This vibrating is driving me mad! - Multiple Sclerosis Message Board

linda11867 · 06-11-2005, 01:35 PM

Hi everyone. I'm new here and I need some help! This would take a long time to write out in full, but here's my symptoms:

muscle aches, spasms, twitches, cramps, fasciculations(i think), numbness, tingling and these flipping internal vibrations! I don't know how else to describe them. They started in my feet mostly, as did the initial cramps I was getting. But now they are sometimes in one or both legs, my tailbone or rear end area and they are making me insane. I had an MRI of brain, cervical spine, CT, EMG B12 and the like for blood work and it all came back normal except for slight WBC elevation. The thing is, I wasn't having all of this vibrating going on when these tests were done. At that time, I was just rather stiff from cramped muscles. Over the last couple of weeks, this vibrating has been relentless. Also, I noticed a couple of days ago that if the vibration is acting up in my tailbone area, it will become "amplified" if i look at my feet (put my head in that direction). I tried a couple of Robax extra strength for muscle spasm yesterday, and it did not improve the vibration at all. I am a 38 year old female and I am starting to get freaked out. Does anyone have any ideas? Any input or anyone with similar symptoms?

Linda

lilc · 06-11-2005, 02:15 PM

I can absolutely relate! It is inescapable and just wears on me. Am in the process of getting some sort of diagnosis, but over the past 3 months it has sort of "morphed" into constant tingle in both arms and hands, and the back of my tongue. Wish I could offer more than empathy, but it certainly helped me to know that I wasn't the only vibrating woman out there! (Sounds exotic, doesn't it?) Hang in there. It gives entirely new meaning to the encouraging phrase, "keep your chin up"!

linda11867 · 06-11-2005, 02:32 PM

Hi Lilc,

Thanks for your reply. Sorry to hear you're vibrating too! As much fun as it sounds, its not!! haha....anyway, I do not know what to make of this....it's seriously worrying me. Do your vibrations happen in different areas? Can u describe them as best as u can? I know it's hard, because people generally don't seem to understand....they think i must mean twitch or something....I feel like someone is strumming a guitar inside me or something....do u have the amplified feeling when you look to the ground?

Thanks again for writing so quickly...

Linda

KelliD · 06-11-2005, 05:07 PM

Linda & Lilc - not that I am by any means happy that you are vibrating, but I am thankful to know I am not going crazy..I am not the only one who feels she is about to "rattle apart" from the inside-out. I don't have any answers for the vibration problem...I'lltake that up with my Neuro in July. As for pain, Advil. If Advil doesn't touch it, I add Amitriptyline nightly to help manage. This combo works well for me. Maybe for you, too?

I have occasional, intense pain in other "unmentionable" areas that I will leave unmentioned so as not to embarass the fellas on the Boards. Do any of you gals experience the same since being dx'd?

atrixiedix · 06-11-2005, 06:38 PM

KelliD,

I have had lots of pain in unmentionable places also. My tailbone itches constantly and it is not very attractive. I also have the Chin to the chest vibrations. My biggest problem now is that my eyesight is very wierd. I I see lots of lights whenever I move my eyes around. It is worse in dim light. The back of my eyes ache at times like I have strained them. I went to see the neuro about this on friday and he said be patient. I have not been dx'd yet they are calling it probable ms. This is not fun and I wish I could just forget about it all! But unfortunately my symptoms will not let me.

Dixie