be great?!!!!!