Should I be hopeful about the research? - Multiple Sclerosis Message Board

baddoey · 04-11-2005, 01:38 PM

This question doesn't mean to sound depressing, but it is mostly directed to people that have had MS for the last 15 years plus. I read this board and there is much hope there about the research that is happening, but hasn't this been going on for the last 15 years? How much do you really think this is going to help us? when the interferons came out on the early 90s they were touted as a cure, but as we know know they are a mixed blessing. and with the whole tysabri fiasco I just don't know if I want to be hopeful. . getting let down is almost worse. I'm newly dxed, mild symptoms (going on copaxone soon) . . I do my thing - I run, take supplements, positive attitude, but I also consider myself a realist and since they don't really even know what causes this awful thing, it just doesn't seem that reassuring that they are going to find something that is going to help without some pretty bad side-effects. I hope this makes sense. . just don't want to put any faith in a pipe-dream. . any other doubting MSers out there?

sunshine149 · 04-11-2005, 01:55 PM

I believe there won't be effective treatment for MS until they understand how people get it, until then, treatments are shots in the dark. Not ones I'm personally willing to mess with...

LaDeeDa · 04-11-2005, 02:20 PM

I have had MS for many years. I have always held out hope for a cure and will continue to. When the ABC drugs became available, it was a giant step towards that goal. I may not live long enough to see a cure in my lifetime, but I firmly believe it will happen eventually and then MS will only be something to read about in old medical textbooks.

baddoey · 04-11-2005, 06:22 PM

thanks for the feedback. . I know I'm not a patient person, so I hear all of these things going on, but the results are few and far between .. I'll keep my fingers crossed for all of us.

Paige1 · 04-15-2005, 09:23 AM

I'm with you Baddoey....we read those stories about a cure being imminent for so many years and finally say..yea right. I don't worry too much about it though these days cuz I've been taking the LDN for 3 years and hey, if there is no cure I feel that I will not progress any further then I am right now so I don't worry too much about it. I see the news reports and don't get anywhere near as excited as I used to. I don't think I will see an actual cure for MS in my lifetime so what's to get excited about? Anyway, that is my take on all this and just know you are not alone in your negative thoughts regarding all this.