Looking for ways to cope - Multiple Sclerosis Message Board

gingypinge3 · 06-13-2005, 09:50 AM

Hello everyone, I have been officially diagnosed with MS this past April. This all started in November of last year. I woke up one morning with horrible eye pain, later to find out(after seeing 2 different doctors) that I had optic neuritis. An MRI was done along with EMGS. That is when the diagnosis was given. Recently I had another MRI, only to discover I have more lesions(in less than 6mos). It seems to me I am continually having symptoms. I contantly have the numbness and tingling to both my arms and legs, but my biggest concern is my ability to consentrate and short term memery loss. I have somewhat adjusted to this with having to write everything down, however, this is a factor with my job. I don't always have the time to write down what is needed. I would greatly appreciate any input on how to cope with these changes or what other methods have been tried. Thank you

KelliD · 06-13-2005, 10:35 AM

Are you on any of the MS meds yet? Do all you can medically to help yourself. Aside from that, talk with your Neuro or GP about the best ways to treat your symptoms, adjust your diet, the effects of heat on MS and how to compensate, and get rest when your body says rest. Howzat for bossy? LOL!

I have times of "brain fog" and forget things I should be able to do by rote. I am not at all ashamed to write down lists of things I need to remember. This problem seems to ebb and flow in MS.

And as best as I understand...when demylenation (did I spell that right) occurs, your body WILL repair the damaged section of nerve until it cannot be repaired, at which time scarring occurs. It's like picking at a sore over and over until it will no longer heal, but leaves a scar. Sclerosis by definition is scarring...so if you have more lesions appearing in just a short time, you're having an exacerbation. DO all you can to help your body repair itself. I am not implying that this is a "cure-all," but simply a "help."

FYI...I am using Avonex (just over a year now). My last MRI in February showed no new lesions..and the old ones were no longer active. Was Avonex resonsible? I don't know and neither does medical science, but I would rather be proactive than just take my chances, you know?

Stay in touch on the boards...ask anything you need to so we can help!

Lisa_P · 06-13-2005, 11:22 AM

I've been thinking about getting one of those programs that type what you say because I seem to "lose" the thought before my fingers can catch up.

marion06095 · 06-13-2005, 11:52 AM

Have you considered using one of those little tape recorders? You could talk into that, and have the recording to remind yourself. Hope this helps.

Lisa_P · 06-13-2005, 12:47 PM

They have them on keychains I think...