please help.... - Multiple Sclerosis Message Board

tiarah · 07-27-2005, 04:19 PM

I haven't been officially diagnosed yet, my GP feels that I have MS, have my appointment with neuro on the 4th. I am so exhausted and today I feel absolutely horrible. My whole body feels as if I have been hit by a truck. Yesterday it was coming on, today worse. Last night my husband massaged my feet and my thighs and I ended up falling asleep very early last night. Today I feel absolutely horrible where I actually had to miss my daughters basketball game, which I NEVER EVER do. I dont know what I can do for this right now. Does anyone have any suggestions? How long will I go with feeling like this. Will this come and go on it's own? Please, please, any info I would appreciate. I have tried to take Ibuprofen for the aches in my legs and arms but its not helping.

lisamarie11 · 07-27-2005, 04:34 PM

Hi tiarah,

I am sooo sorry to hear about your discomfort!! I unfortunately have no advice for assisting with the pain that you are experiencing except to speak with your neuro...they are usually able to offer prescriptions that can help alleviate some of your pain.

The only advice that I can offer is (since I am unsure of where you live) to be sure that you STAY OUT of the heat that most of us are having in the U.S.!!!! The heat will DEFINATELY make all of your symptoms (with MS) a million times worse!! This I know first hand!!

I have been out of work now for approx. 1 month due to a terrible relapse and steroid treatments most likely brought on by the extreme heat here in the northeast!!!! YAY...this disease is fun...there is a surprise around every corner!

You will be in my thoughts!!

I hope that you receive some releif from your pain and fatigue soon!!! Please keep us posted on the outcome of your neuro appt. on the 4th!!!!

Lisa

tiarah · 07-27-2005, 04:41 PM

Hi Lisa,
thanks for the quick response. I live in NY and today has been an absolutely horrible day with heat. I am inside with 3 air conditioners working. Perhaps it was because of yesterday. When I was outside at my son's basketball game i was in that heat and at one point I felt very lightheaded and it seemed like things got dark in my eyes for a few seconds. If that makes any sense. I was able to see but it seemed to dim a bit, like if you get out of a hot tub, again, if you know what I mean. I will definitely keep you posted as to my appointment. Thanks for thinking of me. I just wish there was something that I could do in the meantime. Oh well, such is life.

KelliD · 07-27-2005, 06:35 PM

Ooooh, Tiarah.....we just got through the heat wave in Indiana that you are now getting in New York. YES the heat can do everything you are experiencing, including that dimmed vision.

Try to stay cool, stay well hydrated. Advil has worked very well for me, though I have a couple of stronger prescription painkillers to use if the pain gets bad enough. So far, I have just stubbornly toughed it out.

Give your body a chance to just rest for a few days. What you may have bounced from in a day before all ofthis kicked in can take several days if you're experiencing flares of MS.

I have also found gentle stretching and walking help when my legs ache with MS.

My neuro gave me some simple but powerful-good advice when I was dx'd...he said my body would tell me when it needs to rest...and to LISTEN to it.

djpihavems · 07-28-2005, 09:02 AM

Quote:

Originally Posted by tiarah

like if you get out of a hot tub, again,

Please tell me you don't go in hot tubs! That is how they used to diagnose people with MS. Put them in a tub of super hot water and see if the symptoms got worse. No hot tubs, no steam rooms, no overheating at all.

No wonder you feel like crap. I'm in the NY area too, and it has been disgusting here lately.