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Old 08-08-2005, 08:52 PM   #1
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blood transfusion and MS

Just wondering. I had a blood transfusion 16 years ago after I had my first daughter. I had lost too much blood having her and my blood count got so severely low that I had no choice but to receive a blood transfusion. I tried to get the hospital to let my father give me his blood but they wouldn't because it had not been tested. I would much rather have my dad's blood than some strangers blood running through me. They wouldn't let him because they said that it had not been tested. If they knew my dad like I know my dad they would have let him do it. Anyway, I was just wondering if you think maybe you could receive something in the blood during a blood transfusion to spark MS? I'm not talking about suddenly, I mean years after receiving the blood transfusion. I have been having MS symptoms for years now but just recently they have gotten so bad that I started going to the doctor about them. Just wondering if you all have heard any correlation between the two. Thanks for your input.

Michelle

 
Old 08-09-2005, 03:21 AM   #2
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Re: blood transfusion and MS

Hi michelle, Funny you should place this post, only the other day I was talking with someone about my history. I had a supposedly straight forward operation to remove a falopian tube, which left me with lots of problems. After five days in hospital I was sent home only to be rushed in again 3 days later due to hge blood loss and infections. Apparently I lost 4 units of blood during the operation(reason never given) and then a further ??? during my stay at home afterwards. I too had resieved blood on both occations. After a long 3 weeks in total of hospital. I was sent home again.

Before my operation I had never really been ill apart from the odd thing, but scince I have never been the same, always tired, lots of headaches, sick weak you name it. That was all in 1999, I had what I know now as my first relapse in April 2000 dx Jan 2005. I have often said that since my operation I was never the same and now I wander did the complications & infections trigger somthing off to end in my having this lovely MS.

It would be interesting to find out how many other people with ms have had transfusions prior to MS DX. I hope you get more feed back. Take care Donnalynne.
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Old 08-09-2005, 08:54 AM   #3
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Re: blood transfusion and MS

Donnalynne,

Thank you for your post. I'm sorry to hear of your ordeal. Yes, it would be interesting to know how many people with MS have had a blood transfusion. I hope that we do get more feedback. It makes since to me that when you receive someone's blood you are receiving their family history too to me. Thanks again!!

Michelle

 
Old 08-09-2005, 05:07 PM   #4
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Re: blood transfusion and MS

How many of you all have had a blood transfusion? Thanks for your replies!!!

Michelle

 
Old 08-10-2005, 09:39 AM   #5
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Re: blood transfusion and MS

Has noone here had a blood transfusion and also have MS? PLLLLEEEAAASSSEEE ANSWER!!!

Michelle

 
Old 06-08-2011, 09:25 AM   #6
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Re: blood transfusion and MS

Hi Shellymay

Having been diagnosed with MS a few days ago, I've stumbled across your narrative. Your experience is the same as mine. Noted, you posted your comment along time ago. How are you? Hope you are ok! X



Quote:
Originally Posted by shellymay View Post
Just wondering. I had a blood transfusion 16 years ago after I had my first daughter. I had lost too much blood having her and my blood count got so severely low that I had no choice but to receive a blood transfusion. I tried to get the hospital to let my father give me his blood but they wouldn't because it had not been tested. I would much rather have my dad's blood than some strangers blood running through me. They wouldn't let him because they said that it had not been tested. If they knew my dad like I know my dad they would have let him do it. Anyway, I was just wondering if you think maybe you could receive something in the blood during a blood transfusion to spark MS? I'm not talking about suddenly, I mean years after receiving the blood transfusion. I have been having MS symptoms for years now but just recently they have gotten so bad that I started going to the doctor about them. Just wondering if you all have heard any correlation between the two. Thanks for your input.

Michelle

 
Old 01-02-2012, 01:13 PM   #7
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Re: blood transfusion and MS

Hi I have been searching the web for answers. I had my son 8 years ago and had to get a blood transfusion. A year after that I started to get sick all my symptoms pointed to MS or lupus. I have always been outgoing and healthy prior to the tranfusion with no family illnesses. When I started to feel ill my legs gave out when I tried to stand one morning, chronic pain, fatigue, dizziness, brain fogs, etc. I have been going through this for years now with no explanation from doctors, they call me the mystery patient. Recently I started to have severe pain and stiffness in my body and my vitamin D level will not stay normal without taking 50000 units of vitamin D from the doctors. My blood test for years have not shown anything until recently, which is low vitamin D and internal inflamation. I take meds for to months and retest. Although inflamation is present other test showed no disease or disorder. When the doctors told me that I need a transfusion my mom kept saying no dont get it, but they said I had to have it. All I know is that day changed my life. The blood tranfusion was the only thing that I could think of that could have started this.
Quote:
Originally Posted by shellymay View Post
Just wondering. I had a blood transfusion 16 years ago after I had my first daughter. I had lost too much blood having her and my blood count got so severely low that I had no choice but to receive a blood transfusion. I tried to get the hospital to let my father give me his blood but they wouldn't because it had not been tested. I would much rather have my dad's blood than some strangers blood running through me. They wouldn't let him because they said that it had not been tested. If they knew my dad like I know my dad they would have let him do it. Anyway, I was just wondering if you think maybe you could receive something in the blood during a blood transfusion to spark MS? I'm not talking about suddenly, I mean years after receiving the blood transfusion. I have been having MS symptoms for years now but just recently they have gotten so bad that I started going to the doctor about them. Just wondering if you all have heard any correlation between the two. Thanks for your input.

Michelle

 
Old 01-02-2012, 04:22 PM   #8
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Re: blood transfusion and MS

Quote:
Originally Posted by Coco71 View Post
Hi I have been searching the web for answers. I had my son 8 years ago and had to get a blood transfusion. A year after that I started to get sick all my symptoms pointed to MS or lupus. I have always been outgoing and healthy prior to the tranfusion with no family illnesses. When I started to feel ill my legs gave out when I tried to stand one morning, chronic pain, fatigue, dizziness, brain fogs, etc. I have been going through this for years now with no explanation from doctors, they call me the mystery patient. Recently I started to have severe pain and stiffness in my body and my vitamin D level will not stay normal without taking 50000 units of vitamin D from the doctors. My blood test for years have not shown anything until recently, which is low vitamin D and internal inflamation. I take meds for to months and retest. Although inflamation is present other test showed no disease or disorder. When the doctors told me that I need a transfusion my mom kept saying no dont get it, but they said I had to have it. All I know is that day changed my life. The blood tranfusion was the only thing that I could think of that could have started this.
Welcome.

Vitamin D deficiency can cause MS like symptoms to present. Your blood transfusion is likely coincidental. Your body's ability to absorb Vitamin D might have been reached via your DNA. That is, you might have been predisposed to develop a problem with Vitamin D deficiency.

If your doctor has followed the Revised McDonald Criteria for determining MS or not, then you should have an answer. MS and over 400 other diseases have many common symptoms, but an MS specialist can help steer you towards the correct diagnosis. Vitamin D deficiency is but one of over 400 disease possibilities.
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Old 01-02-2012, 05:15 PM   #9
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Re: blood transfusion and MS

I have to agree with Jayhawk on this one! There is absolutely NO WAY that a blood transfusion could give you MS. It would be impossible. Blood has nothing to do with the disease. It is possible that you have vitamin D deficiencies though, and that would present in a similar fashion.

Good luck finding answers. Im sorry you are going thru this- but MS can come on at any time in life (I was 38 and completely healthy prior to my first symtom). You didnt get it from the blood transfusion. And, lupus wouldnt be from a transfusion either. It is possible however that you have developed something completely unrelated....so please keep rechecking those levels. Im assuming you have had the MS tests, starting with MRIs of the brain and spine, with and without contrast?


Nikki
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Old 01-03-2012, 05:40 AM   #10
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Re: blood transfusion and MS

Maybe the blood transfusion did not cause it but any medical procedure can trigger something. My MS started after a general anasethitic when I was 17 years old. During this op I was also given an epidural.....I was never the same after that with lots of weird MS symptoms but did not officially get diagnosed until 14 years later......for some reason despite my real ill health nothing showed up on the scans. (They have shown up good and proper since)

 
Old 01-03-2012, 06:21 AM   #11
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Re: blood transfusion and MS

What you guys are saying is actually NORMAL. MS doesnt show up from an epidural or a blood transfusion. However, a stressful trigger, such as a death, major accident, even loss of a job, can bring upon symtoms. Depending on how our bodies handle the stress/ trauma which it is given , things CAN show up.
The disease itself was already there; nothing can "give you MS'. Its not catchy, and its not something you can get from someone else or a procedure. However, as we all know, many of us live for 20+ years without knowing that we have it and its not until a trauma associated with our bodies, do the symptoms begin to show up. Had you not been afraid over the blood transfusion, and I do believe that was due to a birth of a child, had the epidural not been such a frightening experience, none of these things should have harmed your body in any way; however stress is a trigger! THere is no doubt that a stressful situation can make the body react in strange, crazy ways, even bringing MS to the surface. BUT, the disease was already there. You cant catch it from a medical procedure or simply from stress alone.

For me, I had gotten married, inherited 3 children under the age of 10, gone back to school and was working 45 hours a week....all this at the age of 38. It was incredibly stressful. The mother of the children, walked out of their lives the same week. She signed over full custody to me and my husband. Having been single and footloose and fancy free for almost 40 years, the stress of this triggered all sorts of things. First muscle aches and then migranes...I woke up one morning with a numb hand and fingers....within the week I knew I had MS. Do you see the pattern here? Its proven, that the disease can stay in remission, BUT YOU DO HAVE IT ALREADY for tens of years...however, any stressful situation can bring the symtoms to light, and thus a diagnosis results....until that happens, you have no reason to be tested. DOes this make sense?

Happy New Year to you all. ...and when you see someone who is stressed out over something, you know now to explain to them that getting a handle on their stress if major! If they allow themselves to live with health, it ultimately will affect their overall health.
Nikki
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Old 01-03-2012, 07:39 AM   #12
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Re: blood transfusion and MS

When we are not attune to our bodies, we can miss many early harbingers of MS. My first symptoms which I can remember were in 1977 when I was 14. I had a pattern of foot drop which I dismissed as clumsiness. If I looked further back, it may have been when I was 11-12 years old. Again, clumsiness- or so I thought.

Stressing life events, whether joyous or tragic, cause chemical reactions within each of us. Each person, though uniquely made, has weak points within their physical structure. When MS strikes, it is often found presenting via our weakest links. My neuro told me in 1982 that stress was my enemy and I needed to learn to avoid it. For many MSers, the holiday's can cause problems to present. Stress brings out the worst in MS. For me, temperature or seasonal changes are stress events. I am still waiting for a vacancy in the Garden of Eden! :P

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Old 01-03-2012, 07:54 AM   #13
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Re: blood transfusion and MS

I agree the MS is probably always there until it is triggered....My GA was my trigger (I don't think the 2 bouts of Mono aka glandular fever helped either)
My aunt had MS so I think I was always genetically predisposed to it

 
Old 01-03-2012, 09:25 AM   #14
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Re: blood transfusion and MS

Searchout,
Thats an interesting last line you threw in there. About being pre-genetically disposed.
They are currently doing quite alot of tests to see if there is any genetic inherent traits which can pass MS along. Right now, they are positive that MS is not hereditary; however no one has been so bold as to say that having an autoimmune disease isnt a pre-disposition. There are genes which have been identified which may be important towards proving that autoimmune diseases ARE hereditary. Not specifically a particular one, but the idea of having a weakened immune system maybe hereditary and thus each line of the family could be suspectible to finding they have some sort of autoimmune disease.
My mother has RA (rheumatoid arthritis) she didnt develope it until 8 months before I was dx with MS..... no one else in my family has an autoimmune disease. Other families have "runs" of autoimmune diseases, even having multiple MS siblings. The information which is starting to come to light is most interesting. It should be very enlightening to hear what this all proves- and hopefully we will have these answers in the next few years. Now, if they can only figure out what causes MS..... (we can then focus on a cure!)

By the way, very similar studies are being done on the link between viruses and MS- your Mono is one of the viruses being studied. As most of us know, mono can live in the body for years and you can be a carrier, without actually having the virus attack. It can also go into remission and come out again down the road. I had what they termed CFS (Chronic Fatige Syndrome) back in the early 80s- and it was never treated. Turns out that is practically the same virus as Mono....did it actually take 11 years for me to develop MS and was it because I had CFS? To this day, no clearcut answers on that one; however, it is possible...

There is so much researcd being done to answer all of these questions- thank goodness! But there are a few things we know for sure. You cant get MS from another person, you cant get it from a blood transfusion and you cant get it from an epidural. You also cant get it from being hit on the head or from childbirth...yet, each and every single one of these things can trigger a stresslike episode which everyone's body handles differently. If MS is present in the body, any of these factors could bring symtoms on and thus lead to a diagnosis once proper testing is done. After all, why would anyone have a brain scan or an EMG done if nothing was troubling them? The disease was there, it takes an "episdoe" to bring the symptoms to the surface.

Interesting discussion. Thanks!
Nikki
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Old 01-03-2012, 09:44 AM   #15
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Re: blood transfusion and MS

I totally agree with you Nikki stress is the big trigger in so many forms.

My mum has Hashimotos (her sister was the one with MS) so she has an AI disease but hers attacked her thyroid and not her brain/spine so AI conditions can morph into other AI conditions through families.

I didn't know your mum has RA How severely is she affected?

I hope they find some genetic links that can help discover where MS comes from.
I know they have found a link with the inability to manufacture Vitamin D or something and as we know low Vit D levels are common is us MSers.

Mono (EBV) is a nasty virus but like 95% of the population have antibodies to it (or something like that don't quote me on the exact %) which means they have been exposed in some form but they all don't develop MS so there has to be another part to that puzzle.

I hope the clever scientists get further along in the mystery during 2012...I am desperate to hear they know how to prevent/cure MS but I have a feeling I am in for a long wait! xx

 
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