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Old 07-14-2005, 05:51 PM   #1
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anyone whose had optic neuritis...

could you tell me what you experienced? I realize some symptoms vary but I think I have it which leads to my conviction of possible MS even though MRIs are clear. My left eye vision is almost completly clouded. I would say blurry but its more of trying to look through a big cloud and only seeind part of the picture. I also do have some pain when looking from side to side. I made an eye doctors appt. because this happened almost exactly 2 years ago. The date of my sons birthday party, I woke up and couldnt see out of 1 eye. The cloudiness was alittle worse than it is this time. By the time I could get in to the office for an appt. it had cleared up. So it lasted alittle over a month. This time I made sure I was seen right away. They did the usual vision tests, reading the chart, looking in my eyes, dialating them etc. She said she didnt see anything. She is having me take a visual fields test and see and specialists... not sure the title but neuro something. At the end of the exam she mentioned possible optic neuritis and I asked the link that had to MS. She asked if I had any reason to suspect that I had MS and I told her the tests I had been going through and the symptoms I have and the fact that my brother has it. I hope the specialist can clear this up and figure out what is going on. All these symptoms and no answers really is discouraging. But has anyone had similar symtoms wit the clouded vision? thank you

 
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Old 07-14-2005, 06:10 PM   #2
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Re: anyone whose had optic neuritis...

I just looked up the visual field test I noted in the last post. I wanted to see what it entailed. There was a practice one online...

http://www.testvision.org/test2.swf

if any of you go to it, take the test. I tested my left eye, the one I am having trouble with and I could not see the black dot on the screen. All I saw was white. As much as I want my vision to clear, I hope they can see that something really is wrong. My test and next appt isnt for 9 more days.

Well just wanted to share that website... thanks

 
Old 07-15-2005, 07:16 AM   #3
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Re: anyone whose had optic neuritis...

Quote:
Originally Posted by curious11
I made an eye doctors appt. By the time I could get in to the office for an appt. it had cleared up. So it lasted alittle over a month. This time I made sure I was seen right away. They did the usual vision tests, reading the chart, looking in my eyes, dialating them etc. She said she didnt see anything. She is having me take a visual fields test and see and specialists... not sure the title but neuro something. At the end of the exam she mentioned possible optic neuritis and I asked the link that had to MS. She asked if I had any reason to suspect that I had MS and I told her the tests I had been going through and the symptoms I have and the fact that my brother has it. I hope the specialist can clear this up and figure out what is going on. All these symptoms and no answers really is discouraging.
Don't mess around with a regular eye doctor. Go see a neuro-ophthomalogist (sp?) They have ones who specialize in just MS.

 
Old 07-15-2005, 08:00 AM   #4
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Re: anyone whose had optic neuritis...

I think thats what im going to. I couldnt remember what the doctor said, but it was neuro something... and opthamologist would make sense. So yes, I have an appt. with one in a week. And I have a visual fields test. Also I have my follow up with the neurologist a few days before and the evoked potential test. What role does vision play in that test because I clearly cant see out of my left eye. Would that throw off the results as far as how ny nerves respond to impulses? Im really not sure what that test entails so I am just wondering. Thanks

 
Old 07-15-2005, 09:31 AM   #5
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Re: anyone whose had optic neuritis...

Quote:
Originally Posted by curious11
What role does vision play in that test because I clearly cant see out of my left eye. Would that throw off the results as far as how ny nerves respond to impulses? Im really not sure what that test entails so I am just wondering. Thanks
I haven't had a visual evoked response test in awhile, but it doesn't really measure vision. It is reaction time that your eyes send messages to your brain. Basically, it is a TV screen with black and white boxes. The boxes switch places and patterns. They stick electrodes to your head to measure they nerve impulses between your eyes and your brain. Easy and painless. You will just probably want to wash your hair after because they put goo to stick the electrodes on.

 
Old 07-15-2005, 10:00 AM   #6
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Re: anyone whose had optic neuritis...

I've had optic neuritis three times and each episode manifested a little differently, though EACH had cloudy vision for me. I can't remember having pain with moving my eyes. The first time was like the edges of vision was foggy (the center was clear); the second time was like a white cloud in the center of my vision -- eventually encompassed the whole field-- and it was accompanied by extreme pain from the back of my head to my eye. That was diagnosed by a regular opthalmologist as optic neuritis, but beyond some steroids, there was no further treatment. The third time was without pain, but had the cloudiness come on gradually in one or two days (When driving, I initally thought my defrost wasn't working). I went to the ER, got a referral to an opthalmogist, who mentioned an unusual "paleness" on my optic nerves. He then referred me to a neur-op. The neur-op got me an MRI and referred me to a neurologist who ordered a lumbar puncture and, FINALLY, made a diagnosis of MS. This was all 13 years after the inital bout of ON! They need three different indicators before they can diagnose MS because, many times, MS is a diagnosis of default-- everything else gets ruled out.

Last edited by Lisa_P; 07-15-2005 at 10:01 AM.

 
Old 07-15-2005, 06:57 PM   #7
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Re: anyone whose had optic neuritis...

I'm having VEP's in August.
Quote:
The boxes switch places and patterns switch places.
OOOOh, boy. I can just see me getting sick...either nauseated or headachy. For some reason things like this really bother me lately and I've got to close my eyes.

I just did the visual field test as well, and failed pretty badly on the left eye also.

Lisa, I too have had the stabbing/shooting pain through the back of my head and out one eye. It was the oddest thing and pretty painful. It felt as though someone had shot me in the back of the head and "it" exploded out my eye...sorrry, pretty gross. Thankfully, it only lasted but a few seconds.

My opthamologist (not neuro) said that the optic nerve bulb looked fine, from what he could see, but there was a problem with the foveal reflex that might be an indication of macular degeneration.

Lisa

Last edited by revlcb; 07-15-2005 at 06:59 PM.

 
Old 07-17-2005, 02:16 AM   #8
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Re: anyone whose had optic neuritis...

It literally felt like a knife in my head and it was pretty constant for about a week.

 
Old 07-18-2005, 01:23 PM   #9
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Re: anyone whose had optic neuritis...

I am 35 and was just diagnosed on Friday with optic neuritis. My symptoms started 2 weeks ago by waking up to patches of gray in my left eye with central vision missing! I have gained a little vision back, but it's blurry and in black and white only!!!
I have been told it will improve in the next 2-3 months, so I am just trying to live with it. I have been googling the diagnosis and have been rather frightened by its associations with MS.
Thanks for letting me vent...

 
Old 10-10-2009, 07:27 PM   #10
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Re: anyone whose had optic neuritis...

Hi there
My optic neuritis started with just a bruised feeling around the back of my ey, a few short sharp pains, and then I noticed that my left pupil was extremely dilated compared to the right one, vision blurry in this eye at times of dilation.
I think I have not healed from it completely as (hope this does not sound weird) if I look at my left pupil first thing in the morning and it is overly dilated I have a bad day with other symptoms (tremors, spasms, numbness etc) but if it is reasonably normal I have a good day with other symptoms. Is that really strange?
I have not been diagnosed with MS, MRI clear (or as doctor said, "there is nothing overly concerning in the report") however have many symptoms and was diagnosed with Optic neuritis.
The waiting game for diagnoses is really really frustrating so anyone on this board that is going through the process of ruling out other causes I completely empathise with you!!!!

 
Old 10-11-2009, 05:17 AM   #11
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Re: anyone whose had optic neuritis...

Shae, just wanted to point out that you are responding to posts which are 4 years old. Probably, no one will respond from previous posts. I think your new post, will probably get you all the answers you are looking for....Ill talk to you there.
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Old 10-11-2009, 07:56 AM   #12
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Re: anyone whose had optic neuritis...

It took 13 years for my MS to be diagnosed-- after another bout of ON! I have since had two more instances and my vision is permanently impaired, though I can still drive and thread a needle (knock on wood)!

 
Old 10-12-2009, 08:33 AM   #13
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Re: anyone whose had optic neuritis...

I've had numerous field of vision tests and never had electrodes hooked to my head... I'm not sure what test that is but a field of vision just flashes dots in front of you and you hit the button every time you see the dot... if you miss the dots in a certain area, that is how they determine the blind spot and the size of it. Also I never go to an optician, since you are suspecting ms, and if you are diagnosed there are too many things associated with MS that can go wrong with your eyes so make all appts with the opthamologist, even if you are just getting eye glasses. Opticians are just a waste of time and money. Most people always get ON, but I have also had where one eye just sort of floated around on it's own for a few weeks. It drove my husband nuts, I'm sure glad that went away. I can't remember what they called it, but they attributed it to MS too.

 
Old 10-12-2009, 10:11 AM   #14
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Re: anyone whose had optic neuritis...

Since you guys restarted this thead:
The test you descibe is the VEP or visual Evoked Potential- thats the one where you click the button when you see the white light. It measures peripheral sight...being able to see things off to the side, and not directly in front of you.
The EMG is the one which attaches electrodes to your brain and measures response time from the time your eyes see an image until your brain pocesses it...
Hope this helps.
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Old 10-17-2009, 06:49 PM   #15
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Re: anyone whose had optic neuritis...

Hello there, and yes I have had Optic Neuritis, and how can one tell for sure, but through a skilled eye doctor. I know that mine began with pain in the eye, and a gradual blind spot which grew to completely block out the vision in one eye. This was over about a weeks time, and the blindness lasted about 5 weeks, and gradually cleared up. I was put on steroids immediately, .. MY big problem.. is that I have had MS for 33 years.. when I had the Optic N..... I complained of the pain. AT that time.. which was in 1981 I was told.. Don't be silly, there is no pain with MS......
I don't know about you, but this affected me so much, because the pain stayed, but.. my doctors denied me the comfort of "acknowledging" the pain, but I was forced to 'keep it to myself'..................Years later, they finally decided MS Optic Neuritis had pain. So My advice is to go to a good Eye Doctor, who is understanding, and cares.

 
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