I've been self injecting Avonex once a week since Oct 2004 and it is going fine. But every Sat night before I do it, I get bummed. I certainly don't look forward to doing it. I wonder if there will ever be a day where we won't have to do the shots. ??
Maybe I have good news for you. I am newly diagnosed and have been told I am eligible for 3 different trials. One of them is a pill! I haven't read all of the trial info yet, and it doesn't even start for another few months but I wanted to let you know that someone out there is working on a pill for MS patients.
Hi!! Hang in there! I was getting bummed every "shot" night too until I started reciting the Lord's Prayer while injecting. It really worked. Sounds silly, but I guess I would concentrate more on the words than the pain. Then I would take 10 mg of Prednisone and a tylenol pm....Felt great the next day! It took me a long time to figure out that that worked for me. Best of luck to you!
Thanks for the support.
Except for injecting once a week, I wouldn't even remember that I have MS. Very mild, only tingling in feet. I realize I am very lucky. The injecting doesn't even hurt much, I just hate doing it.
Marion, I ask myself the same thing too. I hardly had any side effects right after I first started, then months later, they started up. They were hard to manage, but I think I got it. My doc prescribed Voltaren and told me to take one, well, I've been taking 2 then going to sleep and I am able to sleep without any discomfort. What are yours like?
I admire you for being able to self inject Avonex. My husband gives my shot. I don't think I could ever do it myself. I've never been "afraid" of shots (until I began Avonex). Sometimes it doesn't hurt, sometimes it does, sometimes the down day is very mild, sometimes it's tough. You never know
I know what you mean, it can be a bummer...but then I think about all the people that were diagnosed before these medications were even available. It wasn't that long ago, mid-90's. I inject daily (copaxone) and i don't like it and it's a drag some nights but i get thru it and i'm thankful we have an option! Good luck and keep your spirits high!
i self inject every 2nd day and have done for almost 2 yeas now........
i was supplied with an autojet machine from my neuro when she first started me on betasoren.........all i do is load it and press the button....its easy , i don't think i could inject myself if i had to jab the needle in ..........i still get sick of doing it but if it will slow things down ...why not
It is just so surreal to give myself a shot. I remember when the nurse came to train me, I surprised her when I did it. I thought she was going to do it, but I wanted to learn how. I just did it. Surprised everyone, including myself. I live by myself so there isn't anyone else. I didn't want to have to depend on anyone else either. I have a follow up MRI in August. My neuro said to call a few days after and if nothing has changed, he'll see me in 6 mos. What if something has changed, then what?
My Avonex supplies arrived today and am very anxious about starting this whole thing. I want my husband to learn to give the shots too, just in case I can't! I'm very nervous about it. How long does it take before you feel the effects?
Beach, do you mean the effects of the shot itself or from having the Avonex in your body? I know my tingling in my feet has subsided a lot. I have some but not as much. Side effect-wise- still have them. Sat night, I woke up freezing yet my bedclothes were soaking wet. That is pretty much the extent of my side effects now. I guess I can live with them.