Does anyone experience hot and cold patches on verious parts of there skin. I feel at times as if there is ice on my skin in patches and then I feel like I am sun burned in small patches also. I also feel like I am being poked by a needle at random times and in different places, I have pain right behind my eyes that is driving me crazy. Help! I am having fun! Anyone get these symptoms?
I have a dx of probable MS, I am playing the waiting game. My Neuro gave me a referal to a MS Specialist, so I have to wait untill Oct. 12, to even get into him. In the mean time I am trying to destress my life as much as I can being a single Mom of three, and working full time. I have made a job change for less hour and less pay so it is going to be rough, but I feel it is the best for my family right now. Definately less stress!! How about you when were you diagnosed?
Hi Dixie..I was dx'd in January 2004. I am also a single mom with a 7 year old son.
In retrospect..after the dx..I realized I had been having symptoms of MS for YEARS. Anyway, the symptoms that launched a months-long odyssey of doctor visits and tests and appointments with a myriad of specialists, began in May of 2003. When all was said and done and the symptoms finally relented, I had experienced a 9-month exacerbation.
My internist was the first to see the brain scans and told me - as she tried not to cry- that it "appeared" I had a fatal brain disease - I was dying. Well heck! That just didn't "feel" right in my spirit and I was so insistent that she was wrong about that that she finally asked, "Well, what do YOU think is wrong?" Ha! I told that after listening to her preach for months about MS and researching it that I did indeed believe that was the problem. But as I said..the problems began in earnest in may..I was dx'd in January...I know the aggravation of playing the waiting game. But I did learn a lot about myself during that time..and I believe I am stronger emotionally and spiritually for the experience (NOT that I would EVER want to REPEAT it, mind you!)
De-stressing your life as much as possible is an excellent move. Stress really agitates any neurological situation. Hang in there, gal!
Hi Dixie,
Yep, have all the same feelings. I hate the sharp pin feelings...it doesn't happen all the time but when it does I yelp loudly usually as it takes me by suprise. I was dx in 97. I too am a single mum.
The bright side is it's not continuous pain.
I too agree that de-stressing your life as much as possible is one of the most important things for us.
Keep well.
Melody
I, too, have had the hot and cold feelings. My hands would feel like ice, but when someone touched them, they said they didn't feel cold at all. It's just our nervous systems that are all screwed up. It's a very bizarre feeling. Now that I'm on heavy duty steroids and hopefully coming out of my exacerbation, I feel like my face is on fire and my feet sweat? Strange what large doses of prednisone can do to you?? Hang in there. Sue
Thank you so much for your responses, it is so nice to have people to talk to that have the same experiences. How do you ladies destress your lives and being single moms?
