My friend just sent me an article about (Prokarin) made of a foamy gel containing histamine and caffeine that's applied to the skin and then tightly covered with a patch. It's supposed to help the extreme fatigue that comes along with the MS. Anybody ever heard of such a thing?
Thanks for thinking of me. I was on vacation (well my husband was, since I don't work!), and we had a nice time even though the pain stayed with me for the entire trip. Our casino host had a wheelchair for me, but alot of the casinos are just not designed to maneuver those things, so I stuck with my cane. Also, had a bit of bad luck and suffered a small stroke (TIA) right before we left, but it didn't leave any residual effects, and I was grateful for that. I plan to ask my neuro in Oct. about this patch thing. I drink only decaf products, so I'm not sure I could do the patch as it would probably have me bouncing off the walls!!
So, how are you feeling these days? And, had you had any luck in finding your own "fancy cane"???
Fancy, I'm doing pretty well, paying more attention to my body and my limits. I did use my cane one day last week, but it could be called "festive" at best, colors but not fancy! Still looking!
I am so sorry you had a stroke, but very glad no residual effects. What is TIA? Was it all MS-related?
Casinos are hard enough to get around on foot, I can imagine it was futile to try the wheelchair. Did you WIN??
Glad to hear you're litening to your body. I've got to learn to do that more often as I tend to push myself because I feel guilty if I'm just sitting around. TIA stands for transient ischemic attack. It's a sudden disturbance in brain function due to a temporary deficiency in the brain's blood supply. They're small attacks that can last anywhere from 2 - 30 minutes. If you read all the symptoms that come from having one, you'd swear it was MS related or a mimic type thing. Mine lasted only a couple minutes, but scared me enough to make an appointment with my doctor!
I saw a program on PAX TV a while ago about how Prokarin was developed and how it was such a miracle for the inventor's MS (the show was called [...something Miracles]). This was before I was diagnosed so I thought it was interesting, but I didn't research it until more recently. It's not really called a sham, but everything I've found online tells me it's inconsistent for relief at best. They also had a story on the bee sting thing and I'm finding the same types of research. SO.
But I don't think the research on interferons seem to have much more credibility.
ALSO, before my first documented attack of optic neuritis, I had been having what I later thought were numerous TIAs (a friend took me to a bookstore and it fit the symptoms we found in a medical reference book). I later determined that, no, you don't get that many attacks in ONE DAY, let alone over a period of WEEKS. When I was being diagnosed for MS, I was told that was probably part of it. SO.
I take my Amantadine to fight the fatigue and that's about it. The momentary drag of my leg (that was part of the "psuedo-TIA" episodes) have pretty much stopped, so I don't treat that. I gave up on Avonex when I realized I was losing 70% of my LIFE to the side effects. I MIGHT start Copaxone if I can arrange to pay for it simply because it doesn't have those flu-like side effects...
Lisa, I'm hoping you can work out the Copaxone thing. I'm into my 3rd month now and barely notice the shots. Yes, it is daily, but ABSOLUTELY no side-effects for me, at least since I've learned better to avoid hitting muscle!
Yes. Heard of it, used it. I was on the Prokarin patch for about 1 year with no noticible changes in my MS. I think it might be a mind over matter medications. At least you feel like you are doing something to possibly control some symptoms. Good luck.