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Old 08-05-2005, 02:11 PM   #1
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tiarah HB User
Here goes.........

So, had my appointment with the neurologist, took my MRI scans to him plus report from teh radiologist which stated "small white matter changes with demyelination". Went through a very detailed exam, past medical history, family history, you know, the whole 9 yards. Did a physical exam, explained all of my symptoms. This was with the neurologists assistant, nurse practitioner, whatever. THen the neurologist comes in, has me walk on my heels, walk heel to toe, looks and me and says "your MRI is unimpressionable. The scans are very high tech scans but the radiologist is overzealous". THere is NOTHING wrong with my scans. Well, I asked "what about the symptoms" and he says, come back in 6 months perhaps we will repeat the MRI. He is an MS specialist. So, needless to say I was ******, wanted to leave. THe nurse practitioner sits down with me and tells me that she wants to send me for some blood work and gave me a script for at least 5 different things written on it. She says she wants to check something with my muscles. For the fatigue she wants to try me on Amantidine but not until after the blood tests and then when I go through my bouts of fatigue and leg pains to call them so that they can see me then and perhaps do another MRI during these episodes. So, here is where I sit with all of this. Falling through the cracks and ready to say to hell with it all. I am 38 and have been feeling this way for 5 years, what's another 40 years of it. I am so ******. This is the reason why I never wanted to go to the doctors in the first place because when you explain how you feel they look at you like you have 6 heads. So for 5 years i haven't said to much about how I have been feeling. Oh I don't know. Sorry for the ranting and raving but I am dissapointed, ******, all teh emotions that you all probably know I am going through. I will just keep going on with it. I have been dealing with it for so long now I will be fine. Thanks for listening guys.

 
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Old 08-05-2005, 02:36 PM   #2
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shellymay HB User
Re: Here goes.........

tiarah,

WOW!!! You sound just like me. I am so tired of hearing that my test don't show anything that they are all negative. Then the doctor looks at me as if I am crazy!! Why don't they just listen to us, we are not making these symptoms up. Who really WANTS to be sick? I'm sorry that you are going through what you are. I will pray for you!! I don't know what this medical profession is coming to. They don't seem to know their *** from a hole in the ground and that is SCARY!! If we can send people to the moon and work on finding cures for other diseases, then why can't they come up with a simple test to tell whether or not you have MS!! Someone needs to invent a machine, like with cars, where they plug you up to this machine and it shoots out what is wrong with you. I'm sure this machine could tell us more than these doctors do and probably have a better personality. I know exactly what you are going through!!! But, like me, don't stop keep pursuing, somebody will help out!! I have to think positive and put my faith in the Lord!! Good luck to you!!

Michelle

 
Old 08-05-2005, 09:38 PM   #3
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cshellz HB User
Re: Here goes.........

Hi Tiarah...
I am so sorry to hear you had such a rough day! OMG--this sounds like my last visit with a neuro, some 5+ yrs ago!! I haven't been back since: Been fortunate that the probs have been minor up till last few monthes. Now dh is trying to get me to go get checked to see if I can find answers--guess he's tired of my complaining not feeling good .
I am afraid it will turn out like your visit--or he'll give me meds "..to try, if you're really... sick then you'll see a difference"---ahem, !REALLY?! SICK.
Though--don't know how badly I want "THE" dx.---but soon I may really want the meds--if they'd help.
I hope that you can find some answers and relief I know how frustrating it can be.....now my regular dr. has mentioned that maybe "my hormones are the problem" (I'm 47) or the car accident I was in last year may be the culprit (I had these probs before then! ). Hard to find a doc who'll listen...I wish you the best. Keep us posted--take care
With hugs and good wishes--energy....

 
Old 08-06-2005, 02:38 AM   #4
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marion06095 HB User
Re: Here goes.........

Your experience at the doctor’s office sounds a lot like most of my doctor visits over the last 20 years. It gets to where you give up complaining about anything. For me, they always added insult to injury by making sure I got their brochure about diet and exercise before I left the office. Now, all of a sudden, they decide, “Wow, Marion probably has had MS all along,” to which I now reply, “Duuuuuuh!!!!”.

 
Old 08-06-2005, 05:23 AM   #5
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ErinS64 HB User
Re: Here goes.........

I totally agree!!! I just had my LP done and I have already resigned myself that this test will also probably come back negative. That even if it would happen to come back positive, since my MRI isnt showing anything I will still be in limbo. Why should they worry? They are still making 11,000.00 a month on my therapy. I have really lost all faith in the medical profession. Before this the only time I would seek a dr was to get a needed antibiotic. This was ONLY if I knew that what I had wouldnt just run its course. In fact when I had my first attack I did nothing. I didnt seek a dr till my second attack of partial blindness. I was already "doctored out" before my last visit to the rheumie. It was at my boss's insistance that I went again. The result of that visit was my first test result that didnt come back normal!!! I actally laughed when she told me. I said this is the first time that I am not the heathiest woman on paper that cant walk sometimes!! I know she most have thought I was crazy! Or when you are feeling so bad you are dragging you leg around and someone ask what is wrong with you and all you can answer is " Oh........nothing".

Erin

 
Old 08-06-2005, 11:53 AM   #6
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shellymay HB User
Re: Here goes.........

Estevens64,

I really like your attitude!! You sound so much like me!! I love reading your post. Thanks for putting a smile on my face everyday!!

Michelle

 
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