Guess what? - More tests - Multiple Sclerosis Message Board

lilc · 06-16-2005, 01:14 PM

Had neuro appt today, scheduled for EEG and EMG. Neuro looked at MRI and cancelled those, did visual EP instead. In 3 weeks I have the other 2 EPs and the grand finale in 4 weeks, the wildly popular Lumbar Puncture!!! We have moved from "I don't think it is MS" to "possible MS". I do like my neurologist, she is very open, we discuss things, and I do appreciate her canceling the EMG which she said was very expensive and somewhat "tortuous"! She didn't tell me THAT when she ordered it -- lol! She claims she is very good at LPs and will give me something to calm me, as that is the test I most dread.
She gave me a Rx for neurontin, will have to read up on that, but she thinks it will help the tingle, numbness and L'Hermittes.
She also told me don't panic and stay off the internet. What she doesn't yet understand is that I find COMFORT on this board. It is BECAUSE OF THIS BOARD that I am absolutely not panicky! I understand completely that "possible MS" is a long way from "conclusively MS", and humbly request permission to continue to share my journey with you all, with deepest gratitude.

baddoey · 06-16-2005, 01:37 PM

my neuro told me to stay off the internet as well - whatever. it is human nature to try and find out what is going on with your body, to search for answers and find similiar folks out there that can empathize and give support and understanding. Doctors do what they can, but quite often I have found that they have to separate themselves emotionally from the situation - esp when you are talking about MS bc there is no cure. .

marion06095 · 06-16-2005, 01:51 PM

I think that people who have never done much with the Internet don’t understand what a people-to-people place it is. It is, of course, a place where you can look up medical worst-case scenarios, but it is also a place where you can talk to people who have been where you are. Unless your doctor has MS, even she can’t do that. Perhaps if your doctor visited us all here, and saw what a caring place it is, she might actually recommend it to her patients.

KelliD · 06-16-2005, 02:03 PM

Hey Lilc....I'm smiling at your neuro's order to stay off the net. My internist, "Dr. Pit Bull," <grin> told me TO get on the net, research EVERYTHING...that increasing my knowledge would not only help ME, but it would help her because I could begin to ask appropriate questions and better describe my symptoms.

I like my neuro...he mostly just grunts unless I push him into conversation which - being in radio - I simply MUST! ha!

Don't stop searching the net...ever. Don't you DARE stop sharing your journey with us!! Encouragement is a two way street. It helps to give and get it!

And as for that lumbar puncture...well, I've shared that my sister has MS and when she had an LP (simply called a SPINAL TAP back in the day) it was quite an ordeal. So I was TERRIFIED. But then the doc administering the test explained what he would be doing...he numbed the spot where I was to be poked...and it was honestly no worse than getting a flu shot. So hang in there!! You've got a big calling on your life, you know. You will be able to look back on all of this one day and call it "a bump in the road." I'm cheering for you!

kchs1 · 06-16-2005, 02:38 PM

Why Is Ur Neurologist Taking So Long To Find Out Whats Going On?
My Dr Sent Me To A Neurologists Right Away...being June 2nd, 2005. By Monday June 6th 2005, I Was Admitted To The Hospital. All Sorts Of Tests And More Tests Were Done. By 7.30 P.m On June 9th I Was Diagnosed And Started Immediately On Iv Steriods.

I Was Diagnosed A Week Ago. Still Trying To Understand. I Mean I Was Lying In The Hospital For 7 Days With Iv Lines And Getting Shots 3 Times A Day... But I Can Actually Lift My Legs Now. So I Guess Im Lucky They Worked Quick. I Can Actually Form A Lil Baby Step. I Couldn't For The Past Couple Months It Was A Drag Not A Step.

I'm 25 And Went From Over-over Active To None Active.

Those Of U With No Pain, Say Thank God Because The Pain Is Excrutiating.

Trying To Cope And Staying Positive... Lets Keep Hope Alive.