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Old 02-08-2005, 04:10 AM   #1
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jon_vickers HB User
hi, im new

hi everyone, im new to this board, my names jon and im 19, i was diognosed in may last year when i was 18, im on copaxone at the moment, i was dionosed with relapsing and remitent ms, ive been in relapse since then, in this form of ms how long can a relapse be? i am gettin better, for example, i was relying on 40mg of prednisolone a day, i'm now on 2mg a daywhich is going to be reducing to 0 in the next couple of weeks.

my current sympyoms are, poor vision, poor balance and slight weakness. i'm back at work now which is good (30 hours a week)

thanks for listening

 
Old 02-08-2005, 05:34 AM   #2
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AllyG HB User
Re: hi, im new

Hi Jon,

Glad to hear your doing so well. I was diagnosed in Sept 2003 and it took me a couple of months to recover. I also have Relapse/Remit and I havent had a relapse since and I feel better than I did even before I had my attack. Im currently on Rebif 44mgs and I think it has worked extremely well for me. I was also told that Evening Primose Oil is very good for people with MS and myself and all my family that have Ms have been taking it for over 1year. None of us have had a relapse in that time. Cant say it is the EPO but it hasnt done any harm.

Best of luck to you, hope you continue to do so well.

 
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Old 02-08-2005, 05:48 AM   #3
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VECTRA HB User
Wink Re: hi, im new

HI JON !!!! GLAD YOU'RE HERE,AND GLAD YOU'RE DOING SO GOOD! EVERY PRSONS BODY IS DIFFERENT,ITS HARD TO SAY JUST HOW LONG THE REMITTING WILL LAST.JUST TAKE IT ONE DAY AT A TIME,IF YOU CAN DO IT,GO FOR IT AND ENJOY YOURSELF.THE PREDNISONE HELPS A LOT.I'M ON COPAXONE TOO,WAS DIAGNOSED IN 1993 AND SEE MY NEUROLOGIST EVERY YEAR OR WHEN I NEED TO SEE HIM.PAY ATTENTION TO YOUR BODY.TAKE CARE,

 
Old 02-08-2005, 07:26 AM   #4
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Arraicha HB User
Re: hi, im new

Hi and welcome!

As it's been said before, the lengths of relapses depend on the person. My shortest relapse was 3 months, my longest was 7 months (though it would have been longer with cortizone injections).

 
Old 02-08-2005, 07:41 AM   #5
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thnkpos HB User
Re: hi, im new

welcome jon !!!!!!.......... hope everyday is an improvement......
tammy

 
Old 02-08-2005, 03:30 PM   #6
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gaulty HB User
Re: hi, im new

Quote:
Originally Posted by AllyG
Hi Jon,

Glad to hear your doing so well. I was diagnosed in Sept 2003 and it took me a couple of months to recover. I also have Relapse/Remit and I havent had a relapse since and I feel better than I did even before I had my attack. Im currently on Rebif 44mgs and I think it has worked extremely well for me. I was also told that Evening Primose Oil is very good for people with MS and myself and all my family that have Ms have been taking it for over 1year. None of us have had a relapse in that time. Cant say it is the EPO but it hasnt done any harm.

Best of luck to you, hope you continue to do so well.
yeah that evening primrose is ment to be good im on it myself

 
Old 02-09-2005, 08:14 AM   #7
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thnkpos HB User
Re: hi, im new

how many miligrams do u take of the evening prime rose?
thanx

 
Old 02-09-2005, 03:52 PM   #8
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gaulty HB User
Re: hi, im new

just a captual a day

 
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