Been Having A Tough Time... - Multiple Sclerosis Message Board

kchs1 · 08-31-2005, 11:25 AM

HEY FAMILY.

I'VE BEEN HAVING A TOUGH TIME, EMOTIONALLY AND PHYSICALLY, HENCE THE REASON FOR MY ABSENCE. I'VE MISSED U GUYS.

THE SHOTS DONT HURT THAT MUCH. I'M OFFCOURSE STILL TERRIFIED OF NEEDLES BUT I GOTTA DO IT. TONIGHT I'M INCREASEING MY DOSAGE. NOT LOOKING FORWARD TO IT BUT... WHAT CAN I DO?

MY BACK FEELS JAMMED CONSTANTLY AND IT JUST WONT LET UP. I'VE ALSO BEEN HAVING LOTS OF HEADACHES, BUT THANK GOD THAT IT'S NOTHING LIKE BEFORE. STILL LIMPING AND STAGGERING AROUND. THINK I NEED A SHIRT THAT SAYS "I'M NOT DRUNK, I HAVE MS!!!" PINS AND NEEDLES AND THE BURNING FEET SENSATION HAVE RETURNED.

SAW NEURO LAST THURSDAY, GOT MORE MEDS WHEEEEEEEE!!!! MY BLADDER IS NOW SERIOUSLY ACTING UP SO WAS GIVEN SOMETHING FOR THAT TOO.

I'VE JUST BEEN FEELING EXTREMELY EXHAUSTED AND I DONT EVEN DO ANYTHING. YESTERDAY IT TOOK ME 2 HOURS JUST TO GO IN THE SHOWER!!!
I DON'T KNOW...

OH DID I MENTION THE FUN PART? WENT TO SEE MY DENTIST... NEED ORAL SURGERY. NOT DOING IT UNLESS I CANT STAND THE PAIN OR DISCOMFORT. BASICALLY THEY'RE TELLING ME THERE IS ABOUT $5000 WORTH OF WORK TO BE DONE!! HAHA

6 MONTHS AGO THE ONLY PROBLEM WAS 1 CAVITY AND MY 2 BACK MOLARS. NOW ALL OF THIS? SO I WENT AND GOT A 2ND AND 3RD OPINION AND THEY'RE ALL TELLING ME THE SAME THING.

RIGHT NOW I JUST FEEL EMOTIONALLY SPENT AND TIRED OF ALL THIS. MY ATTITUDE RIGHT NOW IS THAT I'M THROUGH WITH DOCTORS. I MADE UP MY MIND. I'LL KEEP GOING TO SEE MY NEURO AND MY OPTHALMOLOGIST. MY EYES ARE ACTING UP SO I NEED TO STAY ON TOP OF THAT. DON'T NEED 2 MAJOR PROBLEMS RIGHT?

SOMETIMES I JUST FEEL LIKE I'M TIRED OF ALL THIS, I'M TIRED OF ALL THE BAD NEWS. I'M TIRED OF ALL THIS PAIN. I'M TIRED OF FEELING LIKE I'M A PRISONER IN MY OWN HOME. IF I'M NOT GOING TO A DOCTORS APPOINTMENT I DON'T GO ANYWHERE! AIN'T IT FUN TO BE ME?

I FEEL LIKE I JUST CAN'T CATCH A BREAK!!!

JUST WANTED TO LET YA'LL KNOW WHAT'S BEEN GOING ON WITH ME.

BUT HEY, I GUESS I GOTTA GO THROUGH ALL OF THIS AND WHEN I DO CATCH A BREAK IT'LL BE A HUGE ONE...RIGHT??

KELLI, THERE IS LIGHT AT THE END OF THE TUNNEL... RIGHT?!!!

'TILL NEXT TIME.

BLESSINGS!!

MRS. KCH-S

gyrl293 · 08-31-2005, 11:36 AM

Well hello again,
I was wondering where you have been. I made a post just for you on Monday, but you never got back to me. Now I know why. I'm sorry that thing have not been getting any better for you.
I'm not having as many problems but I know the "I'm sick of the doctors" feeling. I too have been getting headachs, and my lower back is killing me. It feels like a constant pressure. Is that the same feeling your having? We started the Rebif the same day so I'm right there with you. Going up in dose tonight as well.

I hope you start feeling better soon. There's nothing worse then having to pretend that your feeling good when your not. My thoughts and prayers are with you........Keep writing we miss ya

Mari

kchs1 · 08-31-2005, 11:50 AM

Thanks Mari! Yeah Thats The Way I Feel. Constant Pressure Pushing In All The Time!!!

Thanks Girl For The Constant Support.

KelliD · 08-31-2005, 11:51 AM

Yeah babe, there IS light at the end of the tunnel and the great news is that it's not a train bearing down on you.

I am so sorry you are in such a shape. You are having a fullblown exacerbation and I pray it ends soon and NEVER comes back.

I understand the dental issues...I was just told that I need at least $3k worth of work. Can't afford it. And can't afford not to have it done. I just found out one of my meds was damaging my teeth.

I, too, am tired of needles and doctors. I had the worst, most intense pain of my entire 42 years just a few days ago... But I refuse to give in. Yes, I slow down when I need to...I even come to a full stop when I have to...but I will NOT surrender my spirit or my mind to this disease. I have too much living yet to do! So do you, doll! Onward!!

kchs1 · 08-31-2005, 11:54 AM

MARI U WROTE ME ON THE 24TH I DID RESPOND THE FOLLOWING...

Hey Mari. I've Been Taking It Easy. Still Feel Exhausted. The Shots Are Going Fine. I Just Keep Feeling Nausious And I'm Also Getting Slight Headaches And Bodyaches. Besides That I'm Not Doing Too Bad. It Takes Me A Minute To Do The Injection Though. But I Guess I'll Get Over That In Time.

Hope All Is Well With You And Thanks For Checking Up On Me. It's Greatly Appreciated!!!!

Keren