I've just recently, along with other symptoms that I have previously discussed with you, have started having my fingers twitch uncontrollably. Is this another sign of MS? I feel like I am a puppet and someone is pulling the strings in my arm to make my fingers move and twitch. Thanks for your responses to this matter!!!!
Hi Michelle...I just went to the neuro for that very thing last week. It was as if my right arm, from the elbow down to my fingertips, belonged to someone else because I had no control over what was happening.
The Neuro told me that sometimes MSers have a "short circuit" and this sort of thing happens, but it does not mean that we are in full exacerbation...so that was good news, sort of! LOL!
I haven't had the twitching in my fingers but my right knee twitches. It is very annoying but not painful. I really don't worry about things that are not painful but all these other crazy things sure are annoying. I hope you are doing okay.
Thank you both for your responses. I am glad that you are feeling fine KelliD. As for me, I'm not feeling so good. I went today for a Visual Evoked Potential Test, Auditory Potential Test, bloodwork, and MRI with and without contrast. Like I had told you, I have been having problems with twitching in my fingers, now it is happening in my toes. I am also having problems with pain in my joints of my fingers and toes. As stated in another post, I am also having trouble with my fingers and toes turning blue. My friend that has MS also has this problem because she has Raynauds Disease too. I have just started noticing that my hands can be two different colors. One looks normal while the other one looks alot darker. The technician that did the Evoked Potential Test today told me that I needed to let my neuro know about these new symptoms and she made me another appointment with him. Do any of you have these problems also? I'm really tired of going through this. I want something to show up in these test so they know what to do for me. I don't want something to be wrong, but I know something is not right, so figure it out. And please don't tell me that I am DEPRESSED!!!!! I am starting to get depressed because these doctors don't seem to know what they are doing. I am nobody's guinea pig!!!! What did they go to school for!!!! Sorry, I am just a little upset with the medical field. Hope you are both doing fine and you will be in my prayers.
I am sorry that I don't have any answers to your questions. I haven't been researching MS for very long, and I don't have any of the symptoms that you have. What I did want to do is give you a biiiiiiig hug!
(((( shellymay ))))
Keep asking questions. I am sure someone here will be able to answer them.
WOW!!!! That felt good and boy did I need that!!!! Thank you for reply!! Do you have MS? I have not been diagnosed with it yet, but I feel sure that I do have it!! Thank you again and I would like to give you a hug back!!!
Thanks again!! You have surely brightened my day!! You will be in my prayers.
I am in that twilight zone called “probable MS.” I have an appointment with an MS specialist in mid August. I am hoping he’ll tell me one way or the other. My instincts tell me that I do have MS, but wouldn’t it be nice to find that I don’t? If I do have MS, it’ll be a bit of vindication for me because it’ll mean that I have not been imagining all these symptoms. If it turns out that I don’t have MS, I guess I’ll just have to settle for my former diagnosis of “fat and lazy.”
It sounds like you are where I am. It is so hard to get diagnosed with something. You know what you are experiencing, so why can't they tell you what is wrong. I'm sure that you are not "fat and lazy", and I too hope that you are not diagnosed with MS, but I'm sure that you want to know what is going on. What are your symptoms? Thanks for talking with me, it sure does help to talk with other people with the same symptoms you are having.
My symptoms? Where do I begin? I believe I can trace exacerbations all the way back to my grammar school years. Most recently, though, I had lost the vision in the center of my left eye field of vision for around two months. This has improved, but it has not totally gone away. I have hearing loss (not total) in my left ear, along with a rip-roaring case of Tinnitus. I have double vision all the time now. I get what I call “eyeball headaches,” mostly on the right side along with shooting pains in my head. Looking from side to side is also painful, and if I move my eyes from side to side in the dark, I see all sorts of cool fireworks. Over my lifetime (I am 58), I have had probably 20 or so episodes where I have had searing, excruciating pain (arm, leg, back, neck, shoulder, not all at the same time, though), and the doctors found no medical explanation. Several times I was in too much pain to walk. The pain would always eventually go away, and since no doctor could find a source, I learned to wait it out (like I had a choice?). Lately I have had tremors in my hands and my jaw, and I have lots of muscle cramps, muscle spasms, and what I call “muscle herkey jerkeys.” Since 2001, I have had totally debilitating muscle fatigue. I often have to lie down just because my neck isn’t strong enough to hold up my head. When I brush my teeth, I have to take a break half way through because I can’t hold my arm up to my mouth for very long. When I eat something chewy, like a bagel, I have to take small bites because my jaw gets too tired to chew a normal bite. I am also dizzy all the time, and because of that, along with my muscle fatiigue, I walk with a rolling walker. I can only walk a hundred feet or so, and then I have to sit down. I have had all these symptoms for all these years, and until I lost the vision in my left eye, no doctor would take my complaints seriously. To be honest, I had given up on the medical profession. It was always, “maybe it’s a pinched nerve,” or “maybe if you lost some weight,” or “maybe you don’t get enough sleep, or enough exercise”. I even had one physical therapist suggest that I should get rid of the rolling walker, and take some nice long walks. Sigh.
I really didn’t mean to go on so. I didn’t realize that I had all that bottled up inside! Wheeew! It feels good to get it out!
There now, Michelle, aren’t you glad you asked? I know I am!
Last edited by marion06095; 07-20-2005 at 12:04 AM.