Question about Lesions - Multiple Sclerosis Message Board

Merc100 · 02-12-2005, 12:29 AM

I had 6 brain lesions back in October/ 04 and now my last MRI results from Jan /05 only 3 months later show 3 more totalling 9. This has me totally stressed out because I seem to have a MS Episode every 2 months of numbness, vertigo, speech problem, facial twitching etc. The doctor said it was VERY active and don't know why. She also said lesions mean nothing and not to worry about it. Still at the rate of 1 per month were does that leave me in 5 years?? I have a servere sinus infection for the last 6 months that can be the only thing I can think that is bothing my MS. I am just looking for anybodys thoughts or opinion. Its a little stressful.. Only 31 with 2 small kids and new to this whole MS thing.

Thank you
Merc.

gaulty · 02-12-2005, 07:05 AM

at the start of my MS it was very active eyes ears arm leg fase chest lol i think thats it ,now im 2 years on and on interferon .....perfect well you wouldnt know i had ms i cycle about 100 mile a week and work on a building site full time also have a baby boy callum ,lol best med you can get ,so dont worry i find a lot of the time ms is a lot worse at the start,then dips away,its different for every 1 but you'll be fine

gaulty · 02-12-2005, 07:06 AM

oh i had 7 lasions dont know how many know,after the 1st year

Jewel2 · 02-12-2005, 08:55 AM

Hi Merc,
That's the way my daughter's MS started - very aggressive lesion activity for the first two years, almost doubling in lesions each MRI (9-12 months apart). Though she continues to get new lesions, it has slowed down (she's in year 5 now).

I've heard of others who had it hit hard the first couple of years, but then it slowed down. Hopefully yours will do the same.

I'm not sure what your doc meant by saying that the lesions mean nothing. MS is all about the lesions. In fact, you can have new lesions, but no new symptoms - for a while, anyway, until they catch up to you. Are you on a CRAB or Tysabri? They will help slow the lesions down.

Best wishes,
Julie

Merc100 · 02-12-2005, 12:09 PM

First of all i would like to thank everyone that replyed.... i have not started any drugs yet.. I agreed to start the injections but my Doctor wants to to go to a meeting that discusses all the different types and then pick one. Tysabri is still about a year away from being precribed in Canada which is where i am. I will have to pick another... Was thinking of Rebif or Avonex.
What my doctor said about the lesions is that she have seen people with 1 lesion and are having alot of problems.. then she have seen people where the whole MRI is just 1 big lesion becuse they have so many and they are doing great. So she said not to worry. I hope she is right.
Do any of you know what can help heal lesions? I guess the question is once ou have them are they there for good? I would love to have another MRI and see 3-4 less one day I just don't know if thats possible.

Thanks again