hi. i was just wondering if anyone could help me. my mum got diagnosed with ms when i was six moths old and now she's been told by the doctors than shes not got long and to be honest even though i know what my mums been through i still dont actually know what ms is.... could someone please help me.
hi. she doesn't have any other medical problems that i know of. she is on about 17 different tablets a day though. aswell as having a feeding tube fitted through her stomach. has this happened to anyone else or is it just the type of ms she has?
I have secondary progressive......and do expect to have a normal long life and other than vitamins, I don't take any other tablets. The meds are administered by injection. Check out the pill bottles and see what she's taking.
I would check out her meds, too. 17 is a lot and one has to wonder if there are some drug interactions going on. Does she get them all from the same pharmacy? Have the pharmacist carefully look at the big picture if you can.
Yes, I've heard of people with MS on a feeding tube because they can't swallow. MS affects people so differently. Secondary progressive in one person might look very different in another. There are so many variables in MS.
It's very hard for me to say this (isn't denial a great coping mechanism?), but I believe my daughter's life will be shortened by her MS. She's already had a heart attack and needs to have a colostomy and she's only 25. She, too, can't swallow at times and loses a scary amount of weight when that happens.
But the future is not in our hands. We must enjoy each day right now. I hope that even with your mother's declining condition you are getting to enjoy her company every day.
My father has had MS for a long time and he was recently given six months to live. He keeps getting pnemonia because he has trouble swallowing and the food gets in his lungs. His hospice nurse told me that he also had a very weak imune system and that if he were to get even a regular cold, he would die from it. In most cases MS does not effect life expectancy, but in some instances it can be fatal.