Hi, I am new to this message board. I'm desperately looking for answers to questions regarding possible MS. I have had odd symptoms of something for years. Always come and goes, but I don't pursue much in way of diagnosis after initial tests untill recently. All of a sudden my body does't seem to want to cooperate at all anymore. 2 years ago I got an mri, plus some other tests for sesures, but those went away, and I didn't follow up as to the cause. On the Mri back then I had one lesion, of which I was told doesn't really mean anything. Other probles seem to come and go, but the past 6 months they get worse, still come and go but they are worse everytime they come, and I can't get back to normal. I always felt like this stuff must be in my head and that I'm just a hypochondriac but now I know there has too be something wrong because after these attacks of things my normal is worse and worse. Falling, dizzy ,nasueus, numbness tingling electric fire-like shoks, pain vision problems(today I can't even see out of my left eye)well the list goes on and on. .... I'm aware that almost all of these symptoms indicate possible MS. I had another MRi about 3 months ago, and it still showed only the same one lesion... So maybee it isn't MS, I don't know, but I have such poor quality of life now and am going crazy waiting for my neuro appointment. its just in two more weeks, but I really need to talk to someone because I have been waiting for this appointment scince the MRi 3 months ago, and everything has been going downhill scince then. Can you have MS with just one lesion? Also my husband is really scared of how much memory probles I have, and I can't talk without stuttering anymore. He says he hates watching me barely understand anything knew or complex unless I can read it and that I'm starting to act like a person with alzheimers. Scary!!!! help anyone.
I just can't believe it takes that long to get into a **** Dr.! I had to wait 3 weeks this last exaxerbation and it felt like months! When I was first dx, long time age, it seems like I only had one lesion, but they have to other tests, too to confirm ms. You're right about your symptoms sounding like ms, but be careful not to assume anything. As I'm sure you know, there are hundreds (probably more) of autoimmune disorders which can mimick ms. Hang in there. Keeping lots of post-its on hand is good for jogging memory. Sorry about your eyes. Mine always starts there and it's awful!!! I haven't driven since June 29th, but they're starting to come back Can't wait til I can drive myself to get my own groceries, etc. Take care. Sue
Thank you for writing back. It's been taking this long to see the nuero doc because I live out in the boodox of nowhere, so there aren't many choices, and my GP is adamant that I see this one specific doc. She says he's the best in the state and his patient waiting list is a mile long. On top of that he only comes to our area 2 times a week. Since its been this long I will tough it out at this point, but I may get insistant to have a referral for a doc that is more easily accesable. I'm worried though that this guy is going to try to blame alot on depression, even though I didn't have it until about a month ago. The only reason I'm getting this way is because of how much my way of life has gone down the tubes. I havn't been able to drive from blurred vision(not as bad as recently) and dizzy spells in 9 months, and living in the country used to be a joy until it seems like a prison. My little girl is autistic, and my husband works 60 hr weeks lately, and this wasn't such a problem when I could get out and enjoy civilization at my lesiure, but now I'm completely cut off and scared that I'm not able to give her all the attention she requires. I just keep falling, so I'm also scared to go out of the house and take hikes with her Like I used to. Sometimes I feel like just running into a mac truck ,but I hope that the doc cand give me some answers, and help. You said your eyesight goes too but you can get it back. I didn't know that it can come back, and now that gives me some hope! If i could just drive again that would help so much. Thank you again for writing back!