I just had my first brain MRI this morning. Aside from the noise, it was a pretty pleasant experience...didn't last very long either. Anyway, before the MRI, my neurologist scheduled me for a follow up but not until Jan 3rd! Isn't that a long time? Perhaps she is hoping that my symptoms will worsen by then and be more pronounced. The top-doc said he wants to see the "smoking gun". (I wanted to show him one too ) Anyway, how long will it take for the MRI results to come in. If they happen to see lesions, do you think it will be ok to wait until January to do something about them?!
I had my mri this morning also. I am just starting the testing process to see what is causing my numbness and tingling sensations. I have my visual evoked response test tomorrow and an eeg on friday. I still need to schedule my emg tests. I can't imagine waiting until january to find out my mri results. If you can't talk to your doctor I would call his office and speak to his nurse or medical asst. January is just too long to wait. Good luck.
January is crazy. The morning I had my attack I had an MRI... 5 minutes after, my doctor has the films. Turns out he was in the room, watching as the MRI scans came up, and as soon as they were printed, we had a follow up.
When I went in for follow up scans (a little less urgent) we had follow up 3 days after the MRI. Don't let them make you wait that long!
Oh, Blessed, it sure does sound like they are brushing you off. I had to wait two weeks after my first brain MRI, that seemed quite long to me. But the difference is, I got copies of my MRI when I left the test. This last time was even better, I got the MRIs on CD the next day, and they also gave me the radiologist's report. I'm sure I'm paying for these copies, but I'm VERY happy to have them! Call the place where you had the MRI, ask for copies of the MRI (on CD is much easier to store!) and a copy of the report. Grrrr, why do they try to make us feel like the stuff is not OURS! You are entitled to copies, they are not entitled to keep the results A SECRET!!!
Now, it seems to me that a responsible neurologist would call you in sooner than January if there is something suspicious. (How silly that they would set you up to be alarmed if that ends up being the case, grrrr again.) But here's the deal, I did not see the radiologist's report for my first MRI, but it must have been pretty vague. I did have a few small lesions, but no one thought I had MS. My neuro did, based more on my symptoms than anything else, order the EPs and LP. And she did, over the next few weeks, show my MRI to some other neuros and discussed my case. In the end it was determined that I have early stages, "mild" MS. AND -- the next MRI I had, 3 months after the first, showed several new lesions (I think we ended up counting 5 or 6 new ones).
Be proactive on your own behalf, it seems we cannot count on doctors to do it. Get your results. Pay for them on the spot if necessary, but get them. 3 and a half months is WAAAAAAY too long to wait.
There is no reason for that, I would call within two days and ask for the results. If he can't take the time to look them over by then, I would ask for the films and take them to another nuero. You can also call the place where you had the MRI done, while they may not be as "technical" as the doctor. All the MRI's I've had have had notations sent with the films to the doctor from the person who took the MRI noting any oddities or differences between films... In other words, the lab technically does the work anyhow, the doctor only has to double check it. Good Luck
thank you all. I am the bold and dedicated advocate for everyone but myself. I have to pray for the strength to call them for the results. I know it is crazy, but I get so intimidated. I know that i paid for these tests and if it were a dress or a pair of shoes, I'd be acting like a fool in the department store. Why am I not the same bold person in the doctors office? I guess it's because I have been brought to tears so many times. I am just afraid of feeling like a crazy person or like I've run into another brick wall.
I have even begun wondering if this really is all "in my head". :-(
I also get copies of all my test results and on occasion have called the Dr to report abnrmal results. According to HIPPA guidelines you have a right to a copies of your medical records. The one thing I have to remember when reading my own results is that this is a radiologist reading the results and giving his/her interpitation. The one you want to see the results is the nuerologist. They are the experts in determining MS lesions according to location and shape. I have had two MRI's in 12 mths and the second showed more lesions (large and to many to count) and have still not recieved a diagnoses. I definatley have become my own advocate. I do my own research, and always an as sweet as sugar when asking for special favors. People will do more for you if you make them believe they are the only ones who can help you. Sometimes waiting is the only option (remember other people are desperate too) if you have to wait do more research go in prepared and knowledgable.
That is interesting about the HIPPA guidelines, I'll have to look that up. I always ask for results of any tests to be sent to me, as well. But sometimes they snap back at me, "We have to have written permission from your doctor!" At times like that, I'm like Blessed4Life! Very intimidated, and I work at a ranch and wrangle big horses around! But little ol' huffy receptionists or secretaries scare me. Finally, after hearing the same ol' rude behavior at my atty's office from his secretary, I said really sweetly and off the cuff: "You know, it really doesn't help me to have you behave rudely like that to me." She slowed herself down and backed up and explained herself more and I felt better about myself. I do know how you feel Blessed!! I'm the same way and it IS indeed probably because I've cried in those offices so many times. This is hard stuff we're going thru!!
Oh, I don't know what is less productive, meekness or me at the other end of the spectrum. I really am a nice person, gentle, polite (I'm from Minnesota for Pete's sake!) But sometimes I just snap. If I perceive a gross injustice I've been known to, in the past, come totally unglued. Compound cuss-words, insults toward ALL of someone's relatives, just not pretty. In more recent years I have converted to LOUD sarcasm. A notable event was when I got nose to nose with the [$%$#] doctor who let my mother sit in the emergency room having a heart attack KNOWING she had not had her medication FOR THIRTY HOURS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!
It still sends me into a blind rage. I had someone bring Mom's lasix from home and I gave it to her. The b____ doctor had the nerve to tell me I couldn't do that. I got in her face and told her I would rip her hair out if she came near my mother again (as well as a few other choice words). Mom barely made it, and never recovered, she died 6 months later.
Oops, guess that one will never be "over" for me. But my point is: Doctors do NOT own us, or anything about us. This includes information. I don't give a rat's backend how much they THINK they know about what they should or shouldn't share. I don't care how important and smart they think they are. I am NOT impressed. If it is ABOUT ME, it belongs TO ME. Period. God is working on me, I don't cuss anywhere near what I used to. But I no longer have the patience to play with self-important jackasses.
I don't feel strongly about this or anything... Hope some little bit from this tirade pops into your head, Blessed and Shad, next time you feel medically intimidated. Hope it "sticks in your craw" and gives you the kick to stand up to them, and not feel sorry.
WOW! lilc, you have the same fire my mom does! I wish I did, too! Maybe (like my mom says) when I get sick and tired of being sick and tired, I'll raise my voice and be heard....I think I am getting to that point. I am mad at my body right now...it's like my spasms and twitches are basically nonstop now but when I was in the doctors office, I had only one little twitch! Come on body, if you want some help, show these docs how bad you can be!!! (That was meant to be funny, i'm not that crazy yet!!! )
Amen to that, you two!! It's like when you make up your mind to sell a broncy horse and put an ad in the paper and then he suddenly acts like the perfect horse and you don't want to sell him! It would help in times like those to have a list of all of his...er...qualities!
Also like deciding to fire the hired man and he then shapes up and you wish you could keep him.
I hope no one took my advice wrong about approaching the medical staff with a little vulnerability. Now here comes the great admission. I am an Rn and have worked in Dr's office and in house. That was in the past I am now a hospIce nurse and people do manipulate me now. I know first hand that if someone gets pushy with me over the phone(when I was an office nurse) I would probably drag my feet on their request. I'll probably get alot of flack for this but I'm just being honest. I also know that patients in the hosp. (that we called frequent flyers) knew how to manipulate the system. thats what everyone needs to figure out. I have been at both ends of the spectrum and believe me now that I'm on this end I feel bad about what I did in the office but I know it still happens. Office nurses are protective of their drs. I do manipulate the system know and ask for favors and I usually get them if I play the victim. I don't care How I get answers I just want answers. Infact today I got a scheduler in a big university hosp to get me in sooner with an MS secialist by playing the vctim. By the way they dont know I'm a nurse. I guess I just want you to understand I have not lost my dignity by doing this, I usually get off the phone thinking SUCKER!!!