Dr's stopped counting at 100 MS lesions
My dear friend has been diagnosed with "the most severe case of MS" her physician had seen. In February, she had a feeling of something just not feeling right... and in May, she went to bed "normal" and awoke the next morning unable to move, talk, control bodily functions etc. After blood work, spinal taps, CT, X-Rays, and Finally an MRI, they made the diagnosis of MS. The MRI image displayed so many lesions no one could believe what they were seeing.
Her Neurologist has started her on an 80mg dose of Pregnizone... to "shock her system" and they will slowly reduce that, and begin MS treatment.
Now, 2 months post-diagnosis, she is back home, can walk ONLY with the assistance of a walker and for short distances. Her right side is VERY weak... she cannot lift here Right leg more than 2", and does not have enough strength to lift her 1yr old son. She cannot cut a piece of meat, has great difficulty holding a glass/cup. She's unable to bathe herself, and cannot do any types of "housework" dishes/vaccuum/etc. (The good side of the diagnosis, haha) Her spirits seem to be good so far, she's no longer in denial.. but has yet to get upset about it either.. she's angry... she's mad that no one can tell her WHY she got this disease or what may happen in her future. I guess thats one of the most frustrating parts of this disease.
At this point, we're trying to figure out what may be the course of treatment, or if she will even have any sort of "normal" life again. My friend is only 39 years old, and has 4 children. There is no MS in her family history.
Has anyone seen or heard of a case of MS with this many lesions? What can we expect? I know there is a lot of research with different drugs, and even stem cell research.. but we're just trying to figure out what MAY happen from here. Her neurologist is contacting the head of Neurology, specializing in MS in Hamilton, ON (We are in ON, Canada), to get his opinions on course of treatment.
If anyone could give advice or information, it would be greatly appreciated.