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Old 08-07-2005, 09:20 AM   #1
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sparkle27 HB User
Prognosis for young people with MS

Does anyone know if it is better to get MS when you are younger or older? I have a neuro appointment this week and pretty sure we're going to end up looking in the direction of MS. Im 19 and its difficult to find info on young people with MS. Any help?

 
Old 08-07-2005, 11:12 AM   #2
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Re: Prognosis for young people with MS

Hi Sparkle,
Welcome, though I'm sorry you have the need to even come here.

I've never seen any studies or statistics about how the diseases progresses based on age at onset. That would be interesting. However, I have a feeling that just like everything else to do with MS, it is a very individual thing and there is no way to predict the course of progression.

My daughter was 19 when diagnosed and is now 25. Her path has been a little more difficult than others, but she still enjoys life to the fullest and is a wonderful mother to her 4 year old. There are some other young women with MS here on the board who I'm sure will come along and reply and offer perspective and support. They are awesome!

Take care,
Julie

 
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Old 08-07-2005, 01:10 PM   #3
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djpihavems HB User
Re: Prognosis for young people with MS

hi sparkle.
i was diagnosed in high school. i'm 28 now, so it's been about 10 years. i'm not sure if age at diagnosis matters as much as how long the disease goes without being treated. it follows that younger is better, just since the disease has had less time to develop. it's possible to be a young person and have this disease. i got through high school, went to college, and entered the work force. i take good care of myself - try to eat right and exercise. i try my best to keep up with my general health, and that seems to help. i have never felt that my ms has stood in the way of dating or doing any other young person activities. it's hard at the beginning because it is such an emotional shock. but, once you get past that, it just becomes a part of the tapestry that is you.

 
Old 08-07-2005, 02:10 PM   #4
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Jewel2 HB User
Re: Prognosis for young people with MS

Quote:
Originally Posted by djpihavems
it's hard at the beginning because it is such an emotional shock. but, once you get past that, it just becomes a part of the tapestry that is you.
Beautifully said! This is exactly what has happened in my daughter's life.

Thanks for contributing such a gem of wisdom to this board.

 
Old 08-08-2005, 07:47 AM   #5
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djpihavems HB User
Re: Prognosis for young people with MS

Quote:
Originally Posted by Jewel2
Beautifully said! This is exactly what has happened in my daughter's life.

Thanks for contributing such a gem of wisdom to this board.
you're welcome. a tapestry with a lumpy, welted butt, but a tapestry nonetheless!

 
Old 08-08-2005, 03:42 PM   #6
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gyrl293 HB User
Re: Prognosis for young people with MS

hi sparkle,
I'm 24 and I'll be starting my Rebif this week with any luck.....There still a 50% chance I don't have MS but I'm not holding my breath.....I'm not really sure how I feel about it so far....although after I read a lot of the post on this site I did feel very very lucky...... I'm very well off as far as some symptoms go....My sight is fine I can walk ....it might not be pretty all the time but I can do it. I very lucky it seems .....
I remember that every night my thoughts and prayers for everyone .....

 
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