new! - Multiple Sclerosis Message Board

Kirstine · 02-16-2005, 02:21 PM

Hello every one, I am a new person on here, I do not have MS but my Husband does I am here for me and hi, really just want to know what can happen in the future, Not that I would ever leave him I love him to much I would just like to know what happens from here.... He was told in Dec he had it we also gave birth the same month -Little boy Taylor Owen Wade Hughes- He has brought a smile back to my hubbys face again so nice to see I can tell you. He is ok not as bad as some on here, but he is a up sort of person

and I hate seeing him so low and upset it is not all the time just every now and again, I get it from him all the time as we are away from family but we do have really good friends -well he does- I just seem to be a mother all the time to him and the two children am I being selfish saing that?

U tell me I don't no what to think any more I just wish there was something I could say do to help him, we are living off benifit which dosn't help as he was the earner I will have to go out and get a job soon but he needs to be able to cope with the two children first has any one got any advice???

Sorry to go on hope I can have some help from you

Kirstine

Kirstine · 02-17-2005, 10:16 AM

Hello again it is me Kirstine I have noticed that a few of you have looked at what I have writen but none of you have writen is that because I do not have MS? Is there some where I can go where I can get help support advice??? I would like to help my Husband in any way possible, I need to have help in doing that and I thought that other's like him could give me some insight may be I was wrong? Was I?

baddoey · 02-17-2005, 10:25 AM

Sometimes it takes a little time for people to respond, and not everyone who views is going to. In regards to your situation as far as the future it is impossible to say - MS is a very weird disease and hard to predict. Some people live quite normal lives and others have a rough time of things. There are some new medications out there that seem to be having some positive results in slowing down the progression. I hope your husband is on some. You might want to look on that national ms society web page and see if there is a support group in your area - maybe for you or for your husband. Depression is often a side effect of MS (they are unsure if it is b/c hardship of the disease or chemical in the brain) and if you husband is depressed this is something else that he might want to consider treatment for.

good luck and take care.

Kahlia25 · 02-17-2005, 11:44 AM

I have had MS for 8 years.....it took them 2 to diagnose it. Every test result I had came back negative at first. I could not walk, I slurred my speech, I felt like ants were crawling all over me. As an RN, I KNEW I had MS. I finally went to a neurologist who told me to walk....just walk for him. He said "You have Multiple Sclerosis". It was a relief to finally hear it even though I was upset. He went over all my tests and told me that after you have had everything done imaginable to man, they make a diagnosis on symptoms. I had another MRI a year later that showed lesions in the temperal lobe of the brain....that affects your emotions, I was crying all the time; your speech etc. I am on a drug, a shot, Beta Seron that has chnaged my life. I take it under the skin every other day. I can honestly say.....DO NOT GIVE UP...in your quest to find answers........you will find them sooner or later. I went through a really bad time and now I am so much better. I am hoping that you can find the answers you need soon........Kahlia

Kirstine · 02-17-2005, 12:21 PM

Thank you guys, it is nice to hear from you. So thank you for taking the time to chat to me. I know we are in the early stages of this as it was only three months ago we got told and yes Kahlia I totaly know what you are saying about finaly knowing what we are coping with it was nlike a weight had been lifted, and no need to explain why Steve -my hubby- wasn't working ect. I do feel that people just see him as lazy and I can honstley say I have felt that in the past you can just forget that is what he has do you know what Imean as he hasn't got two heads or any visable things wrong, but as I have said we are new to all this. In answer to your question baddoey no he isn't on anything really a drug called Volterol and that is it, we have a appointment on Wednesday of next week, perhaps he will be given somthing then as his pain is gedtting worce as well as the mood swings, it is hard to know what I am gettting up to in the morning sometimes. Any way I kno we are strong and we can get on with our lives, I just hope I am as strong as we are if you know what I mean you just don't know what the future holds. Thanks again for replying I didn't mean to sound off I just thought of there was another board for us partners of MS Sufferers it may be better for you. Regards Kirstine xx