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Old 11-06-2005, 10:03 PM   #1
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Brenygirl HB User
Unhappy Question re: MS & Mood Swings

Hi all,
I have a questions re MS & Mood Swings. My hubby was dianosed last year with MS. There has not been alot of change the doctors said when he had his yearly check up. I was upset at the appt because at his 6 mos check up the neuro told him that the next time he came in he would start him on medication for this. Well since there has not been alot of change he decided against starting my hubby on meds. I have been told that it is best to start the meds when diagnosed....maybe I just worry too much. I mean if he doesnt need the meds it is a good thing right?

Well anyway back to my question. My husband gets these little headaches that build up to bigger ones & then full blown migraines. Sometimes he just has a period of a group of smaller ones that dont build up to the big one. Well during this time his moods are just horrendous! If I say it is a beautiful day out he can carry on for example about how awful the day is. He will rant and rave. During the times with these headaches, I never know when he will blow up. Sometimes I wish he were crabby ALL the time so atleast I would know what to expect. Now this just happens occaissonally & right now is one of those occaissonally times I was just wondering if anyone had any input on this. I am getting frazzled. I love the mad to death, but sheesh! I wanna just smack the heck outta him when he gets like this!

Thanks for any info you may have!
~Breny

 
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Old 11-07-2005, 04:19 AM   #2
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Re: Question re: MS & Mood Swings

Mood swings are pretty par for the course... I can understand your frustration, but believe me it can be just as frustrating for your husband (When he looks back on it, he probably wants to smack himself...) You might want to seek another opinion on the meds too, it is best to start right away. They are loads of fun, shots, shots, shots. But they do help, Why wait to have a severe attack that your husband doesn't recover from, when meds can lessen the attacks. I won't say prevent, as nothing does, but anything that helps is a plus. Is your husband on antidepresants? They can help with the mood swings. Lots of people with MS take them, it's nothing unusual, nor is depression just from the dx unusual. Good luck to you.

 
Old 11-07-2005, 02:35 PM   #3
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Natatude HB User
Re: Question re: MS & Mood Swings

well since i have MS i say get another neuro,, one who will start him on the meds,, the earlier the better in my opinion,, i wish i had went to the drs yrs ago when my symptoms first started but they came and went and i didn;t pay them any mind,, then in 2001 i had a huge one i had to go to the dr cause i was numb on the whole right side of my body and could not see hardly out of my right eye,,,, after they found out was i had (MS) they got me on the shot immediately and high steroids,,, the numbness got better but everything else has stayed the same,,, so please get another opinion,, cause he could end up in a bad relapse and never be able to come out of it all the way,,,, i too get the headaches and just having a miserable day and my hubby will say things like ur so beautiful i love u so much do u know how much,,, and my replies are sometimes,,, yeah i know and ur dumb cause i have MS and it sucks and i suck and i don't know why u love me,,, and he just looks at me and walks away and then i feel bad and cry and go thru all that jazz,,,, i know my husband loves me and he will be here thru it all,,,, he works his *** off for me so we can afford this sickness I have and i feel so bad,, because if it wasn;t for me he wouldn;t have to work 80 hours a week so we could have money for insurance and co-payments,,,, sometimes my body feels so bad,, i beg god to take me,, just take me and get it over with to save myself from the pain and save my hubby from working himself to death and putting up with my moods and having to massage me and help me with my shots. just stick by ur husband all u can,,, he can;t help it,,,, this MS does stuff to us we don;t even know we are doing it. i wish u lots of luck!

 
Old 11-07-2005, 09:17 PM   #4
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Re: Question re: MS & Mood Swings

Thank - you for your replies. I am going to talk to my hubby about the meds and when he sees his neuro next, I am going to push for the meds. If he says no, then we will seek another. We live in a small town and it is a long drive to get a second opinion. My husband had 2 failed back surgeries and I stuck thru that and I will stick thru this. It is just so hard sometimes. You know, how do you explain it to the kids? I tell them well he is the crabby one, lets not let him make us crabby...let him be miserable himself I tell them. I tell him everyday how much I love him. I get the "Yeah right" sometimes too.

I have learned that MS can mask itself in so many ways. The mood swings. We were going to a podiatrist for numbness in his feet. He went thru all these tests and then remembered to mention to him that he had MS. In the end that is what was causing the numbness. He had no nerve damage when they did the EMG, but he had no feeling in his feet.

I guess when you have MS, everyday is Halloween for this disease. It likes to hide behind other things!

I wish you the best Nat. You are lucky to have a hubby that is so supportive. My hubby is the same way when he is not "swinging", as I have med problems as well.

Oh one more thing, about the anti depressents......he USED to take them & we found that they caused the need for "Viagra". He quit taking them and the problem went away. I need to talk to him about going on them again. I know not all AD's cause sexual side affects.

I am on AD's to help with my chronic pain, but lately they dont seem to work...when he gets this way, I just shut down. I cant stay awake for nothing. I am planning on talking to my doc when I see him this month about this. It has to get better so I can be there for him better.

Thanks again for the support. I can see hubby and I have a few things we need to take care of to take care of each other.

Take care!
~bRENY

 
Old 11-08-2005, 02:52 AM   #5
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Re: Question re: MS & Mood Swings

bReny,

Sorry to hear that your husband is having a difficult time with mood swings.

I have MS--Progressive it hit me like a ton of bricks and has knocked me for a loop the last 11 months.I to have had 2 unsuccessful back surgeries.It's very hard to figure out if the pain is from MS or the previous surgeries acting up.I take very few meds and have started physical therapy which has seemed to help all around.

I have no feeling in the right ankle, with absent reflexes.11 months a go I had a little reflex left.

The mood swings are frustrating all around.I get them and then afterwards I think boy was that stupid.Its more frustration than anything.It does impact the whole family.When I'm moody my children usually disappear for a while,they've gotten to the point it don't faise them to much.

I've tried several anti-depresents and being many are time released the side effects were worse than the mood swings.

Hopefully they can start your husband on meds that will help.Sexual dysfunction is a symptom of MS.Maybe the anti-depressants aided it.They're are a few that have less side effects.Lyrica is one it's fairly new.

Best wishes to you and your family

Toni

 
Old 11-11-2005, 04:48 AM   #6
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Re: Question re: MS & Mood Swings

There has been much discussion on depression and MS, on this board and all over the web. My neuro offered me antidepressants when I first saw her, when she thought I didn't have MS. I've had bouts of depression in the past and have REALLY struggled with it the past 8 months - a major "meltdown" seems to have triggered the symptoms that sent me to the doctor.
The past 2 weeks have been very, very bad. It's getting a little better, but I'm pretty much convinced I need to take my neuro up on the offer of antidepressants. Hate the idea, but hate how I've been feeling so much more...
I started Copaxone 2 days ago. Breny, I thought I wouldn't need meds because my symptoms aren't debilitating. I've learned that the meds are used to keep us from getting worse. I know a guy who couldn't decide about starting meds for a year, and during that year he lost the use of one leg, permanently. Go to a different neuro, one who is current on recommended treatment for MS. I'm not thrilled about daily injections, but I'm so grateful that I can still take care of myself and do things. I intend to do what it takes to stay this way.

 
Old 11-11-2005, 07:42 AM   #7
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Shadowrider HB User
Re: Question re: MS & Mood Swings

Lilc, as you know, I take an antidepressant and we have sure discussed that here. Again, you (and others here on this board) have suffered a major life change and not only that, but a vision for what your life will be has had to change. I think antidepressants can help you over that hump. It's not forever but just til things settle down for awhile.

I take Cymbalta and it has worked wonders for me. It seems to be very gentle at the 60 mg I take. I can cry if there is a reason to cry, and I can still make a choice not to cry. The other day, I did that. I have realized that riding even on just the trail for an hour must hurt my brain or spinal cord and I have terrible side effects. That night, my brain will just go black and I can't think about anything at all. Then I have worse sx for a week or so (I'm still not good after a cool ride up thru some canyons for an hour a week ago).

So, I maybe have to stop riding, or just ride for ten minutes at a time. My cognitive sx continue to go downhill and I can't play music anymore...can't write (I'm a writer by trade as well as a horsetrainer, or used to be)...so I wonder, what good am I anymore? To just putter around doing my housework? And right then, I could have gone into my bedroom and cried. No one was home and I felt like I could do it. But I chose not to. So, I think that is where Cymbalta is good for me. Lexapro would not let me cry, but I'd feel these stings of sadness in the background. So, just thought again I'd throw that out there. I never wanted to go on antidepressants either, had never taken them before or had emotional problems before. Didn't even like to take Advil...so it goes.

For me, taking the AD helps me keep an even keel, and gosh, it's hard enough as it is without having to feel sad all the time!

take care and again, safe travels!

 
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