new lesions - - Multiple Sclerosis Message Board

baddoey · 12-11-2005, 11:11 PM

I just got my results back from my latest MRI - 2 new lesions in the last year, since my MRI Nov of 04 - my neuro is a little concerned but wants to give it another 6 months on the copaxone and do another MRI - i don't know what to think - I don't feel like my symptoms have gotten any worse, but I just don't know if I should let it go any longer before I do anything else. She was talking about an oral steroid to try and slow it down - she said not to be too concerned, but that is sort of impossible. UG UG UG. . . any thoughts?

revlcb · 12-12-2005, 05:07 AM

From what I've read, Copaxone can take up to six months to begin working fully. So waiting another six months may not be out of the question. The 2 new lesions may have happened when you just began the medicine. You might want to give Copaxone time to do it's job then wait another 6 months and redo the MRI. Then if you see any new sx or paraclinical evidence, I'd switch to a beta.

Lisa

baddoey · 12-12-2005, 08:05 AM

thanks for the reply and the advice. . I guess I will see how it goes - just such a bore to have to give myself a shot and have it not work. I think I am having a depressing monday. Oh and my neuro said that she doesn't think she is going to perscribe Tysabri to any of her patients - she is concerned about PML even as a stand alone therapy over the long term. Has anyone else gotten any feedback from their neuros if the tysabri is approved?

dje27 · 12-12-2005, 09:27 AM

I have a question. Where are your lesions? Are they in certain parts? I have lesions all over. Parietal lobe, white matter lesions. New ones keep popping up. I dont even have a dx yet. Just curious what makes neuros make the diagnosis. I also have symptoms but he still isnt convinced.

Thanks

baddoey · 12-12-2005, 09:53 AM

oh gosh - I'm not sure where they are. my symptoms are sort of mild at this time - pins and needles, headaches and facial numbness. . I have quite a few lesions, but they are small. sorry to hear that you don't have a dx yet - often that happens.